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Diagnosed! Grade 3 Squamous Cell carcinoma Stage 2b.

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AliAliOkay
Diagnosed! Grade 3 Squamous Cell carcinoma Stage 2b.

I got my results and official diagnosis on Friday. 

The tumour is big (I forgot to ask the measurements) and has grown out of my cervix into the surrounding tissue. They've graded it 2b. 

I'm feeling good about it. I mean, it's not what I wanted. It's not all a big mistake, for one! Oops daisy, we thought it was cancer but it's just a bit of loo roll rammed up your chuff! It's not teeny weeny and super early, it's not even operable, but it could have been much, much worse I guess. Its still treatable. This is good news. 

I'm going to have a PET scan next week, hopefully, and then my radiotherapy and chemotherapy will be planned.

The only thing I'm really anxious about right now is telling my mum. I'm her only child. And she's all alone, isolating. 

Other than that, I just want to fight this stupid thing. How dare it invade my body. 

 

 

 

17/4/20 GP referral following examination 

24/4/20 Colposcopy, biopsies

28/4/20 MRI

1/5/20 Told Grade 3 Squamous Cell tumour, stage 2b. Will have chemo and radiotherapy.

7/5/20 PET scan

14/5/20 Consultant appointment. PET scan showed lymph node involvement. Restaged 3c. Tumour is 5.2cm.

21/5/20 Radiotherapy planning appointment

8/6/20 Start chemorads

Memagh

Ali you seem to have the perfect attitude to beat this and it is beatable. I know this isn't for everyone but I chose not to tell my parents. They live in Ireland and I'm in the uk so it was easy as I didn't see them all the time. My Mum is a terrible worrier and I didn't want her worrying for months. It was so much easier to tell her when my treatment was over. She flew over straight away and was quiet relieved to see I wasn't at deaths door. In saying that, I had a lot of sisters to support me. This journey is all about you at the moment. You need to do whatever will make your journey easier. Very best of luck with treatment and we will be here to answer any questions if we can.

x Maria

Diagnosed CC 01st August 2019 Stage 1b2 with 1 local lymph node involved. Something else showed up on pet scan. Treatment delayed for surgery, done on September 9th. Found to be a simple ovarian cyst, 1 ovary and tube removed. Treatment plan 5 chemo, 25 radio and 4 brachy. Treatment start date 02nd October 2019. Treatment end date 8th November.

10th February 2020

MRI and Pet-CT clear. NED

3 monthly scans

 

FeelingTheFear

Hi AliAliOkay 

I just wanted to say your post really struck a chord with me, as I too had the belief in the back of my mind that it was all going to be revealed to be some appalling administrative error! I had told one of my friends that my LLETZ had come back that I had cancer, and then immediately regretted it as I felt like a fraud for not having "real cancer". Well, it all got real soon enough LOL 

I also agonized over telling my parents, had to do it over facetime due to covid. I started it by saying, unexpectedly the doctors have found something I need treatment for but firstly I need you to know we have a plan and its very treatable and I'm feeling alright about it so dont worry. They were very upset but a few days on are finding ways to talk about normal things again which feels good. I know it hurts them that we cant see each other though.

I know you've had to be strong for your partner since your initial diagnosis and I hope he is feeling more reassured and able to support you emotionally, now you've had your staging and the road ahead is starting to take shape.

All the best x

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

noodlesdoodles

Hi AliAliokay 

You sound like you are ready to kick it’s butt - good on you! I’m sorry you find yourself in this club none of us wanted to be in and your post made me smile - was sure it was a mistake too! Make sure you look after you  on the journey. My Dr told me at diagnosis- it’s treatable. It will either be hysterectomy or  chemorads,but both aim to cure.. Keep that in your mind as you go through this and if you decide to tell your Mum.It is treatable that is good news.

You know your Mum best and it will be a shock for her as it is for all of us. That is unavoidable. She may need lots of info or need to help in some way. I wanted to know everything so I was ready for whatever lay ahead. Jo’s and Macmillan were great at helping with information on the end of the phone. My Mam had to do things to help and researched a high protein diet for me as I had asked my Dr what I could do before treatment started. She said she felt better doing something to look after me. Do you live near enough to go and see her ( through a window I know and my heart goes out to you all going through this now). She may be reassured seeing you.

Its a tough, rubbish situation to be in, but follow your instinct and do what you think is best for you as Memagh said. If your Mum knows you are doing what is right for you she will also feel reassured.

You will get through this and it is a journey so keep that WonderWoman attitude( and you might not always - I cried a lot too). Best of luck and big fat virtual hugs - we are here anytime you need us xxxx

 

May 19 smear June 19 CC diagnosed CT/ MRI July 19 EUA - into parametrium PET scan Results - 2B clinically/. 1b1 radiologically. Decide between chemorads or hysterectomy 30.07.19 Saw consultant- will do EUA / camera and node dissection first. If spread do chemorads 21.08.19 open Radical Hysterectomy and node dissection 2.9.19 NED Nov19 ISC bladder issues Diagnosed with Lymphoedema
Harvitt

I held back telling my family until the day before I started chemo/rads. I wanted to earlier but covid19 got in the way and I didn't want to upset or hurt or worry them. I wanted to know in my head and my heart I was going to kick this. I wanted to be able to say without a doubt: I have cc, it's stage xx, it's going to be treated this way for xx amount of weeks and I'm going to be OK. 

I ended up not telling them the stage as it was 3c but I told them everything else and that ot was in lymph nodes that's why I was going down the chemorads route.  I told them in the back garden 6ft apart as I couldn't bare doing it on a WhatsApp/zoom call. It wasn't fair. It's up to you how and if you tell your mum. You know her best. But you will get through this xxx

 

06 Jan 20 massive bleed. 7 feb 20 smear came back highly differentiated severe dyskolious. 14 Feb biopsies taken. 21st Feb cc cells found. 22 Feb 20 told poorly differentiated squamous cell. 28 Feb staged at 2a. Tumour is 2.4mm/9mm 6 March restaged at 3c due to 3 lymph node involvement - x1 2cm. 12 Mar 20 met oncologist - told me coronavirus will probably kill me before cc does. 18 March 20 pre scan booked.
Rissag

Ali, so sorry you find yourself here. I too had a large tumor almost 6cm, I was in complete shock as I didn't have any symptoms but a little bleeding that started only a couple of weeks before my Pap smear.cervical cancer can be very emotional and lonely at times , just know you are not alone and plenty of us girls had to go through chemo and radiation treatment too and have finished and are doing good. Just be easy on yourself and take things day by day. If you ever have any questions feel free to ask.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
LaurieBeth

I did choose to tell my parents-they are in their mid 70s and self isolating, and they have begged to come to see me but I have told them no. They are going to have to watch my children the week of surgery so I told them their job was to stay inside to do that and our job was to stay well so my kida would not infect them. I know it has been horrible and hard for them but they also walked by me during my (very nasty) divorce so we are no strangers to hardship. I think it is like everyone has said. Do what makes life easiest for you. There is no rule book for handling this.

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor suggest hysterectomy

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Diagnosed with invasice cervical cancer, no clear margins

5/12/20Radical Hysterectomy, Lymph node dissection, ovarian transposition-Staged 1B1-no further treatment needed

Follow up 9/28/20

 

 

AliAliOkay

Thank you so much, everyone for your lovely, supportive messages.

It really helps having people to chat to here. X

17/4/20 GP referral following examination 

24/4/20 Colposcopy, biopsies

28/4/20 MRI

1/5/20 Told Grade 3 Squamous Cell tumour, stage 2b. Will have chemo and radiotherapy.

7/5/20 PET scan

14/5/20 Consultant appointment. PET scan showed lymph node involvement. Restaged 3c. Tumour is 5.2cm.

21/5/20 Radiotherapy planning appointment

8/6/20 Start chemorads

Jazza
Jazza's picture

I chose not to tell my Mum because she was in her mid-late eighties, living on her own and quite frail.  It wasn't too difficult as we lived some distance apart; all I told her was that having some gynae investigations when I needed to explain missing a few visits to see her. 

x

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: post menopausal vaginal bleed
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1  squamous  cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A
  • Apr/May 17: 6x chemo, 25x external radio, 2x brachy
  • May 20:  NED.  Various side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot
slicknic

I had very similar tumor size and staging as you. I am 1.5 years post treatment and still no recurrence! You've got this!!

More Information

Cervical cancer