There are no products in your shopping cart.
Hi everyone. I’m a 41-year-old mom of 4 from the US. In 2015 testing revealed HPV-18 but no abnormal cells on the smear. I did have occasional very light bleeding after sex, but not every time. I also started to occasionally spot between periods. It was so light, I just attributed it to getting older.
All good in 2016 as HPV-18 had cleared. In 2017, HPV-18 back so on to colposcopy and biopsy. All normal. Still have occasional, light bleeding after sex and occasional spotting between periods. Gyn says my cervix is “friable” and bleeds very easily.
Begin seeing gyn every 6 months for monitoring. All good but the HPV-18 has been there since 2017. I’ve had exocervical biopsies, an endocervical biopsy, and uterine biopsy. All normal. Present day. Still positive for HPV-18, so gyn says it’s time to do a LEEP to ensure we aren’t missing something higher up. First, had a colposcopy. This was the first time anything bad showed up - CIN1. I had the LEEP on 9/27/19. Diagnosis on 9/30/19: Endocervical Adenocarcinoma in situ extending to the resection margins. The report also said “No invasive malignancy.” Now I’m being referred to a gynonc for further workup and treatment. However, that appointment is not until October 15!
I’m very scared. Shouldn’t we be moving faster? Is it a sign they aren’t overly worried? I don’t know how to interpret my test results either. It says BOTH “AIS spread to margins” AND “no invasive malignancy.” How can they say not invasive if the margins aren’t clear?
I’m also terrified that the HPV has been testing positive for 3-4 years. My mind goes to dark places such as it may have been there all this time and now it will be too late to treat and I will die. I’m not even sure I understand my diagnosis of AIS.
Can anyone help a very scared girl answer some of these questions? Thanks in advance. It’s good to be among friends.