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Hi I'm new

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Trinityrose
Hi I'm new

I've 2 boys 2.5 year old and a 7 month old who I still breastfeed atm. I started getting issues after my second was born. Feeling lumps on my cervix, bleeding after sex.

Had 2 biopsies done last Thursday and came back today as squamous cell cancer grade 2. Im awaiting an MRI appointment .

I'm so scared, I keep looking at my boys and husband and think how will they manage and I won't be here to see my second sons first birthday.

I'm trying to be positive since its day 1 of finding out.

I need some friends who've been through this. x

Bagnall89

Hi trinity. 

I am new as well and just been diagnosed with 1b. 

I had my MRI yesterday and my treatment changed from op to chemoradiation. But the nurse was lovely and explained everything fully and I feel quite calm about it all now. 

I know it can be tough but you have to remain positive 🙂

December 2020 - smear test

6/01/21 - HPV positive and abnormal cell changes 

14/01/21 - colposcopy and LLETZ 

20/01/21- called back and told I had CC - likely hysterectomy - stage 1B 

26/01/21 - MRI - treatment changed to chemoradiation, as 2 dodgy looking lymph nodes. Awaiting further treatment. 

Bagnall89

Hi,

sorry to hear your news, that must be very worrying for you. 

im not much help as I'm around the same stage as you having had my MRI yesterday, and am awaiting chemoradiation treatment. But I will say try to stay positive, the nurse I've had has been lovely and has kept my spirits up. 

I have 2 children 8 and 10 also so I know it can be worrying. Try to find something to distract you. 

December 2020 - smear test

6/01/21 - HPV positive and abnormal cell changes 

14/01/21 - colposcopy and LLETZ 

20/01/21- called back and told I had CC - likely hysterectomy - stage 1B 

26/01/21 - MRI - treatment changed to chemoradiation, as 2 dodgy looking lymph nodes. Awaiting further treatment. 

EmmaBee

Hi, the best bit of advice I can give you is to take each day at a time and try not to read too much on google. It's a daunting feeling at first but you've done the right thing by getting checked out and you're now one step closer to getting better. 

Try to be positive, I have two young children myself and kept myself as busy as possible with them whilst I was waiting for tests, it helps take your mind off things. Best of luck with your MRI.

 

Emma xx 

5/6/20 Saw doctor due to abnormal bleeding after intercourse. 22/06/20 Gynaecology appointment, had loop biopsy. Thought it was cervical erosion due to having children and being on the pill.

7/7/20 Biopsy results confirmed Cervical Cancer. Stage 1B1. (Never missed a smear test or never had any abnormal results).

20/7/20 MRI scan.

16/09/20 Radical Hysterectomy & lymph node removal. 

09/10/20 Histology results. Stage 1B1 grade 1. Surgery successful, no further treatment needed. 3 month check ups. 

Trinityrose

Thanks Emma.

 

I'm trying to be positive, maybe in the next few days I'll be more accepting of the results and just put my big girl pants on and get on with it. I have to.... for my boys. X

EmmaBee

It'll take time to sink in, it's a massive shock for you and you naturally fear the worse. Just take each appointment one step at a time. There's so many inspirational stories on here, I've read so many that filled me with lots of hope. Make sure you have a strong support network around you, there's also plenty of people on here that you can talk to. 

Take care xx 

5/6/20 Saw doctor due to abnormal bleeding after intercourse. 22/06/20 Gynaecology appointment, had loop biopsy. Thought it was cervical erosion due to having children and being on the pill.

7/7/20 Biopsy results confirmed Cervical Cancer. Stage 1B1. (Never missed a smear test or never had any abnormal results).

20/7/20 MRI scan.

16/09/20 Radical Hysterectomy & lymph node removal. 

09/10/20 Histology results. Stage 1B1 grade 1. Surgery successful, no further treatment needed. 3 month check ups. 

Trinityrose

Its just so hard ladies, my pains have cranked up and its giving me pain in the front and tailbone area? Plus I feel like my kidneys are sore.  I've phoned the gyne and they might be getting me in to take swabs and maybe see if I've an infection..I guess.

 

I feel so emotionally drained and my 7 month old is obviously needing me but I'm so tired all the time. I'm trying to get him on formula so he isn't relying on me if I need to go into the hospital. 

 

I want/ need to be a happy and healthy mummy again. X

natbites

Hi Trinity Rose 

 

I also have two boys and I had Stage 3C2 Cericval Cancer in July last year and was terrified as I am a single mum too.    I had intensive radiotherapy, Chemo and Bracytherapy and 3 months after treatment finished I was told Monday that it has completely gone!   

I have to have check ups every 3 months to make sure everything still all tickety boo but it is highly treatable, highly curable and the treatement highly do'able and I did not lose my hair during chemo.  

Trying to stay positive is hard but you have two very exceptional reasons to stay positive like I did, my two boys 

Sending you positive vibes x

 

Natalie 

Teghog

This is lovely to hear as a 3C1 person. Thank you for sharing and congratulations xxx

Smear, no symptoms of anything wrong 08/10

Colposcopy and Lletz due to abnormal changes and HPV. Biopsy taken. 05/11

Confirmed CC with Adenocarcinoma 18/11

MRI, CT and PET scan 

10/12 Stage 3C1 due to lymph node involvement

28/12 Due to start treatment - chemorads and brachytherapy 

11/02

All done. MRI for brachytherapy shows no cancer visible in cervix and lymph nodes responding, yey! 

Teghog

Just to reiterate the same as the other ladies.

Waiting for MRI / scan results is the worst bit of the process and once you've got your treatment plan in place then it does get better and you have something to focus on. I remember the panic I felt when I was diagnosed thinking about my 2 year old but it does get easier when you realise it's curable and you will be in great hands.  

I'm just at the end of the chemo radiation with brachytherapy next and it's been very doable. I just rest during the day if I need to so I can spend quality time with my son when's he home from nursery so he's not even noticed xxx

Smear, no symptoms of anything wrong 08/10

Colposcopy and Lletz due to abnormal changes and HPV. Biopsy taken. 05/11

Confirmed CC with Adenocarcinoma 18/11

MRI, CT and PET scan 

10/12 Stage 3C1 due to lymph node involvement

28/12 Due to start treatment - chemorads and brachytherapy 

11/02

All done. MRI for brachytherapy shows no cancer visible in cervix and lymph nodes responding, yey! 

Trinityrose

Hey ladies,

Had to go back into hospital yesterday.

With the back pain from my kidneys and front and back passage pain and yellow discharge they wanted me to go in.

I was emotionally and mentally drained.

After getting BP, bloods and urine checked,everything came back perfect. Took swabs etc but if they said if I don't hear from them no news is good news. They gave me antibiotics in case i had a surface infection. She also had a feel and said its not got bigger so the pains im feeling are coming from the cervix and spanning out.

Had an ugly cry to the nice female doctor, she was lovely. She had a long talk about the cervix and nerves and explained that when you're on your period some women get diarrhea,that comes from your cervix getting sensitive and firing off which is what mines is doing. I said everytime I get a pain im thinking its the cancer shooting off and spreading everywhere. She said cervical cancer doesn't work that way, its very slow growing. She also said if the pains get worse to call GP and they can put me on dihydracodiene(sp?) As thats safe for breastfeeding. Im finding if im breastfeeding especially at night my pain cranks up because its contracting my cervix so I may have to stop breastfeeding altogether if it continues to get worse.

I've found out I've my MRI/ CT scan on the same day on the 10th Feb. Been told I can't breastfeed for 12 hours after the CT so I'm really concerned my baby won't take a bottle,I'm struggling to get a few mils down him. I've got 2 weeks to try I guess but I'm stressed he's refusing it atm. He'll drink formula off me but not his dad. This is going to be a long 2 weeks.

 

Thought I'd update you xx

Lydiasm

Hi Trinity,

I can't offer much advice as mine is only very early stage cancer, but I really do feel for you. The shock lasts a good few days, then the overthinking starts. Try to keep calm, they can do so much, even for more advanced stages. Yes you will need some sort of treatment but you will get through this.

For me it was a huge mortality check, I'd look at my two kids and for days I was stressing about how I'm not prepared in any way for a bad circumstance in the future. I've known now for 6 weeks and, dare I say it, I go for long periods during the day without even thinking about it which I never thought possible. If anything the children running you ragged will make sure your mind is kept busy.

You can do this, try and breathe, take it a day at a time. So many on here to help you x

Abnormal smear 11/11/20 wirh high grade severe cells. Called into hospital same day for LLETZ

6/12/20 MDT meeting confirmed 1a1 cancer found in biopsy 

30/12/20 first oncology appointment.

21/1/21 Second LLETZ Under GA

2/2/21 Biopsy results show no more residual cancer and no more CIN3, all clear margins. Follow up in 6 months! And breathe...

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Cervical cancer