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Lymph nodes scaring me!!!

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NATNAT8912
Lymph nodes scaring me!!!

Hey guys,

I hope everyone’s well regardless our circumstances.. I’ve been diagnosed with poorly differentiated squamous cell carcinoma. My tumour is 3.7cm x 3x1cm. (1b2)

My pet scan also showed metabolically active bilateral external iliac nodes and right common iliac nodes.
(Bump up to stage 3)

I’ve been scheduled to do chemoradio and brachy after my IVF treatment.

I’ve been viewing my diagnosis as positively I can but the lymph nodes is starting to scare the hell out of me. I’m looking for advice and perhaps anyone who’s gone through similar diagnosis.

Any positive stories would be great.

❤️ thanks in advance

Sept 2019: cc confirmed, 3.7 cm tumour + 2 lymph nodes squamous cell grade 3, stage 3C (due to lymph nodes, Tumour size, 1B2) Oct 2019: IVF 2 embryos frozen October 2019: Treatment starts: 30 Rads, 5 Chemo, 4 Brachy
Rissag

Hi nat, how’s your Ivf going? I’m doing pretty good after treatment. My bladder gets irritated sometimes I think it’s my urethra, I had a lymph node removal surgery before treatment and they did a bladder biopsy. So I usually just take a day or 2 break from the dilators, which I feel irritates it and then it calms down. The hot flashes from menopause are kinda bugging me right now but dr wants to wait a little before putting me on meds. The more time that goes past it just seems like it was a bad dream.the lymph node involvement scares me as well but I try not to focus on that part and hope it got all cleared out. Hope your doing ok if u ever have any questions feel free to ask :-)

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
NATNAT8912

Hi Rissag,

 

thank you for this! It calmed me down a lot. I did spend a night online reading about lymph’s and that’s how this panic post came alive, i feel this diagnosis really teaches me how to try to stay calm in the storm. Which maybe isn’t so bad after all :).

im so happy to hear that you’re doing good after treatment ❤️

 I’m currently trying to getting into the habit of drinking 3L of water a day so that I’ll continue to do so throughout the treatment (I start Oct 22 if not IVF wants more days, my Dr was ok with that).

 

IVF is going okay, I have an amazing ivf Dr who’s transparent with me (I prefer it that way) and he says it’s a wild shot. (50:50) we get something out of it. I’m currently doing menopur injections in my thigh, so far I think I’m responding to it well. I’ve kind of come to terms with the facts that it’s okay if we can’t get any embryos, as long as my mind is at rest and I know I’ve done my best.  How are you coping with this bit?

 

I really liked the bad dream part. I can’t wait for this to be a bad dream ❤️

 

Best nat

 

 

Sept 2019: cc confirmed, 3.7 cm tumour + 2 lymph nodes squamous cell grade 3, stage 3C (due to lymph nodes, Tumour size, 1B2) Oct 2019: IVF 2 embryos frozen October 2019: Treatment starts: 30 Rads, 5 Chemo, 4 Brachy
Memagh

Hi Natnat,

Sorry you find yourself here with the rest of us but there really is an amazing bunch of ladies on this site always willing to help. I can't give you a lovely positive story (yet) but I don't have a negative one either. I was diagnosed same as you with 1b2 but my tumour was much larger. The MDT team were concerned about lymph node involvement so I had a pet scan which highlighted 2 external iliac lymph nodes very local to the tumour. I asked how this changed my staging and I was told my stage is the same just changes to 1b2n2 (2 lymph nodes involved). I don't know if this is because it is still contained within the pelvis. My treatment plan is 5 chemo, 25 radio and brachytherapy. I have completed 2 chemo and 7 radio. Like you I am concerned about lymph node involvement. My oncologist told me they will do extended field radiation to deal with not only the two lymph nodes involved but the whole chain of lymph nodes in case there is any microscopic disease left. This does make me feel more confident that they are covering everything to try and get the most positive results and lessen the chance of recurrence. I'm definitely no expert but please feel free to message me if you have any questions and I'll help if I can. We can do this!

xx Maria

Diagnosed CC 01st August 2019 Stage 1b2 with 1 local lymph node involved. Something else showed up on pet scan. Treatment delayed for surgery, done on September 9th. Found to be a simple ovarian cyst, 1 ovary and tube removed. Treatment plan 5 chemo, 25 radio and 4 brachy. Treatment start date 02nd October 2019. Treatment end date 8th November.
NATNAT8912

Hey Maria!

i hope you’re well! Thank you for this. It really helped me a lot!

we’re almost the same, and I’m about to start my treatment next week. Did your radiotherapy tattoo end just below your breast? Because that’s we’re they put the tattoo on me :) 

i was told mine was local too, but when I asked about stage 3, they said it’s a new staging from this year and I shouldn’t be caught up about that (very easy to say lol). 

I havent really been speaking with my oncologist for 2 weeks (I’m being send to loads of pre scans and doing IVF). and I think the panic monster took over a bit when googling a tad too much.  I have a catch-up with them on Tuesday so will be asking questions then :). 

How are you feeling during your treatment? 

 

Best 

Nat

 

 

Sept 2019: cc confirmed, 3.7 cm tumour + 2 lymph nodes squamous cell grade 3, stage 3C (due to lymph nodes, Tumour size, 1B2) Oct 2019: IVF 2 embryos frozen October 2019: Treatment starts: 30 Rads, 5 Chemo, 4 Brachy
Rissag

Oh and try not to read online about lymph node involvement, I lost so many tears and sleep from doing that, it’s just not worth it. I remember I read a couple of good stories on here though that helped me get through it .

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
NATNAT8912

This is facts... yet, with a bit too much time on my hands that’s all I wanna do! Need to keep myself occupied:) 

Sept 2019: cc confirmed, 3.7 cm tumour + 2 lymph nodes squamous cell grade 3, stage 3C (due to lymph nodes, Tumour size, 1B2) Oct 2019: IVF 2 embryos frozen October 2019: Treatment starts: 30 Rads, 5 Chemo, 4 Brachy
Petesdragon
Petesdragon's picture

5 lymph nodes involved...very aggressive tumour....22 years ago!! Still here :)

Karen x 

    • Stage 3 Glassy cell adenocarcinoma  1997 (negative smear tests).

Treated with Wertheim's hysterectomy, chemorads.

October 2017- new squamous cell vaginal tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 18 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. 2 down and 2 to go!

June 2018. CT scan shows 2 new pulmonary nodules.  

CT Scan Jan 2019. Nodules gone. No evidence of disease. 

NATNAT8912

Thank you Karen! 

That means the world to me right now. 

<3 

Sept 2019: cc confirmed, 3.7 cm tumour + 2 lymph nodes squamous cell grade 3, stage 3C (due to lymph nodes, Tumour size, 1B2) Oct 2019: IVF 2 embryos frozen October 2019: Treatment starts: 30 Rads, 5 Chemo, 4 Brachy
Rissag

I have my days with the loss of fertility thing, I think sometimes I forget because I’ll catch myself saying “oh when I have a kid” then I remember and get sad, so that part is pretty rough. My tattoo was right under my breast too, but my dr said that was just to line up the lasers that my actual treatment area was only a little bit above my belly button. Mine was pelvic lymph node involvement, on my scan I had a shadow in my paraaorta so that’s why they did the lymph node removal surgery but thankfully the ones he took out from there were clear, he said had one been positive my treatment field would have gotten extended a lot more.i asked why I got leap frogged to stage 3 that I read some people stage stays the same but they just add lymph node involvement.im from the United States and he said that’s just how they do things over here , so that part gets kind of confusing. And I get why you get scared because I got scared too at the words stage 3 , but my doctor says stage 3 is still very curable so I just try to hold on to that .but I do feel like lymph node involvement adds a lot more stress to people.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
NATNAT8912

I can relate to that honestly, the first thing that came to my head when I got diagnosed was not even “will I survive the cancer” it was more : “will I be able to have kids?”

i was even thinking about becoming pregnant now (before treatment) to prolong my treatment dates so I could atleast have one. Then rational thinking comes back and I understand that fertility is a heavy price we need to pay to get better. 

i even told my boyfriend that it’s ok if he wants to leave me because I’m now incapable of carrying babies, But the way he looked at me when I said that was proof enough that thoughts like that are just in my head and we can get kids in different ways (as he sais, don’t worry babe we go get some when we want them later). 

Surrogacy is legal in the states which is great for you! I’m in London so I’m looking at clinics abroad even if we fail to harvest any of my eggs, we can still use my partners sperm and an egg donor in the future (I’m 29 I don’t want them until a couple of years time anyways) or adopting ❤️Is that something you looked into? 

I know the price tag is crazy(!) but I’m thinking if I really want them i can create a fund and start saving for it now and maybe in 5 years time I’ll be somewhat ready for it.

I don’t know why but my gut tells me I’ll be just fine. I need to trust that gut and let go of lymph thoughts because truth is, if it wasn’t for me lymph’s I would be able to have a TR/HR  so I need to trust that the cemorads will do it’s job. And it’s so comforting hearing that you’re doing fine after treatment, I read about so many catching lymphodema or other severe side effects. 

So thank you for existing and being ahead of time of me. I hope you had someone ahead of time of you who supported you. 

I wonder why they haven’t scheduled a surgery to remove my nodes, I read that a lot here. I will ask them tomorrow as well about where my treatment will finish ❤️

 

Sept 2019: cc confirmed, 3.7 cm tumour + 2 lymph nodes squamous cell grade 3, stage 3C (due to lymph nodes, Tumour size, 1B2) Oct 2019: IVF 2 embryos frozen October 2019: Treatment starts: 30 Rads, 5 Chemo, 4 Brachy
Rissag

 I don’t think everyone has a lymph node removal surgery, they did one on me because of the shadow in my paraaorta.so they wanted to make sure that area was clear otherwise my treatment would have been a lot more extensive. I wish there hadn’t been a shadow in that area and I had skipped that surgery though, because I had to wait a couple of weeks to heal then start treatment  and I have scars on my stomach ,and my sides still feel a little sore where they removed lymph nodes from my sides.for some reason my left foot tends to feel sore sometimes and get red and on rare occasions swell a little after that surgery. Sometimes I get a little nervous of getting lymphodema in it , so I just try to monitor it.i haven’t really looked into surrogacy or adoption yet , i feel like I needed to give my mind a break and just focus on my scan and getting the all clear.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
Memagh

Typed out a big long message and for some reason it kept coming up as error and wouldn't let me send.  Yes tattoo in same place as yours. My first tattoo. Had a few teething problems with treatment in the beginning. Veins disappeared at the mention of chemo so had to have a picc line fitted and couldn't manage to get my bladder to the right level for radiotherapy but nothing major and it's been much better this week. You are given steroids on chemo day and for three days after (I think our treatment might be similar). I am having lots of good days and two low days just before I go back on the steroids. Chemo day today so boosted with the steroids and all is fine with the world again.  3/5 chemo done and 11/25 radio done and thankfully nothing awful yet. Bowel and bladder irritation is meant to get worst the further along you get into treatment but will deal with that as and when. Hope your doing ok. It's hard in the beginning. X Maria

Diagnosed CC 01st August 2019 Stage 1b2 with 1 local lymph node involved. Something else showed up on pet scan. Treatment delayed for surgery, done on September 9th. Found to be a simple ovarian cyst, 1 ovary and tube removed. Treatment plan 5 chemo, 25 radio and 4 brachy. Treatment start date 02nd October 2019. Treatment end date 8th November.
Rissag

Hi Maria, I remember you from another post. I’m glad to see your halfway through, that’s great! I hope u weren’t to sore from your ovary surgery. My veins hated chemo too, I would always use hand warmers on them before chemo, it worked wonders. I hated the whole bladder thing as well, I know sometimes it could get stressful having to get it just right before treatment. Glad you’re doing ok:-)

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
Memagh

Hi Rissage, 

Only just seeing this message now. It's a pity you don't get notifications of new messages. I'm down to my last two radio which will be Monday and Tuesday, yeah but then I check into hospital on Tuesday late afternoon for brachy. My treatment is the exact same as yours. As you are finished your treatment for a little while now, can I ask if 8 weeks sounds ok to return to work. I work at a school and would really like to return for the start of the new term. Just hoping I don't have any major problems with bowel and bladder issues. I hope you're doing ok and wishing you a really positive outcome for your upcoming scan. Let us know how you get on.

x Maria

Diagnosed CC 01st August 2019 Stage 1b2 with 1 local lymph node involved. Something else showed up on pet scan. Treatment delayed for surgery, done on September 9th. Found to be a simple ovarian cyst, 1 ovary and tube removed. Treatment plan 5 chemo, 25 radio and 4 brachy. Treatment start date 02nd October 2019. Treatment end date 8th November.
NATNAT8912

Hey Rissag and Maria! 

i wrote a long post but it got deleted too lol :)

thank you for your replies it's nice to hear that both of you has been doing great. My oncologist is lovely, but slightly distant, I feel like she keeps a lot to herself when I ask for details, which is okay I guess, she takes one thing at the time and if I have chemo questions her answer is: well take it just before you start chemo etc. I find it slightly frustrating since I'm extremely solution orientated and like to understand the issue so we can find the solution. With her it's like vague guidelines... oh well. Rissag: my treatment will also go just above my bellobitton she said, it's just to determine the laser something the tattoo dot. 
maria: sorry to hear this is your first tattoo, but it's quite cute it looks like a little freckle :). 

ivf is seriously rough, i'm really complaining now I know. I'm grateful that I got the opportunity to do it before treatment but wow, I'm constantly constipated, with extreme abdominal pain. I have pain in my joints,  abdominal pain, back pain, I'm dizzy, nausea and tired. 

I think it's worse since I'm constantly wondering if it's the cancer that's spread or the IVF side effects.. my last scan is tomorrow and if everything goes as planned we are having the harvest egg op, on Monday, and then my oncologist decided to post pone my treatment with a couple of days, so I'll finally get to start! 

maria: steroids sounds lovely haha, 3 good days are cool! 
is a Picc something that everyone gets and do

you keep it on for when you're at home? 

Xxx

nat 

Sept 2019: cc confirmed, 3.7 cm tumour + 2 lymph nodes squamous cell grade 3, stage 3C (due to lymph nodes, Tumour size, 1B2) Oct 2019: IVF 2 embryos frozen October 2019: Treatment starts: 30 Rads, 5 Chemo, 4 Brachy
Rissag

Nat

   Im sure your symptoms are probably Ivf related, so try not to worry. I didn’t really have any symptoms with that , but i think it was because I didn’t really have any eggs. I think the more eggs you have the more your ovaries expand and give more symptoms, so hopefully that’s good news. I hope your surgery goes great tomorrow and that their able to get many eggs.( fingers crossed) 

 

a picc line is optional , it’s a little plastic tube they put in your arm to access a vein to make it easier for chemo and blood draws. It stays there through out treatment. I thought about getting it halfway through my treatment because they were having trouble with my veins and it would take them multiple attempts to get my chemo line set up.but I never had any trouble with my blood draws, maybe different needles idk. I decided against it though because I was halfway through and because I have a little dog that likes to jump all over me , so I was nervous she would accidentally irritate it or get dog hair on it lol.i then got hand warmers from a sporting goods store and would place them in my Hands and rub them on my arm veins And put mittens on and wear warm clothes and only remove the warmers until they were ready to access a vein. I think it just gets so cold in Chemo rooms and veins just don’t like it, after that I never had a problem and stuck with that routine for the remaining chemo sessions. But the picc is something to think about.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
NATNAT8912

Hey Rissag!

 

thanks for the explanation, I really appreciate it and I think I'll opt for a picc line: I got antibiotics and anastrtics from my hand vein yesterday at the egg harvest day and it was hurtful and troubling. I think I'll opt for the pic line tbh. 

we got 2 embryos in total that's now in the freezer. I don't know what that realistically even means so I'm gonna put the kid-thoughts in the freezer as well for a couple of years until I can deal with it emotionally. I'm glad I've done it but it's time to put a lock on it so I can focus on treatment. 

how are you feeling since it's close to November? My fingers are crossed for you! And are you working? Did you work before?

 

best 

Nat 

Sept 2019: cc confirmed, 3.7 cm tumour + 2 lymph nodes squamous cell grade 3, stage 3C (due to lymph nodes, Tumour size, 1B2) Oct 2019: IVF 2 embryos frozen October 2019: Treatment starts: 30 Rads, 5 Chemo, 4 Brachy
Rissag

Yeah I think the pic line would be a good idea, just make sure to tell your doctor so that way you’ll have it for your first chemo.2 embryos is good, do you know how many eggs they got out? I got 2 eggs  so I think my chances of creating a embryo are slim to none.it was worth a try though, I think I would have regretted not giving it a shot.my scans in two weeks and my results are a week after that,I’m getting a little nervous and anxious .i had a pretty big tumor, but the thing that scares me the most is if I’ll still have swollen lymph nodes and something scary going on with that.no im not working, probably going to take a break for awhile then start looking. I was off for a little before my Pap ,then decided to get everything taken care of eye exam, dentist and my Pap before I got a new job. But that’s when I got the bad news of my abnormal pap , that was January. It’s been a long year stressful year for me but I hope I get good news so I can move on and try to put this craziness behind me.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
NATNAT8912

Hey Rissag,

 

I got 4 eggs out: 2 immature and 2 "good quality",

they binned my immature ones and only went for my 2 "good ones" for fertilisation and both became embryos so I wouldn't say you're chances are slim to none :). 

Yea I'm not working either, crazy year it has been indeed. 
You're in my prayers and I'm sure you're scan is going to be fine! I feel like you would have the cancer symptoms back if that wasn't the case!

 

Sept 2019: cc confirmed, 3.7 cm tumour + 2 lymph nodes squamous cell grade 3, stage 3C (due to lymph nodes, Tumour size, 1B2) Oct 2019: IVF 2 embryos frozen October 2019: Treatment starts: 30 Rads, 5 Chemo, 4 Brachy
Rissag

Oh thank you nat , this gives me a little hope now, I had 3 eggs come out and 2 were good so they froze those. I never had any cancer symptoms before, that’s why it was such a shock to me at how big and bad my cancer was. I had just barely started to have some abnormal spotting right before my Pap but not for that long.and no pain aches or hurtful periods nothing. Now I have dull lower back aches and stiff hips when I get up, I think from radiation and my menopause symptoms. But maybe they will get better with some HRT. My doctor didn’t want to do anything right away and give my body a break, and they were hoping  that my ovaries weren’t going to get affected by the radiation because I had ovary retransposition when they did my lymph nodes surgery. But I think since I had to have extended field they still got affected, they were hoping maybe my symptoms were just treatment related and would fade,but the symptoms have just got worse so I’m sure it’s menopause.my dr will have to figure out what to do with me now with the hrt. I’m not to really sure when, but I hope it’s soon because my hot flashes at night are annoying me lol.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
NATNAT8912

I'm happy you got happier with the egg news! I think you got a chance whenever you're ready to pick it up again. 
your side effects doesn't sound "horrible" if that make sense? I'm praying for the same outcome! And there's probably a reason for your doctor to hesitate, so stick it out as much as you can ❤️ I know it's easier said than done but what if they survived, atleast you can say you done everything you could. 

I had my first treatment today!!! 1 down 24 to go, lol. And my first chemo will be tomorrow. Radiotherapy scheduled for 8 am and then chemo for 9am (I haven't been up at 6,30 since I stopped working 1.5 month ago lol). 

it might sound strange but I'm really exited about starting since I known about it for so long and it finally feels like we're curing it. The radiotherapy lady said I don't need to be fussy about lotion because the rarely see the skin getting rashes but I'm gonna be religious about it anyway. That and water. 

 

Fingers cross we both got what's next for us!!

Sept 2019: cc confirmed, 3.7 cm tumour + 2 lymph nodes squamous cell grade 3, stage 3C (due to lymph nodes, Tumour size, 1B2) Oct 2019: IVF 2 embryos frozen October 2019: Treatment starts: 30 Rads, 5 Chemo, 4 Brachy
Rissag

Yay 1 down, before you know it you’ll be done with treatment.

did you end up getting a picc line?

thats good that u don’t have to do your radiation treatment during chemo, I had to do it twice and it was hassle having to roll my chemo cart down to radiation and lay down with all the tubes still connected to me .once,my chemo bag emptied right after I started a session, so it was just beeping through my radiation session, it was annoying lol.

 

yeah my side effects aren’t too bad, I think if I didn’t have the whole bladder urethra irritation I would be just fine with the other side effects. But I feel like that one annoys me the most, it seems to get irritated more on my days when I use the dilators.im gonna have to talk to my doctor about it.

 

i didn’t use any lotions or cream during my whole treatment and nothing happened till my last external radiation day, my butt crack got burned lol.about 3 weeks into my external radiation my pubic hair up top started falling out. I would use it just to be safe , but wash it off before each session because I don’t think you’re supposed to have anything on your skin during your session.

i hope your chemo goes smoothly tomorrow and your not too sleepy from waking up early lol

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
NATNAT8912

Oh Rissag, you we're so right. There I was 8am in the morning smalltalking to my radiotherapy nurses and mentioned that I had chemo at 9, they send me directly to chemo telling g me I should come back in the afternoon, because chemo works as a booster to the radiotherapy, I had to bring my thingy with me, it sounded like it has an asthma attack when it wasn't beeping lol, I did think of you when I stated to beep haha.

 

chemo was actually not as horrible as I'd imagine it to be, the stereods was doing its job anyway so that was good :). I didn't go for the picc line because they did put the needle in my arm, not my hand and that was kind of bearable. 
4 radiotherapy done, 1 chemo done. 
21 radiotherapy left, 4 chemo left. 

im so happy I can finally count down ❤️ 
ive written this post 3 times and got error while sending it so sorry if I forgot anything. 

Sept 2019: cc confirmed, 3.7 cm tumour + 2 lymph nodes squamous cell grade 3, stage 3C (due to lymph nodes, Tumour size, 1B2) Oct 2019: IVF 2 embryos frozen October 2019: Treatment starts: 30 Rads, 5 Chemo, 4 Brachy
NATNAT8912

I'm happy for you that you didn't experience any side effect. I just had. Dull period cramp and abnormal discharge, which made me go test it, so happy I did. 

yea I totally get the uthera, hopefully your doctor will have a solution for you. 
I'm trying not to think of the diallators that

much they really scare me to be honest, ❤️❤️

Sept 2019: cc confirmed, 3.7 cm tumour + 2 lymph nodes squamous cell grade 3, stage 3C (due to lymph nodes, Tumour size, 1B2) Oct 2019: IVF 2 embryos frozen October 2019: Treatment starts: 30 Rads, 5 Chemo, 4 Brachy
Rissag

Wow 4 down that’s great news! oh the dreaded beeping of the chemo cart , I use to hate when I would have to go to the bathroom and just move my arm a certain way and it would just go off beeping lol

was there anything wrong, did u have a minor infection?

im glad your chemo went smoothly, and yeah try not think about the dilators or brachytherapy yet , you still got a ways to go.although brachytherapy isn’t as scary as it seems, uncomfortable a little but not as bad as we build up in our minds to be.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
Memagh

Hi Rissage and NatNat,

So happy to see you girls doing ok and that they managed to freeze some good eggs for you. Only just replying as didn't see any of these messages. NatNat glad you've now started your journey to recovery. Mentally it feels good to tick off the days. The picc line for me was really something I didn't want but have to say it has made it very easy on chemo days. Just attach and go. Two other ladies I met had asked for a picc line but they told them it had to be a clinical decision. I suppose they really don't want to carry out any unnecessary procedures. And yes, I won't miss the beeping of that chemo cart and them yellow bags. Chat to you girls soon.

x Maria

Diagnosed CC 01st August 2019 Stage 1b2 with 1 local lymph node involved. Something else showed up on pet scan. Treatment delayed for surgery, done on September 9th. Found to be a simple ovarian cyst, 1 ovary and tube removed. Treatment plan 5 chemo, 25 radio and 4 brachy. Treatment start date 02nd October 2019. Treatment end date 8th November.
Rissag

Maria,

i think in 8 weeks u should be ok, just trust your body. I’m getting so nervous for my upcoming scan.i did the laparoscopic 5 slit lymph node removal surgery before treatment and some parts of my stomach still have sore spots and I can feel little tiny balls of scar tissue next to some of the slits. I’m just scared I’m going to still have swelling inside thats going to make it harder to tell what’s going on in there.on my mri before brachytherapy it said I had some fluid buildup by lymph nodes  and a large cyst.my doctor said the fluid was probably from my surgery and the cyst could be one of my ovaries that fell, but hard to tell on the mri. In the beginning I had a ultrasound and it had showed I had a ovarian cyst but my doctor didn’t take it off during my surgery, he said it didn’t light up on the scans so that was the least of my worries, he can be a jerk. My surgery was only supposed to be 2 hours long but it turned into 5 hours . My left foot acts up a little after that surgery,it gets red and sore and on some occasions gets a little swollen.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
Memagh

Hi Rissage, 

I think we're going to be anxious for a while about what's going on in our bodies. We'll have to try and figure out our new normal whatever that might be. It must be a worry coming up to your appointment but this treatment we have gone through does have very good results. I know what you mean about the lumps and bumps. After two bad c sections and then this surgery I don't know how they figure out scar tissue from other stuff. 
Keeping everything crossed that your appointment goes well. Make sure you let us know how it goes. 
x Maria

Diagnosed CC 01st August 2019 Stage 1b2 with 1 local lymph node involved. Something else showed up on pet scan. Treatment delayed for surgery, done on September 9th. Found to be a simple ovarian cyst, 1 ovary and tube removed. Treatment plan 5 chemo, 25 radio and 4 brachy. Treatment start date 02nd October 2019. Treatment end date 8th November.
Rissag

Thank you Maria,Yeah I think after my scan and my follow ups it will get a little easier. i hope everything goes well for your brachytherapy tomorrow, let me know how it goes. 

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
NATNAT8912

Good luck on your scan today Rissag!! I'm thinking if you!!

Sept 2019: cc confirmed, 3.7 cm tumour + 2 lymph nodes squamous cell grade 3, stage 3C (due to lymph nodes, Tumour size, 1B2) Oct 2019: IVF 2 embryos frozen October 2019: Treatment starts: 30 Rads, 5 Chemo, 4 Brachy
Izzzy76

Your first scan today? Hope all is well, fingers and toes crossed for you Rissag ❤️

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Rissag

Thank you guys, my scan is on Thursday though if my insurance hurry’s up and process’ It.(gettin pretty nervous and anxious)

i think Maria( memagh) was starting brachytherapy today.

how are you doing Izzy now that treatment is over?

how are you doing so far nat? Hope everything is going good 

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
Izzzy76

It’s kind of a twighlight zone, as if nothing happend, really weird. Physically just fine, a bit tired but other then that just find. Mentally in a strange place though. 

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Rissag

Yeah I think for my surgery and treatment and follow ups I was so go go that I didn't really have time for things.now that I've had a little break from that it's been nice but also a little weird because I had time to reflect on everything I went through and it just seems kinda crazy, sometimes I think like did all that really happen .

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
NATNAT8912

Twilight zone sounds like heaven to me right now lol thinking back of this as a memory is all I want atm lol. 

sorry to confuse the days! Maria I hope you have a smooth experience through Brachy ❤️ I'm thinking of you

rissag, I have run in to complications sadly, due to

my lymph's being treated my radiotherapy area is large, meaning I got nausea from hell, my inability to keep food down week 1 lead to weak blood cells so I'm having a blood transfusion tomorrow and I've changed my anti sickness pills to way stronger. so hopefully we're on a smother path from now. Almost done week 2 ❤️

Rissag best of luck for tomorrow I'm thinking of you!!!

Sept 2019: cc confirmed, 3.7 cm tumour + 2 lymph nodes squamous cell grade 3, stage 3C (due to lymph nodes, Tumour size, 1B2) Oct 2019: IVF 2 embryos frozen October 2019: Treatment starts: 30 Rads, 5 Chemo, 4 Brachy
Izzzy76

Ahw natnat sorry you are feeling crap. I had the extrnded field radiation too and was advised to take Zofran an hour before each radio treatment in cass of nausea. Luckily I didn’t need it, I never felt nauseous during my treatment. 

 

I was given steroïds ( dexamethason) in my chemo IV and was given emend for the day of chemo and the two days after. I also took two Zofran ( ondansetron) a day for three days after chemo and 6 metacloperamide ( primperan) a day for three days after chemo. This mix really helped me , I never felt sick. 

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Rissag

Oh nat I’m so sorry.I had extended field too, luckily i didn’t have any vomiting episodes either.on certain days after chemo I was sensitive to my boyfriends driving lol and certain smells , but I would just suck on some ginger candies and be fine.thats good there adjusting your meds because that’s definitely something you don’t want to deal with especially so early on.i did the dexamethazon and ondanestron too, day of chemo thru iv and then 3 days after. Don’t worry one day this will be just a memory for u too. I know some days during treatment,especially when ur having a bad day it seems like it will never end, but it does. You can do this! Only 3 weeks more. And thank you for the well wishes, I’ll let u guys know how it goes.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
Rissag

So I got the scan over with, now it's just the waiting game, I guess about a week or so. I feel relieved it's over with, i went out to breakfast after and to the mall and visited with some family. I had a really good day after my scan, sometimes I feel a little nervous to be too happy until I get my results, I feel like I don't want the rug to be pulled out from underneath me . It's such a weird feeling, I sure hope everything turns out ok.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
Rissag

Nat are u feeling better? Did the nausea improve?

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
NATNAT8912

Hey Rissag, 

So sorry for not updating but everything is much better. i've just finished my third chemo and with the new meds and my blood transfusion its getting easier to handle. i'm terrified to go back to that weak space so im constantly drinking water/eating and taking my meds. 

I'm  happy to hear your scan day was good! and im thinking of you guys often to keep me in the loop how things go, it's just everytime i try to post Jo's give me an error message, which is kind of draining because you endup re-writing what you just wrote lol drives me crazy. 

is your results back as of yet? 

Sept 2019: cc confirmed, 3.7 cm tumour + 2 lymph nodes squamous cell grade 3, stage 3C (due to lymph nodes, Tumour size, 1B2) Oct 2019: IVF 2 embryos frozen October 2019: Treatment starts: 30 Rads, 5 Chemo, 4 Brachy
Rissag

Nat, great to hear your feeling better. I can't believe you're already done with chemo #3 , time flies before u know it ur gonna be finished:-). I was so nervous this week but I seen my radiation dr today and he said my scan came back good, no cancer and no evidence of disease and no swollen lymph nodes. Now I just see my gynecologist oncologist next week for a pelvic exam and my chemo dr for lab work.i have a 3 month break than another mri and pelvic exam, I guess for the first 2 years they want to do a mri scan every 3 months, so that kind of made me a little sad. I hate mri's and it just made me feel a little sad in a time where I should be really happy. I'm just gonna have to get used to it I guess.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
Izzzy76

Marissa that is wonderful news! I do completely understand your feelings regarding the three month scanning. I guess it’s like a mourning proces , the fancy that this is our new life from now on.

Nat you are doing a wonderful job! Hang in there ❤️

 

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Rissag

Izzy thank you, yeah I guess it's our  new normal . Hope you're doing great, in no time it will be your scan time and I'll be wishing you the best!

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
Izzzy76

I have my first fysical checkup due in two weeks, and already dreading it.I did start using my lovely dilators and nk problems at all, it feels like it always felt like. Wich was kinda weird, I expected Some pain or tension but nothing af all. As if nothing ever happened. 

Now having sex is another problem ( sorry to be Blunt) but having sex scares the bejeebees out of me. I hope that fear ( I am already in counseling) Will fade in the future 

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Rissag

Izzy that's wonderful news that it feels normal, mine feels so dry I have to use tons of lube and it still feels uncomfortable. I have a pelvic exam next week, a little nervous for that. I had a pelvic exam 2 1/2 weeks after brachytherapy ended and surprisingly it didn't hurt, so hopefully this will be the same. I have not attempted to have sex either, my doctors said I should but I have no sex drive and nervous how it will feel,especially since I get irritated from just using the dilators.im on the level 2 dilator they showed me a level 3 but it looked huge and I'm sure it would have irritated me.

  • 01/22/2019 abnormal pap results 
  • 04/04/2019 colposcopy/ punch biopsy 
  • 04/15/2019 diagnosed with squamous cell carcinoma stage 1b2 6cm tumor 
  • 5/10/2019 egg retrieval surgery. 2 eggs retrieved and frozen 5/23/2019. 5 slit laparoscopic lymph node removal surgery and ovary transposition. 1pelvic lymph node involvement, bumped up to stage 3
  • 6/19/2019 started radiation and chemo
  • 8/5/2019 4 brachytherapy. Finished cancer treatment 25 radiation 5 chemo and 4 brachytherapy,Awaiting scan in November 
Pet scan results NED 11/13/19
Izzzy76

I have no sex drive either. Could be menopauze or hormonal issues due to me having had a baby 8 months ago and having to ween her of of breastfeeding when ai was diagnosed.

luckily my husband is very mindfull and he’s not even making moves. They did offer a sex therapist at the hospital and we’ll definetly make use of that offer since we are too young to not have a sex life. 

 

I’ve entered a study for this as well since I think there is way too little information and counseling regarding sex after gyneacological cancer 

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019

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Cervical cancer