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New diagnosed Stage 1A2

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Kirstylou73.
New diagnosed Stage 1A2

hello 

here is my story 

November 2020 smear showing high risk HPV and borderline cell changes

December 2020 punch biopsies results came back with suspicious microscopic cells 

January 2021 Large Loop Excision 

March 2021 I met with my consultant and was told my results were Stage 1A2 Cervical Cancer, I kind of knew this was going to be the outcome but still it was a shock actually hearing it out loud, but actually having a diagnosis has made me feel better. The worrying & sleepless nights i have been through since I got the smear results letter in November has made me ill, not the cancer, the worrying. I am now waiting for my MRI to see if it’s spread but my consultant is hopeful she removed it all with the Lletz procedure. To get my head round this I am thinking, I had cancer, it got removed, the mri is a way of double checking. My case will get discussed at an MDT meeting next week, I have asked if I can have a hysterectomy, I’m 48 I don’t need those bits anymore. I’m scared I won’t lie, but I consider myself one of the lucky ones to get it caught so early. Xx

libby123

Hi I just wanted to wish you well and say i can relate to your worry. I was similar to you, diagnosed 1a1 but had already been removed by lletz. Terrifying being told you had cancer but good it was caught so early and removed. I also had an mri for reassurance and then a cone biopsy to ensure a good clear margin. That was all back in January 2015 and I just got my recent smear result, negative so back again in 12 months. Try and focus on the fact its been caught early and removed, i was ill with the worry, not sleeping or eating, so scared but its very easily treated when caught at such an early stage x

Dreamland

I am in this position too. Just been diagnosed with stage 1a1 cancer which looks like it's been removed by lletz. I'm waiting for an MRI to check but the consultant felt this was only a precautionary measure. Still worrying though. I feel lucky to have caught it so early but the cancer diagnosis is a shock. My margins weren't completely clear of CIN which is a bit of a worry although the consultant said this is not unusual and as the cancer was clear of the margins it's not necessarily a problem. Just needs to be watched.

Glad to hear yours seems to be resolved now Libby.

Glad to hear yours was caught early Kirsty Lou. I hope everything goes well for you over the next few months/ years with all the extra checks.

Xx

 

 

 

Jazza
Jazza's picture

Hi ladies

Hope it's OK for me to come in on this thread; my own experience is very different (see my back story) but I am quite moved by the above posts.   I'm not sure what the numbers are but I reckon there must be many thousands of women in the UK who have had a similar experience to you ladies, most of who are spared getting invasive cervical cancer and all that entails.  I understand that a diagnosis even of a very small non-invasive cancer is traumatic and comes with a heap of concerns and what ifs, but even so how great is it that a cancer can be stopped in it's tracks in this way. 

I have done a lot of awareness raising about the importance of smear tests since my diagnosis and it's stories like yours that help keep me motivated to carry on doing that.

Hope everything works out well for you all.

x

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: PMB
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1 (1B2 on new FIGO) squamous cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A1 (2A1 on new FIGO)
  • Apr/May 17: 6 chemo, 25 external radio, 2 brachy
  • May 20:  NED.  Side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot

More Information

Cervical cancer