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Paraortic Lympnode involvement

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Base2019
Paraortic Lympnode involvement

Hi guys 

its me again :( I'm sitting up on my phone at 3am looking up about the paraortic lymnode involvement and can't sleep. 

I have recently been diagnosed which you will see from my previous posts. My treatment plan changed last minute due to my PET scan. They said there are some nodes very high up in my stomach, they said some of them are over a centimetre. They said they are still aiming to treat this as curative but I am so very scared :( every post I seem to read about this node is bad news and not a good prognosis:( 

does anyone have any success stories from this type of CC? I am going out of my mind :( i am 31 and am petrified of this xxx

Philleepa

Hi lovely. 

I have no idea whether my parasitic node was involved but I did have positive lymph node involvement and my consultant pointed to everywhere in his pelvic area when he was describing where my cancer was so I presume there was a lot of lymph nodes involved. (That was nearly 5 years ago and I was staged 4a)

Curative is a really good word and one that you want to focus on.

Easier said than done I know but try to stop looking for cases online. People who have been cured tend not to post and stay away from the forums as they want to move on with their lives and forget this ever happened.  People who post online are the ones that need support so that's why you don't see many positive stories but they are out there xxx 

 

 

Base2019

Thanks for your reply Philleepa. I just can't seem to get any positivity in my mind at the moment at all. All I can think about is the worst scenario :( I'm so glad to hear that you are doing great after nearly 5 years. That has made me smile this morning, so thank you xxx

Izzzy76
  • Oh I am so sorry you are feeling the way you are. Its such a horrible scary thing. You are however getting the best possible treatment, with a really high succes rate.

Also keep in mind that the succes stories are not always posted on the  Internet,  the negative ones seem to have the upper hand but that's because the ladies.who do get through treatment and are in remission and cured just run away from this.

 

I went through chemorads.last year, no side effects during treatment and I am fit as a fiddle today. No physical issues at all. I vowed last year that if I was lucky enough to get.through it all and live my life, I'd be posting this everywhere I get the chance. To change perspective and to provide hope for those ladies just diagnosed.

 

Hugs to you, you got this!!

28-8-2019 diagnosed grade 2 squamous 2B 4 cm tumor Mri suspect lymphe nodes but pet scan Shows no lymph nodes 25 radio extended field, 6 chemo and 4 brachy finished October 29 2019
Petesdragon
Petesdragon's picture

Hi Base,

I know of a lady who had paraaortic involvement who went on to palliative chemo last year. The chemo was successful and cleared the node so she became eligible for surgery which she had done last week and she is doing well. It's a negative factor (and there are many of those) but not an unbeatable one at all. Stay positive and you might surprise yourself regarding what you are capable of.

Karen x  

    • Stage 3 Glassy cell adenocarcinoma  1997 (negative smear tests).

Treated with Wertheim's hysterectomy, chemorads.

October 2017- new squamous cell vaginal tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 18 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. 2 down and 2 to go!

June 2018. CT scan shows 2 new pulmonary nodules.  

CT Scan Jan 2019. Nodules gone. No evidence of disease. 

xxHHxx

Hey 

 

I had Paraortic lymphnode involvement and others in my pelvis

At my pre brachy scan which was 3 and half weeks into chemo rads it showed no lymphnode involvement at all.

I think the chemo did its job. 

sealed

Diagnosed CC 12.02.2020

Stage 3

Mri scan 19.02.2020

CT scan 25.02.2020

PET scan 02.03.2020

Stage 3c confirmed 05.03.2020

EUA 16.03.2020 - re staged to 3b :)

Chemorads start 06.04.2020

Chemorads end 08.05.2020

Brachytherapy starts 10.05.2020

Brachytherapy restarts 13.05.2020

All finished and back home 16.05.2020

13.08.2020 3 month MRI - results not quite all clear. 

Base2019

Thank you so much for your message xxHHxx, I am sooo happy to hear that 😊 so happy to see your treatment is finished and that all went well. I have had my first taxol chemo and am due the next one on 26th August before starting into the chemorads/brachytherapy xxxx

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Cervical cancer