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Boundie
Boundie's picture
Support

Hi everyone,

I don't post here much anymore and when do it's when I'm having scanxiety. 

I just wanted to say even though I don't post I am around. Anyone is more than welcome to reach out and I'll respond.

I am filled with hope as I'm now 11 months out of treatment and NED. The journey was scary but so worth it.

So if you need an ear, someone to laugh with, cry with, get angry with I'm here ❤

September 2015 diagnosed stage 4 with lymph node involvement

6 rounds of carboplatin, taxol, avastin

30 external radiation combined with weekly cistplatin and 5 brachytherapy

All treatment completed July 2016 

October 2016 pet scan and mri: All clear!

March 2017 pet scan: NED

June 2017: still NED

October 2017 MRI/CT NED

February 2018: still NED

PET/MRI April 2018 still NED

May 2018 stent placement for swollen kidney and dilated ureter

August 2018 PET scan still NED

February 2019 Ureter reconstruction surgery and scans show NED

August 2019 CT scan NED

November 2019 check up Lesions found and awaiting laser removal
Halfpint

Hi Boundie 

lovely message :) nice for the new ladies to know they  can turn to others that are through the other side of treatment!! And that there is hope!! I'm 15 months from end of treatment and don't come on very often these days but I think it's reassuring for others to see we are ok and getting on with things!! It's changed us all but I'm so more thankful for the small stuff I took for granted!! Glad you are doing well as you went through a lot!! xx

Polyp removed 2015

diagnosed squamous 1b2 squamous cc nov 2015

radical hysterectomy Dec 2015

1 microscopic lymph involved 

chemorads finished March 2016

Lisamf

Hi boundie and half pint 

I've been recently diagnosed with 1b2 adenocarcinoma.so my journey is about to begin , my radical hysterectomy is booked for the 27th June , I feel ok about it but will find it a little scary nearer the time , my MRI was good. as there was no evidence that it had spread, I need to go back after the op for results which will determine weather i need chemo and radiotherapy . It is encouraging for people that has over come this and to tell there journey . I'm feeling quite  possitive, it's my family that have took it hard , I seem to be staying strong for them xx

Kathryn88

Thanks Boundie, that's very kind of you....I've got 6 more sleeps until I start treatment so will probably take you up on your offer! Xxx

Jayneeeb
Jayneeeb's picture

Hi Boundie How is your hair looking. I finished chemo on July 8th 2016 completely bald. Now my hair has finally been dyed back to my natural colour and is around 4" long in parts and in others less than 2". It's absolutely lovely to worry about these things rather than treatment Don't you think? Jayne 

Time for the really big girl pants now.

Boundie
Boundie's picture

I hope so Kathryn! It's a blessing to be able to support in any way I can.

Jayne, it sounds like we finished treatment around the same time! I've had three haircuts (more like trims as it grew in so uneven) since mine started growing back. It's thicker than it was and looks like I have highlights although I haven't colored it at all. It's interesting to see each morning as it is still short enough to stand on end haha! It is absolutely a joy to have such things to worry about ❤

September 2015 diagnosed stage 4 with lymph node involvement

6 rounds of carboplatin, taxol, avastin

30 external radiation combined with weekly cistplatin and 5 brachytherapy

All treatment completed July 2016 

October 2016 pet scan and mri: All clear!

March 2017 pet scan: NED

June 2017: still NED

October 2017 MRI/CT NED

February 2018: still NED

PET/MRI April 2018 still NED

May 2018 stent placement for swollen kidney and dilated ureter

August 2018 PET scan still NED

February 2019 Ureter reconstruction surgery and scans show NED

August 2019 CT scan NED

November 2019 check up Lesions found and awaiting laser removal
Letti

Hi ladies I might be in the wrong place as I have just begun my journey, i am 29 been having abnormal pap smears for 3 years I go in on the 19th June for my cone biopsy, how likely is it that they will find cancer? I have never had any abnormal periods or spotting in my life I only found out because I have been trying to fall pregnant for the last 3 years with one miscarriage. If the doc finds cancer he wants to do an hysterectomy which is !y worst nightmare as I don't have any children as yet. Just really scared and you ladies seem like the best place to start at . the doc said cell changes have begun to happen all through the layers reached the basement I  want to know if I am likely to have clear margins 

Boundie
Boundie's picture

Hi Letti,

This is a great place to start! Sorry for the stress you are experincing right now.

Mine was very advanced when found so I don't have the experience to fall back on pertaining to clear margins.

That being said, it does not sound like you're having the common symptoms of cervical cancer so that's a positive! Waiting is the worst part so I'm grateful you don't have to wait much longer.

It might be helpful to start a thread in this forum as well as the treatment forum. It will open your question up to many knowledgeable women who can share their experiences ❤

September 2015 diagnosed stage 4 with lymph node involvement

6 rounds of carboplatin, taxol, avastin

30 external radiation combined with weekly cistplatin and 5 brachytherapy

All treatment completed July 2016 

October 2016 pet scan and mri: All clear!

March 2017 pet scan: NED

June 2017: still NED

October 2017 MRI/CT NED

February 2018: still NED

PET/MRI April 2018 still NED

May 2018 stent placement for swollen kidney and dilated ureter

August 2018 PET scan still NED

February 2019 Ureter reconstruction surgery and scans show NED

August 2019 CT scan NED

November 2019 check up Lesions found and awaiting laser removal
Letti

Thank you so so much for the reply boundie I have since spoken to my gynie who had really reassured me that we will only be doing a biopsy and then take it from there he understands just how much I want a baby so that's important to me, I have to just get the biopsy done and be positive in the mean time I will come back and keep you posted here if that's OK, do you have any kids boundie? Thank you so much for the reassurance in respect of the symptoms 

Boundie
Boundie's picture

I will keep sending positive thoughts and would very much appreciate the update when you have it :)

Sounds like you have a supportive gynie which will make everything mich easier ❤

I have two kids but they're pretty much grown up. My son just turned 25 and my daughter turns 19 in August. (Ok so they're grown up but I'm not ready to admit that yet!)

I have just turned 40 though so looking forward to living on my own for the first time in my life :)

September 2015 diagnosed stage 4 with lymph node involvement

6 rounds of carboplatin, taxol, avastin

30 external radiation combined with weekly cistplatin and 5 brachytherapy

All treatment completed July 2016 

October 2016 pet scan and mri: All clear!

March 2017 pet scan: NED

June 2017: still NED

October 2017 MRI/CT NED

February 2018: still NED

PET/MRI April 2018 still NED

May 2018 stent placement for swollen kidney and dilated ureter

August 2018 PET scan still NED

February 2019 Ureter reconstruction surgery and scans show NED

August 2019 CT scan NED

November 2019 check up Lesions found and awaiting laser removal

More Information

Cervical cancer