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What to do?

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What to do?

Hi my names Natasha,  I am 31. In January I was diagnosed with cervical cancer stage 2 and on the 28th of February I had a radical hysterectomy and my lymph glands removed. Luckily they found that it hadn’t spread but I feel I have been put in an impossible predicament. They have offered me preventative chemo and radiotherapy combined. I had my appointment with my oncologist today and he really sold it to me it honestly sounded dreadful and as it’s not obligatory I feel I am playing black jack with my future. The side effects all sound horrific. I just wanted to speak to ladies similar to my age who have decided to have the treatment and those who havent as I feel that I need more information about it all. Thank you x

Natasha love 

Petesdragon's picture

Chemoradiotherapy is usually the standard treatment for Stage 2. I presume you didn't have that in the first place because they must have thought at some point that you were a stage 1 which they usually treat with a hysterectomy or less. It's a difficult dilemma for you. How sure are they that they got it all out? Are there other negative features like lymphovascular invasion or perineural uptake? If there are, you should consider having the treatment to be on the safe side. If you don't have it, and the cancer comes back you could  end up having it anyway and it may not be curative if it's spread by then. I had the same dilemma in 1997. I took some persuading to have it and it's not been without issues but I am still alive...which is good!

Karen x 

    • Stage 3 Glassy cell adenocarcinoma  1997 (negative smear tests).

Treated with Wertheim's hysterectomy, chemorads.

October 2017- new squamous cell vaginal tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 18 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. 2 down and 2 to go!

June 2018. CT scan shows 2 new pulmonary nodules.  

CT Scan Jan 2019. Nodules gone. No evidence of disease. 

Tivoli's picture

Hi Natasha,

I've had the full works, hardly any side effects from either radio or chemo (or even brachy) therapies. Sure I am lots older than you but I don't see the relevance. If you want to read a funny story about the whole thing just click on the toad and read "My Big Fat Greek Hysterectomy".

The treatment improves your chances of non-recurrence.

Be lucky :-)


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Cervical cancer