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WONDERING ABOUT STAGE 1B1/GRADE 3 EXPERIENCES

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BRivera
WONDERING ABOUT STAGE 1B1/GRADE 3 EXPERIENCES

HELLO!

I am trying to keep it together here. I am 31 years old with three boys under the age of 5 years old. 

I was recently diagnosed with Stage 1B1 Squamous Cell Carcinoma, Grade 3. I am worried about lymph node spread. I will need a total hysterectomy, leaving ovaries. I have a consultation booked next week to discuss with the surgeon. 

Can anyone share experiences with this Stage/Grade and if there was lymph node involvement? I can't seem to find answers about how deep stromal invasion is rerquired to have a grea†er risk of spread to lymph nodes. If there was lymph node involvement for you at this grade/stage, what was the next step? 

Thank you in advance for your support. 

NightFury

Hi 

I'm so sorry you are going through cc.

When I was diagnosed in June last year I was told it's 1b1. MRI suggested 1a2 which was confirmed after radical hysterectomy, lymph node removal and preservation of ovaries. Lab results came back as grade 3 too. I had laparoscopic surgery, first scan in Oct clear, awaiting my second MRI. 

Stay strong and stay safe :) 

 

 

 

Dec 2019 routine smear test 

January 2020 boarder line result with HPV+

May 2020 colposcopy

June 2020 LLETZ + cancer diagnosis 

August 2020 radical hysterectomy for 1a2 cancer 

October 2020 NED 

March 2021 NED

 

 

 

 

 

 

FeelingTheFear

Hello, 

You're currently working through the hardest part of the journey, it will get clearer and less terrifying once you know exactly what youre dealing with and what the plan is. 

I had 1B2 squamous cell with no lymph node involvement. Its a bit of luck really, some smaller tumours do, some larger don't, it's a cliche but every cancer is different. What I can tell you is that if there is lymph node involvement the treatment is usually 5 weeks or so of radiotherapy Mon to fri, chemo weekly, and a couple of sessions of targeted radiation therapy (brachytherapy) right at the end. Tough going, but really effective treatment.

An MRI and PET scan will give a good indication of whether there is lymph node involvement, but the lymphadenectomy will give greater certainty. The scans are good but won't pick up microscopic cancer cells that a pathologist would see in the lab. 

I really struggled with this at the time but cross each bridge as it comes. Sometimes "each bridge" was getting out of bed and making a cup of tea. Try your best to stay in the moment and focus on the smaller tasks that get you on the way, rather than the bigger picture x I know, easier said than done! X

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1 (1b2 on new FIGO)

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up. NED!

Harvitt

Hi, how are you getting on? 

06 Jan 20 massive bleed. 7 feb 20 smear came back highly differentiated severe dyskolious. 14 Feb biopsies taken. 21st Feb cc cells found. 22 Feb 20 told poorly differentiated squamous cell. 28 Feb staged at 2a. Tumour is 2.4mm/9mm 6 March restaged at 3c due to 3 lymph node involvement - x1 2cm. 12 Mar 20 met oncologist - told me coronavirus will probably kill me before cc does. 18 March 20 pre scan booked.

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Cervical cancer