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Ectropion found during smear

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Gem gem x
Gem gem x's picture
Ectropion found during smear

Hi ladies, 

So I had my smear last week, which was a little different than normal. Firstly, the pain was really bad. Changed the speculum, still bad, the nurse couldn't find my cervix, had to call for back up, the 2nd nurse couldn't find it either. I had to stand up and jump up and down to see if it moved. Tried the longer speculum and finally found it and had my smear. 
I've previously had abnormal smears in the past and had the lletz treatment back in 2014 for CIN 2 and 3. 
Thr 2nd nurse who found my cervix said I had an ectropion, and said that why it might have been so painful. Haven't had one before. 
The nurses talked amongst themselves whilst I got dressed and then the first nurse just said I'd get my results in around 6 weeks. Now the ectropion thing is niggling my mind, I know they're quite common and are benign etc, but I wondered if I was supposed to be referred to gynae. I've tried to read the nice guidelines and it says "premenopausal woman who display polyps, ectropion, lesions etc should be referred" 

not sure if I have been referred or not. But wanted to know incase between the 2 of them they didn't forget lol. 

  • July 12 - borderline (25yrs old:first smear)
  • January 13 - borderline 
  • July 13 - normal
  • January 14 - borderline HPV Positive
  • February 14 - Colposcopy & Biopsy 
  • February 14 results biopsy - ungradable CIN (explained at lletz it was CIN2 and CIN3)
  • March 14 - Diagnosed with polycystic overies 
  • March 14 - Lletz treatment 
  • April 14 - Lletz result - CIN 1 with clear margins, all bad cells removed :)
  • 17th sept 6 month smear - Normal & Hpv Negative :) 

 

Jenjen87

Hello!

ectropians are total normal especially in women experiencing hormonal changes or on the contraceptive pill.

they can cause pain, bleeding and some discomfort during sex but are in no way related to cervical cancer. If you are concerned though, always push for further investigations. We know our bodies, and we shouldn't ever take no for an answer if we feel something isn't right.

good luck x

Gem gem x
Gem gem x's picture

Hi Jen, 

thanks for your reply. I'm 34, never been on the pill or any other contraception so I guess it just must be my normal hormones or something. I just didn't know if it was in the guidelines to get referred if you've got the ectropion really. 
I'm not worried about it, just didn't know whether to expect a colposcopy letter and it would be because of the ectropion rather that a abnormal cells etc. Didn't want to get a letter and panick thinking it was cells again lol,

thanks Jen 

  • July 12 - borderline (25yrs old:first smear)
  • January 13 - borderline 
  • July 13 - normal
  • January 14 - borderline HPV Positive
  • February 14 - Colposcopy & Biopsy 
  • February 14 results biopsy - ungradable CIN (explained at lletz it was CIN2 and CIN3)
  • March 14 - Diagnosed with polycystic overies 
  • March 14 - Lletz treatment 
  • April 14 - Lletz result - CIN 1 with clear margins, all bad cells removed :)
  • 17th sept 6 month smear - Normal & Hpv Negative :) 

 

Jenjen87

Hey,

yep I totally get it! I think if the ectropian is causing pain with sex or bleeding they will offer you treatment, but hey I'm no expert!

The waiting game is the absolute worst with all of this, our minds can be extremely creative in making worst case scenarios can't they! Mine is doing that exact thing right now waiting for my cone biopsy results... Us women, have it rough! 😬😬😬

xx

Gem gem x
Gem gem x's picture

Yes I completely agree, last time when I had the lletz I remember thinking that the worst thing about it all was the waiting (back then the waiting wasn't as bad as it is now either). Aww I'm wishing you the best of luck for your cone biopsy results. Fingers crossed you get the best possible outcome xx

  • July 12 - borderline (25yrs old:first smear)
  • January 13 - borderline 
  • July 13 - normal
  • January 14 - borderline HPV Positive
  • February 14 - Colposcopy & Biopsy 
  • February 14 results biopsy - ungradable CIN (explained at lletz it was CIN2 and CIN3)
  • March 14 - Diagnosed with polycystic overies 
  • March 14 - Lletz treatment 
  • April 14 - Lletz result - CIN 1 with clear margins, all bad cells removed :)
  • 17th sept 6 month smear - Normal & Hpv Negative :) 

 

Jenjen87

Thanks, and same to you! I'm sure everything will be just fine :)

Katie148

Hey, 

They noticed I had ectropion in 2017 when I had abnormal bleeding but wouldn't allow me to have an early smear test. At my first smear test, I was HPV negative but the cytology slides confirmed abnormal cells, CGIN. I had clear colposcopy biopsies but LLETZ revealed 1b1 tumour. 

Ectropion can be absolutely nothing but definitely needs to be monitored xx

Also FYI, they are now only doing cytology slides (checking for abnormal cells) on women that first test positive for HPV. I'm campaigning against it as I would have been sent away for 3 years if my test was after these changes to the screening programme

  • Feb 19: First smear test under old screening- HPV negative, severe CGIN
  • March 19: Colposcopy - 2 clear biopsies
  • April 19: LLETZ - found 1b1 tumour
  • June 19: Radical trachelectomy - all clear
  • Aug 20: Discovered follow up tests affected by new screening programme where women will only be tested for abnormal cells if HPV positive - how is this helpful for me?

Katie 

Gem gem x
Gem gem x's picture

Hi Katie, 

Sorry to hear you had cc. I hope you're well recovered now. 
I had my results a few days ago, negative hpv and so like you say it wouldn't have been sent to cytology. This bugs me, it makes no sense not to do it. I've obviously had the hpv before so why they don't do the checking of the cells is just bonkers. 
I did notice on the results letter their disclaimer about the fact it could still be wrong yell 

I haven't been sexually actively for years (so wouldn't know if I bled after sex). Never been on any contraception so that hasn't caused my ectropion, and it wasn't there on my last smear or back when I had my lletz. Just strange. I told the nurse that my discharge was tainted and she didn't say much. 
Do you think it's worth going private in 6 months and getting a colp done? 

  • July 12 - borderline (25yrs old:first smear)
  • January 13 - borderline 
  • July 13 - normal
  • January 14 - borderline HPV Positive
  • February 14 - Colposcopy & Biopsy 
  • February 14 results biopsy - ungradable CIN (explained at lletz it was CIN2 and CIN3)
  • March 14 - Diagnosed with polycystic overies 
  • March 14 - Lletz treatment 
  • April 14 - Lletz result - CIN 1 with clear margins, all bad cells removed :)
  • 17th sept 6 month smear - Normal & Hpv Negative :) 

 

Jenjen87

Hi Gem,

I am a huge advocate for going private if you can. Nothing against the NHS at all, but in private you definitely have more control over your treatment. 
I did all of my recent treatment and investigations privately, mostly because my colposcopy appointments kept getting cancelled and I was seeing the timeframes for some women on this website with the NHS. From my first Colposcopy to my Cone biopsy in hospital and getting the all clear was less than two weeks. 

The most important thing we need to do is listen to our bodies. If things don't feel right, definitely investigate it, and if that means going Private if you have the means to do so, Then definitely do it.