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Frightened

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Jane88
Frightened

Can someone please tell me I’m not alone with feeling frightened and anxious about all of this. I lay in bed every night not able to sleep and worry I won’t live as long now I have this condition. Feeling very low ☹️

Jane
noodlesdoodles

Hi Jane

You are definitely not alone in feeling this way. It is the most terrifying thing to be told you have cancer. Nobody can prepare you or predict how you feel so just know that whatever you feel or how you react is always ok. 

I found it a rollercoaster of s journey and waiting for results and staging was definitely the worst as my mind would be crazy. You can though do this and deal with it for sure. Take each day as it comes, vent, cry,ask for help - do whatever feels right for you.

you are not alone - we all know exactly what it’s like so you have all the support you need right here. Huge hugs and love to you right now xxx

May 19 smear June 19 CC diagnosed CT/ MRI July 19 EUA - into parametrium PET scan Results - 2B clinically/. 1b1 radiologically. Decide between chemorads or hysterectomy 30.07.19 Saw consultant- will do EUA / camera and node dissection first. If spread do chemorads 21.08.19 open Radical Hysterectomy and node dissection 2.9.19 NED Nov19 ISC bladder issues Diagnosed with Lymphoedema
Jane88

Thank you so much for taking time to reply to my post xx

Jane
Memagh

Jane you are most definitely not alone. I don't know what stage you are on this journey but if it's the waiting around stage that really is the toughest. I had dark days during that early bit where I was writing down all my passwords for accounts, writing down little notes about what to do and not do with the kids etc. I'm just a week into my treatment and mentally feeling much more positive. There is an amazing bunch of ladies on this site. It has been a constant source of support and information for me since I found out. Ask any questions you want and we'll help if can. Sending hugs

x Maria

Diagnosed CC 01st August 2019 Stage 1b2 with 1 local lymph node involved. Something else showed up on pet scan. Treatment delayed for surgery, done on September 9th. Found to be a simple ovarian cyst, 1 ovary and tube removed. Treatment plan 5 chemo, 25 radio and 4 brachy. Treatment start date 02nd October 2019. Treatment end date 8th November.
Jane88

Hello Maria

thank you so much for replying to my post xx

Jane
Lotty9000

Hi Jane

As others have said you’re definately not alone. I had some tough times, particularly while I was having MRI and CT to define staging,my mind ran away with me a lot! I have to say I did feel better once I knew what I was dealing with.

Thinking of you, you got this xxxx

11th March 2019- 1st ever abnormal smear. (Never missed a smear)

1st May 2019 - Colposcopy with LLETZ

9th May 2019 - diagnosis ?1B Villoglandular adenocarcinoma and high grade CGIN;

22nd and 23rd May 2019 - MRI/CT

29th May - MDT meeting. MRI/CT clear. Amount of tumour 1A stage.

13th June 2nd LLETZ with top hat procedure 

3rd July Confirmed staging 1A1, clear margins on 2nd LLETZ. Scheduled for laparoscopic hysterectomy, keeping ovaries.

29/8/19 Total Laproscopic hysterectomy with ovarian conservation.

26/9/19 pathology confirms NED:-)

Jane88

Hello lotty 

thank you so much for replying to me. I appreciate it xx

Jane