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High grade abnormalities

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Charleyg88
High grade abnormalities

Hello

hope someone can give me some advice!

i attended a smear in 2013 which was normal and then in 2016 where it came back low grade and cin1 found at biopsy. I was advised to come back in a year. Well not sure why I didn't go but it passed my mind. Was due another smear in 2019 but pregnant so couldn't go. Baby born April 2020. Around 16 weeks postpartum I started to develop pelvic pain and back pain and had one instance of irregular bleeding. My GP gave me a pelvic exam which she said was ok and said it was probably skeletal and that the bleeding was probably my body getting rid of old pregnancy blood. I asked for a smear as I was over due so was given one. Well I have just received my results as high grade (moderate). I'm absolutely beside myself with worry. I three children under ten and I'm convinced I have cancer and that I'm going to die. Am I being crazy or should I be concerned?  As a background, my periods before childbirth were heavy but not irregular and I've never experienced irregular bleeding before. Thanks for reading 

Jazza
Jazza's picture

Hi

From what you say I think it is likely you will need some fairly simple treatment to remove the abnormal cells, as do tens of thousands of women every year in the UK.  IF you have cervical cancer then the most likely scenario is a microscopic non-invasive cancer-in-situ which about 30,000 women are treated for every year in the UK - again it's fairly simple treatment with a high success rate.  Only about 3,000 UK women p.a. are diagnosed with invasive cervical cancer requiring surgery and/or chemo-radiotherapy and most are cured, although it's a challenging ordeal for some.  No promises, but the stats are very much in your favour, despite the fact you delayed your check-up - I was more than 10 years overdue for a smear when diagnosed with my cc.  You are not being crazy but it's human nature to sometimes imagine the worst - it's the fear of the unknown.  I suggest you don't google the subject - it will likely confuse, mislead and scare you.

I hope all goes well for you

x

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: PMB
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1 (1B2 on new FIGO) squamous cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A1 (2A1 on new FIGO)
  • Apr/May 17: 6x chemo, 25x external radio, 2x brachy
  • May 20:  NED.  Side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot
Charleyg88

Thank you. I have my colposcopy appointment tomorrow and I am absolutely terrified! I can't sleep or eat and keep crying. Doesn't help that I suffer from health anxiety! 

Jazza
Jazza's picture

Waiting for appointments/results can be pretty gruelling.  My way of dealing with it is to keep ultra busy e.g. cleaning.  It'll feel better when you know what you're dealing with.

All the best.

x

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: PMB
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1 (1B2 on new FIGO) squamous cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A1 (2A1 on new FIGO)
  • Apr/May 17: 6x chemo, 25x external radio, 2x brachy
  • May 20:  NED.  Side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot
Charleyg88

Hello, just an update. 
I attended colposcopy and she found a white area, like a small blob. She said she was unsure whether cin2 or CIN3 so wasn't going to do the lletz procedure as she wasn't sure if it was needed. She said if it is CIN3 she will treat it, if not then I will go back in six months.

does it sound like I'm in the clear? I have really bad health anxiety so still feel on edge.

also I really appreciate your replies so far and I'm sorry if you think im over reacting, especially as my case is nothing compared to what you have been through xxx

Jazza
Jazza's picture

The biopsies will give a more accurate diagnosis so whilst no one can say you are in the clear it sounds like there isn't anything to be really concerned about.  In my case the doc took one look at my cevix and immediately suspected cancer  (told me at the time) which is a long way from where you are.  If your biopsies show CIN3 then that'll be a reason to treat and if they show CIN2 then I'm guessing your doc might wait for 6 months because CIN2 can revert to normal especially in younger women.  If you need a LLETZ, the vast majority of women go on to have no further problems.

x

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: PMB
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1 (1B2 on new FIGO) squamous cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A1 (2A1 on new FIGO)
  • Apr/May 17: 6x chemo, 25x external radio, 2x brachy
  • May 20:  NED.  Side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot
angela1980

I've been told I have asc-h on my pap. I am getting a leep done on the 17th. I haven't had a smear in 15+ years. I'm so scared an suicidal.

ASC-H pap results

LEEP to be performed on September 17, 2020

September 20, 2020 LEEP done. Dr said I didn't have cancer. Waiting for results.

LEEP results are CIN3 all margins clear. No cancer. ECC was negative for SIL or cancer.

I go back for another smear in 6 months.

I have not had a pap in about 15 years.

Charleyg88

Please don't be scared. Always here for a chat

Cagney

Angela don't panic! I missesd my smears since 2008 so that's 12 years! I was terified convinced it would be horrendous news but in the end they found a tiny warty lesion which they've removed and the consultant is optimistic. You're in a screening process to find anything before it is bad so take heart. I had abnormal cells too - but it atill turned out really positive so it could do for you! I do hope so! Don't panic on your own - we're all in this together - when they have investigated and you know for sure what's going on hopefully it will all seem easier. Are you on your own? Do you have family with you?