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Letter following smear test

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Sunshiny
Letter following smear test

Hi, 

This morning I received a letter with an appointment at the gynaecology clinic in 6 weeks time. I am 40 and for years ive had no issues with my smear tests so naturally this came as a shock. All sorts have been going through my mind and to be quite honest I've been upset with worry. I had my smear approx 6 weeks ago but what I'm most concerned is that the letter has no other info other than allt with gynaecolist. Has anyone else received their letter like this with minimal info? I dont think ill be able to rest til mid Oct 😪 

 

 

Julia9054

Hi

I imagine this was a bit of a shock. You would normally receive 2 letters. The first would come from the screening service with the results of your screening and informing you that an appointment would be made for you. The second would be from the gynaecology dept, telling you when you appointment would be. It sounds like you have got the second letter before the first - they come from different places.

Your smear results will be sent to your GP as well as to you and it may well be that they already have them. The last smear I had, my GP got my results a couple of days before I did. I would give your GP a ring and ask them.

55

Hello

I found out about my hospital appointment from a telephone message from a missed call and put 2 and 2 together. I then had to call the hospital back about the appointment but they couldn't tell me the test results over the phone so I received their appointment letter by post and afterwards I got the smear results through the post. As Julia said it's because they come from different places and it's unfortunate that you and I got the information in reverse order. When I got the smear results I made an appointment with my GP to help me to decipher them. I too had never had an abnormal result before. I can recommend phoning Jo's helpline for support and information. Let us know when you have more information. Big hugs 

A x

 

1st ever abnormal smear hpv & severe high grade dyskaryosis August 2019 lletz September 2019 polyp & nabothian cyst found Results hpv & mild cell changes polyp innocent Repeat colposcopy Dec 2019 test of cure January 2020 results of test of cure; no high risk HPV present , check up colposcopy appointment in June because of the discrepancy between initial smear & lletz result - June 2020 repeat colposcopy & pap - all clear - discharged from hospital - next smear in 3 yrs Back again August 2020 following post menopausal bleed; more tests! Turned out to be hormonal/menopause related but they also discovered a small ovarian cyst which they will check again in 4 months; cyst was not related to bleeding

55

Hello

I found out about my hospital appointment from a telephone message from a missed call and put 2 and 2 together. I then had to call the hospital back about the appointment but they couldn't tell me the test results over the phone so I received their appointment letter by post and afterwards I got the smear results through the post. As Julia said it's because they come from different places and it's unfortunate that you and I got the information in reverse order. When I got the smear results I made an appointment with my GP to help me to decipher them. I too had never had an abnormal result before. I can recommend phoning Jo's helpline for support and information. Let us know when you have more information. Big hugs 

A x

 

1st ever abnormal smear hpv & severe high grade dyskaryosis August 2019 lletz September 2019 polyp & nabothian cyst found Results hpv & mild cell changes polyp innocent Repeat colposcopy Dec 2019 test of cure January 2020 results of test of cure; no high risk HPV present , check up colposcopy appointment in June because of the discrepancy between initial smear & lletz result - June 2020 repeat colposcopy & pap - all clear - discharged from hospital - next smear in 3 yrs Back again August 2020 following post menopausal bleed; more tests! Turned out to be hormonal/menopause related but they also discovered a small ovarian cyst which they will check again in 4 months; cyst was not related to bleeding

Sunshiny

Thank you all for your messages. The day after I received my appt letter for the gynaecology clinic I called my gp practice first thing to ask for more info ans explaining the situation and how anxious I am. My Dr contacted a few hours later and explained my results. To be honest most of it is a blur. I remember her saying something along the lines that smear testing has changed recently and that they have found that I am HPV positive and moderate dyskaryosis. I had to ask her to repeat that word again because I had never heard of it before. I remember my hands shaking a little and the tears filling up and just feeling all clamy as I tried to take all the new information in. She mentioned biopsy and then the rest is a blur. 

I have gone through life with no health issues so this is a shock. I admit I am struggling to cope mentally particularly because I also have these slight lower back aches (which for months I've put down to needed a new mattress on my bed) but not any twinge, ache my mind is thinking the worst

I have since received my letter from the gp practice but it was very vague just that hpv positive found and changes in cells and appt for colposcopy.

I am so thankful for this forum to turn to to explain my feelings and fears as I know my husband is trying his very best to remind me try and not think about it too much. 

Sunshiny

Thank you all for your messages. The day after I received my appt letter for the gynaecology clinic I called my gp practice first thing to ask for more info ans explaining the situation and how anxious I am. My Dr contacted a few hours later and explained my results. To be honest most of it is a blur. I remember her saying something along the lines that smear testing has changed recently and that they have found that I am HPV positive and moderate dyskaryosis. I had to ask her to repeat that word again because I had never heard of it before. I remember my hands shaking a little and the tears filling up and just feeling all clamy as I tried to take all the new information in. She mentioned biopsy and then the rest is a blur. 

I have gone through life with no health issues so this is a shock. I admit I am struggling to cope mentally particularly because I also have these slight lower back aches (which for months I've put down to needed a new mattress on my bed) but not any twinge, ache my mind is thinking the worst

I have since received my letter from the gp practice but it was very vague just that hpv positive found and changes in cells and appt for colposcopy.

I am so thankful for this forum to turn to to explain my feelings and fears as I know my husband is trying his very best to remind me try and not think about it too much 

X

 

55

Hello Sunshiny

Your experience sounds pretty similar to mine. I also had not realised that cervical screening had switched to HPV first testing and I also considered myself to be a healthy person. Since then via this website and my own research I have found out more about HPV and the screening system. I have had to educate and inform myself. Knowledge is power and understanding the science behind this and how the screening system works has made me feel better. A GP explained to me that colposcopy is just another part of the screening process. Anyone who has HPV and moderate dyskariosis (a fancy scientific word for abnormal cells) is referred to colposcopy so that the doctors can get a more accurate picture as to what is going on and if necessary remove the abnormal cells before they have a chance to turn into cancer. A bit like a dermatologist removing a mole. I can recommend the book The Gynae Geek for explanation of all things gynaecological, includung all this. Jo's Ask the expert service is also very good as well as the helpline. The Eve Appeal and MacMillan Ask the nurse services are also useful. It's important to realise you are not alone, many women go through this every year. It's just that people don't talk about it because sex and cancer are both taboo. Remember cell changes are most probably not cancer. 2 other ladies on here, Jazza and Julia, are very good at the statistics. HPV can lie dormant for many years, 80% of people have had it at some point in their lives and don't know they have had it because there are no symptoms. So anyone who has ever had sex or even just foreplay to put it bluntly has probably had HPV. There is no shame in this. Please look after yourself. Your husband sounds supportive which is good. You are not alone. The staff at the hospital I went to are brilliant and I'm sure you will also feel better when you have a greater knowledge and understanding of what is happening in your body. I hope this helps you.

A x

1st ever abnormal smear hpv & severe high grade dyskaryosis August 2019 lletz September 2019 polyp & nabothian cyst found Results hpv & mild cell changes polyp innocent Repeat colposcopy Dec 2019 test of cure January 2020 results of test of cure; no high risk HPV present , check up colposcopy appointment in June because of the discrepancy between initial smear & lletz result - June 2020 repeat colposcopy & pap - all clear - discharged from hospital - next smear in 3 yrs Back again August 2020 following post menopausal bleed; more tests! Turned out to be hormonal/menopause related but they also discovered a small ovarian cyst which they will check again in 4 months; cyst was not related to bleeding