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Showing symptoms of advanced cervical cancer and terrified 😢

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Laura Dora
Showing symptoms of advanced cervical cancer and terrified 😢

Hi everyone,

This is my first post on here.

A couple of years ago, my periods became really heavy. I was referred to gynae, and had a couple of scans. I was found to have fybroids and a uterus that looked typical of adenomyosis.

Last March, I had another scan (internal and external) and was prescribed tranexamic acid by the gynaecologist to control the bleeding as periods were still so heavy. I also kept getting low iron blood results, so was put on ferrous fumerate.

I had a follow up appointment in November 2020 with the gynaecologist. I wasn't examined, but she suggested I started taking the progesterone only pill to try and make my periods lighter. I had actually, off my own back, started taking it only a couple of weeks before as a friend had told me they'd really helped her with her periods.

After a few weeks, I noticed my periods had become irregular, in fact it was difficult to pin point when my period actually was as I was experiencing spotting inbetween what I assumed was my period. However, I had read that this was fairly normal with the progesterone only pill especially in the first few months.

It's only in the last three weeks that I have realised that I am now bleeding every day, most notably when I pass urine or have a bowel movement. I was under the assumption that the bleeding would get better in time, not worse. I see the blood in the toilet...I'm almost 100% certain it's coming from my vagina at the end of urinating or passing a stool. I'm also experiencing leg pain (mostly a dull, dragging feeling, but occasionally sharp) in my right leg, although occasionally my left, sometimes down to my feet, and in my groin on the right, plus I'm feeling increasing pressure in my back passage (whether or not I need to empty my bowel).

To make matters worse, I had a letter through for my 3 Year smear check on Saturday. I have booked this for Monday and managed to arrange to be examined afterwards by a GP after I explained my symptoms. However, the leg pain and back passage pressure got quite bad last night, and is today, and I was so worried this morning, that I've managed to get an appointment to see a GP this afternoon.

I am absolutely beside myself. I suffer from anxiety anyway, and am a single parent with two children. I have a very caring, supportive boyfriend, but we don't live together. I'm panicking because I'm worried that the progesterone only pill could have been masking symptoms of cervical cancer (the bleeding) since I started taking it in October, and now I'm getting these other symptoms along with the daily bleeding, I'm terrified that it might be too late.

Would be grateful for any thoughts.

Laura.

Jazza
Jazza's picture

Hi Laura

The fear of the unknown can be monumental so it's good that you've managed to get an appointment to see your GP this afternoon.  When I went to my GP with abnormal bleeding (in 2016) I was given an urgent 2 week referral to see a gynaecologist.  As you can see from my back story my symptoms did turn out to be cancer but, easy to say, try not to jump to conclusions - there are are various possibilities for your symptoms.  Also easy to say,  but it's best to try and avoid Google about this as it will just play to your worst fears.

x

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: PMB
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1 (1B2 on new FIGO) squamous cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A1 (2A1 on new FIGO)
  • Apr/May 17: 6 chemo, 25 external radio, 2 brachy
  • May 20:  NED.  Side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot
Laura Dora

Hi Jazza

Thanks for your reply.

I'm very sorry that you were diagnosed with cancer.

I am sitting here unable to think about anything else and counting down the hours until my appointment. I'm absolutely dreading it and am so worried because of the symptoms, but I've got to face up to it and either get the all clear or not as the case may be.

If it is the worst news, I'm worried about how I'll cope with the children, what I'll tell them etc. I'm 42 and my kids are 14 (girl) and 8 (boy). Their dad is not the most responsible of people and isn't very affectionate  or concerned about their education, doesn't stay in relationships very long etc., so I'm terrified about what would happen to them if the worst happened to me. I'm also my mum's main carer (I'm an only child) - she has osteoporosis which has caused a severe curvature of the spine and is almost completely immobile, so I'm so worried about what would happen to her if I am ill 😢 I know I might be thinking too far ahead, but it's eating me up.

X

 

Jazza
Jazza's picture

Hi Laura

It's very normal to start worrying about all the worst case scenarios in a situation like the one you're in now - I can certainly empathise with that.  I hope you won't need this information but IF it is the worst news then, as well as Jo's,  I would recommend Macmillan- they have very good services in terms of advice and support for family, financial issues etc.  in the context of a cancer diagnosis - see following link:         

https://www.macmillan.org.uk/get-involved/campaigns/get-support?&infinity=ict2~net~gaw~ar~305825389196~kw~macmillan%20support%20for%20families~mt~e~cmp~G_PS_CS_UK_BND_NON-CANCER+TYPE_DEMOGRAPHY_EX~ag~Family&gclid=EAIaIQobChMIw4iZ4K327gIVk6ztCh1a8wXKEAAYASAAEgKBv_D_BwE&gclsrc=aw.ds           

x                                                           

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: PMB
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1 (1B2 on new FIGO) squamous cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A1 (2A1 on new FIGO)
  • Apr/May 17: 6 chemo, 25 external radio, 2 brachy
  • May 20:  NED.  Side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot
Rb1926

Hi

Im so sorry you are going through this ! I know it's easier to say than it is to do - but please try not to worry at this point , whilst you don't know the worrying will not change anything but just make you feel extra stressed . I'm aware or how silly that sounds as I am a professional worrier ! But just remember how easy it is for your mind to instantly go to the worst case scenario - and all of a sudden you are in a Google rabbit hole reading all of the worst case stories and adding all your different symptoms together to point to one thing , when really it is more likely that they are from less sinister reasons . 

The day I got my abnormal smear result - after worrying myself sick for weeks just waiting - I bled . It lasted 3 days on and off . Unusual for me but it drove me insane - admittedly it was around ovulation but no I was convinced that this was it , it was a cancer symptom that just so happened to appear on the day I got my result . Before Christmas I had bad sciatica that still hurts slightly - I knew certain things I was doing caused it , and makes it worse and I continued to do it , I know sciatica excercises work for it - but no , now I'm convinced that the factors leading to it and the things that work for it are all coincidences and it's actually cancer . 

What I'm trying to say is we all jump to the worst case scenario , if you Google bleeding you will find posts about cancer . If you Google headache you will find posts about brain tumours . I honestly once googled about an itch that led to a post about cancer . People will post about the time their symptoms were something sinister , but for every person for example who posts that their headache was a brain tumour - the thousands of people who just had a headache that was simply a headache will not post that . 

You are taking the right steps to get your symptoms investigated ❤️ I hope everything works out for you and your mind can be put at ease xxx 

23/03/20 - smear result - hpv positive . All previous smears clear. 

09/02/21 - smear result - hpv positive + high grade ( moderate ) dyskaryosis. Referred for colposcopy. 

16/02/21- colposcopy and biopsy . Awaiting results 3-4 weeks . 

04/03/21 - biopsy results in , CIN2 confirmed . Treatment booked for 23/03/21