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smear phobia

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smearfear2021
smear phobia

I've just been for my smear (5th or 6th one in my life) and 2 EMCS at least in part due to tilted cervix. No history of any problems. No signs or symptoms of anything. I have just always hated them and been very anxious shaking etc but this time I just couldn't let her near me.Definitely got worse after 2 horrible labours and all the poking and prodding and telling me my cervix doesn't work properly.  This time I was in a right state (never been like that that before) just kept putting my hands in the way clamping my legs together. Totally awful and had to leave. I have another appt in a weeks time with instructions (and prescription) for 4mg of diazepam. Will it help? I've never walked out of one  before I've gone through with it. Any advice? She said if the diazapem won't work she has no idea what to do with me. Refused to discuss any other option. I had my last one at hospital and it was far better but they won't do them any more. I would pay for private if I meant I could have sedation/gas and air but this nurse said its absolutely not an option. I am in South Wales 

Lemon Lavender

Have you considered hypnotherapy for a phobia? Just make sure you check out that they're fully insured and are registered with reputable regulatory and supervisory bodies like the CNHC. x

1/01/21 - routine smear (previous smears clear). 

8 days later - letter HPV Positive + high grade severe dyskaryosis. Colposcopy letter arrived 6 days later. 

 26/01/21 - colposcopy appointment, LLETZ - biopsies, Diathermy Ablation

18/02/21 - 23 days after colposcopy. CIN 3. Margins not clear. To be discussed at MDT on 16/3/21. Await results. 

Detailed account of my experience can be found on this thread: https://www.jostrust.org.uk/forum/cervical-screening-smear-test/what-were-your-waiting-times

smearfear2021

That's interesting I've just contacted a few hypnotherapists for quotes. 

smearfear2021

any success stories with hypnotherapy out there? 

FeelingTheFear

Just to let you know I am offered lorazepam for my examinations and its been amazing for me. If you haven't taken it before you might be surprised how effective it can be. I also had diazepam before my surgery as I was in a bit of a state and I was totally calm going into the operating theatre. It doesn't make you "out of it", you are in full control (important for me as an abuse survivor), but you are very calm and relaxed. 

I hope you'll find it as helpful as I have.

Take care x

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1 (1b2 on new FIGO)

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up. NED!

Jazza
Jazza's picture

Hi

I can certainly empathise with difficulties having a smear - I developed a phobia when I became menopausal and sadly I 'coped' by ignoring my screening invitations - see my back story.

It's not something I ever tried but one option is HPV self testing; kits can be bought on-line and can be found by googling on 'HPV self testing UK'.  If you test negative for HPV then you won't need a smear test but if you test positive then you will need a smear test - but you can cross that bridge IF you come to it. 

For a bit of further inforamtion you might be interested to look at following link:  https://www.jostrust.org.uk/about-us/news-and-blog/blog/what-hpv-self-sampling

x

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: PMB
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1 (1B2 on new FIGO) squamous cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A1 (2A1 on new FIGO)
  • Apr/May 17: 6 chemo, 25 external radio, 2 brachy
  • May 20:  NED.  Side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot