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New mum with 1b1 cervical cancer

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Henrah
New mum with 1b1 cervical cancer

Hi,
I feel like I'm going through this alone.
I have a five month old baby and I have been diagnosed with 1b1 cervical cancer .
I will need a radical traclectomy in a few weeks as I really want to preserve my fertility.
I am currently breastfeeding and have been told to stop as I won't be able to care for the baby after .
I have no idea how we will be able to manage the baby care after . My health visitor said to get a child minder but I'm mat leave and not loaded . The whole thing makes me So sad. This year was supposed to be about him

 

November 2015 abnormal smear followed by colposcopy and loop cone biopsy

December 2015 CC 1b1 diagnosed 

February 2016 Radical Trachelectomy

March 2016 told microscopic cancer cells were found in one lymph node - recommended further treatment (chemo/radio)

April 2016 froze 9 embryos. Considering potential surrogacy

June 2016 5 chemo 28 radiotherapy . Not easy esp with a baby who wakes early but im getting better 

 

Helsweld

Hi Hon. Sorry for your diagnosis. Please carry on with the breastfeeding. Do you know when the surgery will happen? I would start expressing and freezing your milk now, even once during the night as your hormone prolactin which makes the milk is at its highest in the early hours. The hospital where you have the surgery have to, by law, make provision for you if you are feeding...they have to let you keep your baby with you and supply equipment for you during your stay. You will probably be advised not to feed for 24 hours after the op because of the anaesthetic drugs, but that is up to you. You will probably need some help for a little while after the op too. Good luck x ps, I am a midwife and breastfeeding is my 'thing' xxx

Mad_muskrat

Hello, I don't have anything else to add but just wanted to send you a big hug :)

I have a 2 yr old and had a radical hysterectomy with removal of ovaries last week ( trachelectomy not an option for me).

I'm not sure but you may be able to apply for financial support for childcare I think Macmillan website might have some info?

Good luck and take care

x

P.s. Don't ever feel alone the women on this forum are amazing and so supportive x x

GeorgiePie

Looks like we are in the same boat Henrah. My little girl is 5 months. I'm breastfeeding too. I found out this morning I have cervical cancer - hopefully stage 1. Two to three week wait on my MRI.... Just wanted to tell you know I hopefully can understand what you are dealing with x

Henrah

Thank you everyone . GeorgiePie and Madmasket, I'm really sorry. Its hard to take on board isn't it ? GeorgiePie, have you found out any more info on yours ?

Madmasket, how big was your Tumor? How did you manage the surgery etc.

I have no physical symptoms and so think I'm struggling to accept this is true in a way. I want it to go away, be white washed, so I can get on with life how it was 'meant to be.' But that will never be the case I suppose ...

im now concerned that there seems to be an increased risk of the cancer returning with a trachelectomy rather than hysterectomy so am a bit of a loss. 

tbought ans hugs do you all.

does anyone have any tips for staying positive Yet realistic ? I'm having trouble sleeping xx

 

 

November 2015 abnormal smear followed by colposcopy and loop cone biopsy

December 2015 CC 1b1 diagnosed 

February 2016 Radical Trachelectomy

March 2016 told microscopic cancer cells were found in one lymph node - recommended further treatment (chemo/radio)

April 2016 froze 9 embryos. Considering potential surrogacy

June 2016 5 chemo 28 radiotherapy . Not easy esp with a baby who wakes early but im getting better 

 

Mad_muskrat

Hi Henrah,

They said my tumour was about 3cm. it was adenosquamous so was on the inside as well as outside of cervix so radical hysterectomy was recommended. I had operation done laparoscopically so although I'm still sore I am already pretty mobile (though not allowed to pick up 2yr old daughter for 6 weeks whilst healing).

if I'm honest I still don't think it has really sunk in, from diagnosis to operation was only about 6 weeks and I don't think that's enough time to process something so big and scary as cancer.  With this in mind I totally understand how it's hard to stay positive, what kept me going was knowing I had my daughter to look after and I wanted to keep day to day life as normal for her as possible. I do occasionally have angry moments when it doesn't seem fair that this has happened to me, but at the same time, I'm alive, hopefully cancer free (will find out next week) and able to get on with raising my daughter.

I thought I had read somewhere that recurrence rates of hysterectomy vs trachelectomy are similar as long as you fit the criteria, but this could be something to ask your consultant about. This article might be some help:http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3651944/

I'm sure they wouldn't recommend a course of treatment if they thought the cancer was a lot more likely to return as a result.

Hope this helps

x

 

Traveler81

Hello,

So sorry to hear that you are going through this.... I would feel the same if I was in your shoes. Did you have cervical changes before pregnancy or was nothing abnormal showing until now? Best of luck to you.

12 January 2016 - Results: High Grade Abnormal Cells / HPV+

25 January 2016 - Colposcopy/Biopsy

2 February 2016 - Biopsy showed no dysplasia/no hpv changes (although Dr. saw via Colpo). Inflammation of cervix/polyps. HPV16 positive. Repeat pap in 12 months. 

February/March 2017 - All Clear. Normal Pap. HPV Neg. 

rohitgarg4411
rohitgarg4411's picture

I think Macmillan website might have some info?

More Information

Moving forward from a cancer dignosis