(0)
0 Items £0.00

Advice needed

9 posts / 0 new
Last post
Amie Hewitt
Advice needed
  1. Hey, I had my cervical smear on 10th March. Received my results on March 20th to say I tested positive for hpv and have high grade severe dyskarosis. Was called in for coloscopy on 30th March. They performed lletz in 2 areas and took biopsy. Was told results would be 4 weeks and recalled for smear test in 6 months. However today I received a call from the hospital after a week to say I needed to see a consultant to discuss my results and a treatment plan and an appointment was made for this wednesday...this is my 6th smear and all previous been normal. Would should I expect? Is this normal? Slightly anxious about it and what's happening xx
rufus

Hi Amie,

You are in the right place to discuss worries.  Everyone here has had waiting and worrying so we know how it feels.  Try to remember the positives: you have kept up with your regular smear tests so the change is recent, the appointment is tomorrow so you don't have long to wait and treatment could be low level.

Keep us updated and stay safe

Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3. Chemo rads planned. 

Amie Hewitt
  • Hi...was diagnosed with the dreaded C! Been for mri today now awaiting the team meeting to discuss results and plan. Looking at hysterectomy and possible radiotherapy dependant on mri. Have now been allocated cancer nurse! Alot to take in at the moment xxx

     

rufus

Hi Amie,

I'm sorry you have had a difficult few days.  The c word is scary and waiting for results is really hard (a constant theme on this site). I think you go through a process of ups and downs and looking at all the information you can find. I found that when you get the MDT results you find a level of calm.  I don't think you can skip the emotional rollercoaster and to a certain extent I think you need to go with it. I found this site really useful (especially using the search function) and spoke to a small group of friends. For my own sanity I did not tell anyone (including my parents) who I thought would find it difficult to cope with, you need to look after yourself right now.  We are all here for you and have a level of understanding of what you are going through. 
I found work a useful distraction, and by the time I had my mdt results I was able to honestly say to them 'I have cancer but I am not ill, or overly emotional about it, I can work from home until my surgery'. And it continues to give me a sense of normality in a crazy situation. 
You will get through this. 
Much love and big hugs

Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3. Chemo rads planned. 

Amie Hewitt

Hi hun. Thank you...It's certainly a rollercoaster I have managed not to cry today! I'm hoping they will discuss on 21st April as the MRI Thursday was too late for Tuesday coming. The anxiety of the unknown is high...over thinking everything. Every pain, every backache, etc etc. I've noticed symptoms of something I.e change to periods, change in bowl habits, lower right pain, tiredness and low back ache  since September but Been back and forth for bloods, scans internals and nothing showed up apart from an infection! I've also had increased watery discharge and a distinctive smell for a couple of months but since colposcopy it's increased drastically! Then routine smear and bang you have cancer! Also had issues with my vulva for 14 years and after many years back and forth with docs and hospital was recently diagnosed with a condition which can cause cancer of the vulva (my symptoms are similar to vulva cancer ) so now in mental overdrive and have convinced myself I have more than 1 type of cancer. I was already on meds for anxiety and low mood spoke to doctor they have upped the doseage and given me something for night time to try and sleep better. I'm a single mum, no family but a great friendship group but I can't see anyone at the moment. Stuck at home with my kids and my own thoughts! And trying to work full time! Trying to stay calm and positive. Hope you are ok xx

rufus

Hi amie,

Things will definitely get better. It is easy to become hypersensitive and feel things that aren't there. Without going into tmi territory, I managed to convince myself that I must be stage 4. When they told me I was stage 1 I was so relieved. I hadn't had a smear for 13 years so I didn't know how long it might have been growing.  Keep in mind that you were up to date with smears so that should help. 
Your mri will pick up any gyni problems so it should put your mind at rest about any other issues.  
The waiting is hard but not endless.
You will get there and you are not alone. 
Big hugs. Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3. Chemo rads planned. 

55

Hi Amie how did you get on at your appointment today? 

Hope you are getting lots of support

A

1st ever abnormal smear hpv & severe high grade dyskaryosis August 2019 lletz September 2019 polyp & nabothian cyst found Results hpv & mild cell changes polyp innocent Repeat colposcopy Dec 2019 test of cure January 2020 results of test of cure; no high risk HPV present , check up colposcopy appointment in June because of the discrepancy between initial smear & lletz result
Amie Hewitt

Hi...was diagnosed with the dreaded C! Been for mri today now awaiting the team meeting to discuss results and plan. Looking at hysterectomy and possible radiotherapy dependant on mri. Have now been allocated cancer nurse! Alot to take in at the moment xxx

55

Hi Amie

Sorry to hear you have had to hear such difficult news. I have just read the post from Rufus and her advice is really sound. Waiting for results is really tough. Sending you virtual hugs.

A

1st ever abnormal smear hpv & severe high grade dyskaryosis August 2019 lletz September 2019 polyp & nabothian cyst found Results hpv & mild cell changes polyp innocent Repeat colposcopy Dec 2019 test of cure January 2020 results of test of cure; no high risk HPV present , check up colposcopy appointment in June because of the discrepancy between initial smear & lletz result

More Information

Abnormal cervical cells and treatment

Read about HPV