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Biopsy worries- can the consultant tell without results

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Charlotte290
Biopsy worries- can the consultant tell without results

I went for a smear test on Friday (total wimp... so when the nurse said she could see a lump- she briefly left the room to get the Dr, I passed out and fell off the raised bed!)

fretted all weekend- so went for a private coloscopy today. She was very concerned, took a few bits for biopsy, but seemed convinced that it's cancer without having the results back. Other than bleeding after intercourse twice, I haven't really had any symptoms... but now have excruciating back pain- which could be the fainting fall (!) the stress I'm feeling, or something altogether more sinister. 
I am 34- I have 4 beautiful children and STUPIDLY missed many smear appointments so was more than overdue. Feel so angry with myself for putting those letters aside to book when I'm 'less busy'

What I am asking is this- has anyone else had a diagnosis just from the consultant seeing it- she didn't say for sure- but she did say that she is very worried that it is cancer. I am going to call tomorrow to book an MRI too- just anything to either put my mind at rest, or crack on with whatever it is I'm facing I guess. 

I think in the back of my mind; I am so hopeful that she is wrong, that I am the anomaly- please tell me someone else has proved a consultant wrong like this??! Clutching at straws I know... 

I suffer badly with anxiety- and my biggest fear is doctors and hospitals, so to say that I am worried is an understatement. Can't sleep, can't eat, just don't know what to do with myself really. Sorry for the dragged out post! 

07.08.20 diagnosed with squamous cell 1b2 cc

16.09.20 radical hysterectomy 

LaurieBeth

I am so sorry that this has happened to you.  There will be no way to know for sure what you have going on until you have the pathology back. That said, many women on this forum have been told at their smears that they have cancer.  Consultants often know what they are looking at from their experience.  And, many women on this forum (me included once) have been told they had cancer to learn they do not.  I wish I could give you some sort of answer to calm your racing brain, but the reality is you will just have to wait for the information.

I have terrible health related anxiety as well, and the waiting absolutely drove me to insanity.  The one thing I would definitely say is to try to keep yourself busy.  Give yourself a few minutes to worry and then go take a walk or listen to music or call a friend or play with your children. Nothing can be gained from worrying.  Once diagnosed I also started taking medication for anxiety, and it was a real life saver as far as coping skills.

I would also say to give yourself grade on missing smears.  It happens.  Moms always take care of their kids before they take care of themselves and life gets busy and away from us.  The important thing is that you have found the problem now and can resolve it.  And in the worst case scenario...if you do have cervical cancer, it is very treatable.  This forum is a testament to that.

Best of luck.  I am sending all my best calming energy your way.

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor suggest hysterectomy

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Diagnosed with invasice cervical cancer, no clear margins

5/12/20Radical Hysterectomy, Lymph node dissection, ovarian transposition-Staged 1B1-no further treatment needed

Follow up 9/28/20

 

 

Charlotte290

Thank you Laurie- 

Gosh you've been through the mill! It's just so scary, especially when you are absolutely petrified of needles!!! I will jump for joy if the consultant is wrong, I don't think she is for one second- but that will be the best feeling imaginable!! 
Feel a bit.:: why me!!! I'm sure everyone does- just such a nightmare I may be facing, scary scary times. 

Well done you for getting through it- I just need to find some brave pills somewhere!! 

Thank you for the support x

07.08.20 diagnosed with squamous cell 1b2 cc

16.09.20 radical hysterectomy 

LaurieBeth

I promise you--you will get through it.  I remember thinking that I could not possibly walk into my doctor's office when i knew she was about to tell me I had cancer.  But I did.  I thought there was no way I would make it in the door or through the first meeting with an oncologist.  Me! With an oncologist?  Unthinkable.  But, I did it.  I seriously thought I would die of heart attack having my scan, but I did it.  Don't even get me started on my surgery....but I did that, too.  None of us feel brave.  We just summon up the courage to do the next thing on this list and then the next one.  One day, one task at a time.  Say why me and have a pity party all you want---it IS unfair.  But then, just handle the next thing.  You have got this.  I know you do.  Sending virtual brave pills.

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor suggest hysterectomy

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Diagnosed with invasice cervical cancer, no clear margins

5/12/20Radical Hysterectomy, Lymph node dissection, ovarian transposition-Staged 1B1-no further treatment needed

Follow up 9/28/20

 

 

FeelingTheFear

Really nicely summed up by lauriebeth

People endlessly remark about the braveness required to deal with this whole process but that's not my experience at all. Its just jumping through one hoop and then the next hoop. A big part of it is staying focused on what comes next and not what might come days and weeks and months and years down the line. Future You will deal with that. You just deal with today ;-) 

xXx

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1 (1b2 on new FIGO)

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up. NED!

Charlotte290

Thank you both: 

I had my MRI and chest X-ray yesterday- and was strangely fine about it... mixture of anxiety meds, strong cocodamol and good old adrenaline!!

The mind is such a powerful thing- the difference in me yesterday was incredible- I've fainted at every blood test and injection I've ever had... yesterday... 2 cannulas... wasn't really bothered! Think my mind has accepted that needles are to be my 'cure' not my enemy. 
I am still worried as so many signs that it is advanced- the waiting is most certainly the worst bit- and am in constant pain... which means it's never not in my thoughts. 
The only positive for my staging is that I will be completely elated to hear I have cancer- as long as it's a low number... who ever thought they would say that!! 
It is so difficult not to piece together little ailments you've had for years and put them all together to make the worst possible outcome! 

Thank you for always being so supportive x

07.08.20 diagnosed with squamous cell 1b2 cc

16.09.20 radical hysterectomy 

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