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Colposcopy on Tuesday! Scared 😟

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Llb89xx
Colposcopy on Tuesday! Scared 😟

I have received a phone call this morning to book my colposcopy as they are now starting the clinics again. I had a colposcopy last year so I know the procedure. my results came back as CIN 1 and HPV positive and the watch and wait approach.

It came back the same in March hence why I now have another colposcopy appointment. 
what do they normally do with mild results still there after 1 year? Are they likely to treat with LLetz? Or watch and wait for another year?

If so what is it like? I'm petrified of the anaesthetic needle more than anything and apparently it can knock you sick and dizzy. That's worrying me as I will have to drive there alone and will have to drive myself home. 

 

  • Jan 19 - smear test

Feb 19 - low grade dyskaryosis and positive HPV

March 19 - colposcopy and punch biopsy - awaiting results

April 19 biopsy confirmed CIN 1 and to have a repeat smear in 1 year

Feb 20 - repeat smear

April 20 - low grade dyskaryosis and hpv positive again! 

June 20 - colposcopy booked

 

FeelingTheFear

Hi llb89 

I had high grade dyskaryosis so I dont know what the treatment plan would be for you, as it was evident I was going to need treatment as soon as I had the smear result 

Just wanted to tell you a bit about my LLETZ experience, which I was terrified about but it was actually fine. The anaesthetic needle does sting, it is bearable, it's just an injection and it's just the same as if you've ever had one at the dentist. 

For me personally I did not really experience sickness, dizziness, or heart racing from the adrenaline in the injection. I had been given some lorazepam by my GP which may have reduced the effect of the adrenaline, as I have had that from local anaesthetic injection before but it comes and goes really fast. Just breathe through it. I focused on breathing throughout the process which kept me calm and feeling safe. 

As for driving I chose to take a taxi there and back as I would not have been able to drive after the lorazepam but even still I wouldnt have liked to drive after the procedure. It was a stressful experience for me and although it was perfectly tolerable and nothing as bad I thought, I was glad to just relax once it was over. 

With any colposcopy appointment I would recommend a couple of paracetamol an hour before and that may help with any cramping feelings afterwards. But dont fear the injection, by the time you breathe in, the sting has gone, it's that quick.

All the best xXx

Feb 2020: smear = high grade dyskariosis

March 2020: biopsy = CIN3

April 2020: lletz = cervical cancer stage 1b1

May 2020: radical hysterectomy and lymphadenectomy. NED!

September 2020: first follow up

Julia9054

Hi

Hard to know whether they will watch and wait or treat - probably depends on what it looks like as well as your age and if you have had children.

I had lletz at my first colposcopy as my smear result was high grade severe. The anaesthetic did not make me sick or dizzy but did make my heart race. I knew what was causing it so that was ok. I went by myself (just my personal preference for dealing with medical stuff) and drove myself there and back. I felt like a huge weight had been lifted. I had intended to put myself to bed that afternoon and have a good sleep but the adrenaline was still in my system so I was tired and wired at the same time! I took some paracetamol before I went to bed that night but could probably have done without. My vulva felt a bit bruised - that was the only pain - so I drank plenty of water for the rest of the day in case I came down with cystitis. I was knackered for a couple of days afterwards - probably due to emotional trauma rather than physical. The whole thing - including recovery - went much better than I expected.

Hope yours goes ok

Jx 

Lil1234

Hi 

I recently had a colposcopy so wasn't able to take anybody with me. My partner dropped me off and picked me up. The needle stung for no longer than a few seconds. I did feel abit unsteady on my feet for maybe 10 minutes after but I had gas and air so I think that probably played a part. I'd built myself up that the whole thing was going to be dreadful but it wasn't at all. I had the Lletz and  I didn't feel a thing after the injection. My heart rate did increase slightly but I'm really glad I read this on here before So I expected it. The worrying prior to it was worse than having it done. 
Hope this has helped put your mind at rest.

xx

July 2014 - borderline changes hpv positive 

August 2014 - colposcopy - CIN1 - watch and wait follow up in a year

February 2016 - normal smear

February 2017 - normal smear - moved back to 3 years.

February 2020- high grade moderate and hpv

April 2020 - colposcopy - CIN 2 and 3

Southofthelake
Southofthelake's picture

For me, the colposcopy itself was not that bad, as you say, you already had one last year. It was when they told me that they wanted to do stick a needle in my cervix that the normal story changed. Not long before I had attempted to get a IUD inserted and it was so painful (due likely to the cancer, but we didn't know that at the time) it left me traumatised. So when I was told about the needle I turned white and started crying. lol. So ultimately my lletz was performed under general anesthetic. If it is something that terrifies you then you can absolutely ask if they will do the same for you. But if you think you would like to be done with it quickly that might not be the best thing to do.

October 2019 - smear test

November 2019 - results back; hpv with severe dyskaryosis, colposcopy organised.

November 2019 - colposcopy biopsy taken - confirmed abnormal cells

December 2019 - lletz performed

Jan 2020 - called in: confirmed I have cancer

Tests run through Jan and Feb. During this time went through fertility treatment; 5 eggs frozen.

End Feb - confirmed stage 2b CC

Treatment starts March - 28 external radio/5 chemo/4 brachy

Only sat 3 chemo after developing tinnitus

April 25th - finished brachytherapy

July 2020 - awaiting MRI

LaurieBeth

I had two Lietz procedures but both were under general anesthesia. I just wanted to send you my best wishes for your procedure.

LBA 

11/18Abnormal Pap CINIII

12/18Colpo confirmsCINIII

12/18Cold Knife cone biopsy confirms CiNIII, clear margins-doctor suggest hysterectomy

1/19 second opinion-close monitoring appropriate

5/19, 8/19 paps and colpos CIN I

2/20 Pap reveals CIN III

3/17/20 Lietz under GA

3/20/20 Diagnosed with invasice cervical cancer, no clear margins

5/12/20Radical Hysterectomy, Lymph node dissection, ovarian transposition-Staged 1B1-no further treatment needed

Follow up 9/28/20

 

 

Llb89xx

Thank you for all your replies! 
I guess I will just have to wait and see what the outcome is. I think the worry now is worse than the actual procedure will be. Deep down I'm hoping they will watch and wait for another year as I'm only 30 and don't currently have any children. 

I will be going directly from work so I will have to drive as it's too far to take a taxi to the hospital. Just hoping I'm okay to drive home after 😕

 

  • Jan 19 - smear test

Feb 19 - low grade dyskaryosis and positive HPV

March 19 - colposcopy and punch biopsy - awaiting results

April 19 biopsy confirmed CIN 1 and to have a repeat smear in 1 year

Feb 20 - repeat smear

April 20 - low grade dyskaryosis and hpv positive again! 

June 20 - colposcopy booked

 

55

Hello 

I have a follow up colposcopy on Tuesday too! When I had my lletz I was told beforehand that it would happen and what to expect - mine was pre lockdown. Would you be able to phone the clinic tomorrow to ask whether they are planning a lletz? I hope it goes well for you. I have started stressing about my appointment - mainly how I will manage the logistics on the day - I want to arrive fairly early to give myself time to park but not so early that I will be desperate for the loo before it's time for me to go in!! I phoned my CNS last week to ask what to expect with the lockdown & she said there is still a loo for patients separate from staff & only to come in shortly before my appointment so that I don't have to sit in the waiting room. I've been working from home & haven't driven as far as the hospital for ages so went for a longer drive today to get back in practice. Apart from all that there is still the fear of what they might find - they think it may have been a false alarm because of the menopause so will see if the HRT I am now on will make a difference. Managing the stress of tests and waiting for results is the biggest part of all this! I live alone & have too much time to think about it! Thanks for "listening"

A

1st ever abnormal smear hpv & severe high grade dyskaryosis August 2019 lletz September 2019 polyp & nabothian cyst found Results hpv & mild cell changes polyp innocent Repeat colposcopy Dec 2019 test of cure January 2020 results of test of cure; no high risk HPV present , check up colposcopy appointment in June because of the discrepancy between initial smear & lletz result - June 2020 repeat colposcopy & pap - all clear - discharged from hospital - next smear in 3 yrs

Cloud77

February last year I had abnormal cells found, low grade like yours. Did colposcopy and they biopsy showed only inflammation and no abnormal cells. Came back for another smear in March 2020 and this time they found high grade dyskariosis (moderate) and got another colposcopy in April. I was panicking and blaming the NHS thinking they had missed the cells the first colposcopy and it had now gone a grade up. Well, a lovely consultant decided to perform LLTEZ there and then and, I was not mentally prepared for it at all, it was fine. Yes it wasn't very pleasant and the injection stung a bit and that was it. I didn't get a heart race from the adrenaline but my legs shook like crazy. It was actually funny. The procedure is very quick like seconds. It takes longer to set up the machine than to actually perform the procedure. 
I bled for two weeks (very light) and then some discharge for another 4 weeks and then it all finished. The result came back and it was mild dyskariosis (CIN1). I am glad they got rid of it, to be honest. They don't normally touch mild dyskariosis but I'm glad they did mine. 
please do not worry to much. It is not a bad procedure. It is not painful. You are allowed to be scared but take a deep breath and it will be over very quick. Good luck xx

55

Hi Lib89

How did you get on today? Hope your appointment went well.

A

1st ever abnormal smear hpv & severe high grade dyskaryosis August 2019 lletz September 2019 polyp & nabothian cyst found Results hpv & mild cell changes polyp innocent Repeat colposcopy Dec 2019 test of cure January 2020 results of test of cure; no high risk HPV present , check up colposcopy appointment in June because of the discrepancy between initial smear & lletz result - June 2020 repeat colposcopy & pap - all clear - discharged from hospital - next smear in 3 yrs

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