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I'm completely new to this forum so apologies if my understanding isn't very good.
Just to confirm I'm 39 and had the results of my routine smear at the end of July which confirmed I tested positive for HPV (I freaked out as I'd never heard of this and have been with my husband for 20 years) and also confirmed I had abnormal cells in my cervix. A colposcopy was booked for me two weeks later.
I attended the colposcopy and the consultant explained my cervical changes were severe CGIN changes which are more complex to detect/treat. I had a LEETZ treatment that day along with a womb biopsy.
I received the results letter following the colposcopy in mid August the letter confirmed there was no evidence of cancer or serious disease but that my results would be discussed at their next MDT meeting.
Three days later I received a further letter confirming the results contained CGIN which are non-cancerous but potentially pre-cancerous cells and that I need another smal procedure similar to the one I'd already had. An appointment was made for 23/09.
I attended the appointment expecting to have another small LEETZ but before the consultant performed it he again said I had CGIN changes and drew me some pictures explaining they were higher up, glandular and hard to detect/treat. He then asked me if I wanted children and suggested a hysterectomy may be the best option if I didn't. This obviously came as a massive shock as the letter said I'd just need another small procedure similar to the one I'd had. He could see I was shocked and a little upset and said he'd be happy to perform the LEETZ again that day first to which I agreed.
Unfortunately he couldn't do the LEETZ under local he had a look and said it wouldn't be safe to do and said I'd need a general. We then went back into the room and he said he could either do the procedure I was going to have under general or a total laparoscopic hysterectomy and was trying to suggest the hysterectomy may be the better option, he said not to make the decision then and to go away and think about it.
I left in complete shock and have some questions as I'm a little confused.
I have never missed a smear, does anyone know how I can go from normal results for the last 5 smears to severe CGIN changes? (the consultant didn't really answer this)
Is a hysterectomy the best option for severe CGIN cell changes? Has anyone taken this route?
I've seen so many stories on here with people talking about 'margins' or 'clear margins' what does this mean? None of my letters/results mention anything about margins and the consultant hasn't either the only thing they've mentioned is the sample containing CGIN.
In addition to this I've also been experiencing a pressure feeling in my bottom/tailbone area. This started before I had the first colposcopy. I went to my GP who didn't seem concerned and gave me a urine test to do. I also mentioned it to the consultant at the second colposcopy and he again didn't really seem bothered by it. The pressure feeling is still there in my bottom, there's no pain but I do get occasional itchiness. I'm wondering if it's anxiety related but I'm just not sure what to do.
I'm feeling very confused and anxious, I'm going to have the hysterectomy if that's what the expert thinks is the best option, but do you guys think my GP could help with explaining everything to me in more detail to make it clearer? The consultant is lovely but I found him very matter of fact and also very difficult to understand with a mask on.
So so sorry for the essay. Thanks for taking the time to read/respond.