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High Grade CGIN

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Aa1
High Grade CGIN

just looking for anyone with any similar stories to tell.

 

after 7 years or so of intermittent bleeding / spotting / post coiltal bleeding my go referred me to gynae.

 

he said he could see my issue straight away and basically said a collection of cells too near the surface causing easy bleeding

 

he had a go at using silver nitrate but said he could tell it wasn’t working so would refer me on for a colposcopy.  Due to holidays etc I waited a little while for the appt (but figured after 7/8 years a few weeks made no Difference) letter of refer mentioned cold coagulation 

 

AT colposcopy saw a diff dr who saidhe wasn’t willing to do cold colposcopy as he could see something and would take a biopsy.

 

biopsy results came back showing high grade cgin and said my case would be referred to MDT meeting on the 4th June and I would be advised of the next step . Letter also enclosed an appt for 18th June. I rang the clinic as I heard nothing , only to be told they’d decided to not discuss my case until after I’d had a Lletz on the 18th.

 The nurse I spoke to said that I’d probably be discussed in julys meeting but my Lletz leaflet says results take 6/8 weeks so working on that theory I’d not be discussed till August!

 

my results said no invasive malignancy found?

 

has anyone had a cgin result and then be told later it’s cancer ??  Would the original biopsy have picked up on anything more than cGIN?

I’ve had regular smears since I was first called (3 yearly) last one 2 years ago (never heard so I assumed clear!)

thanks

 

Ruby_marie

Hi, I'm in a very similar situation to you with CGIN. I had an abnormal smear, and reffered for a colposcopy, and they did a LLETZ there and then under Local. They discussed my results 2 weeks later at their MDT and as I had no clear margins they said they would do another LLETZ under general which was done that same week.

So now I'm in the waiting game again. CC hasn't been mentioned at all so I'm hopeful that it hasn't progressed but I guess we won't know for sure until the results have come back. I'm sure if they find anything untoward they will let you know a lot sooner that 6-8 weeks. 

There also doesn't seem to be as much info out there on CGIN as there does CIN does there? This forum has been a godsend in trying to understand what's going on!!

 

All the best xx

 

 

4/4/19 - Smear

8/5/19 - letter stating CGIN. LLETZ same day under LA

4/6/19 - letter stating no clear margins. LLETZ under GA booked

6/6/19-LLETZ under GA

24/6/19-letter stating no CGIN, but HPV changes still present. Follow up smear in 6 months. 

Aa1

See this is the bit I don’t understand first drvsaid straight away it was easily sorted and did the silver nitrate (but knew instantly it wasn’t working )

second dr looks at colposcopy and said he thinks my cervix looks like someone with an abnormal smear results (which I’ve never had)

 

but everyone else’s story they’ve had a Lletz at their first colposcopy... so why didn’t I?

everything I’ve read said all cgin cases are discussed at an MDT ... but although I was told mine would be it wasn’t it was decided to wait until after the Lletz and then discuss me !

 

definately less info and more variety of stories for cgin than cin !

 

i hope your doing ok x

Ruby_marie

I think the LLETZ is only done at the first colposcopy if it is clear which area needs removing. I also think it's normal to wait until after your LLETZ for them to discuss you at the MDT as they need to know what's going on in order to discuss the next step for you.

Do you have a date for your LLETZ yet? Xx

4/4/19 - Smear

8/5/19 - letter stating CGIN. LLETZ same day under LA

4/6/19 - letter stating no clear margins. LLETZ under GA booked

6/6/19-LLETZ under GA

24/6/19-letter stating no CGIN, but HPV changes still present. Follow up smear in 6 months. 

Aa1

Lletz done today .  Not too bad , but cramps now (8 hrs later)

 

consultant said he decided that as my histology showed cgin and hed noted a “frilly cervix” that he’d just crack on and take it out.

 

he seemed pretty sure no cancer present but obviously can’t confirm.

 

hes warned me he went quite deep so to expect bleeding for a week or so ... results in 4/6 weeks

More Information

Abnormal cervical cells and treatment

Read about HPV