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Not asking any questions of anybody. Just wanted to tell my story for any women in the same position, as CGIN is less common and there is less information. However if you feel you have something to contribute to the thread or want to ask me a question please feel free to do so.
My partner and I were trying to conceive; undergoing fertility treatment with Letrozole. On the 12/12/20 I went for a smear test. I got the results of the smear test on the 12/01/21 when my GP surgery called me and told me they suspected I may have cancer and were sending me for a colposcopy. That they recommended I attend as I would need to have cells removed.
I spent the evening worrying about the possibility of cancer and then phoned my GP surgery in the morning asking them to clarify my smear results. The Ancillary Nurse Practitioner called me back and reassured me that the cells were pre cancerous but that I did have Cervical Glandular Intra epithelial Neoplasia (CGIN) and again that it was important to attend my colposcopy appointment.
I received the letter through the post inciting me to my colposcopy appointment on the 26/01/21. I booked the day off work and made sure my partner wss also free to take me and waited nervously. On the 25th, the day before my appointment I got a phone call from a private number. They had cancelled my appointment due to staffing issues and didn't know when they would next get me in. I expressed my concern that it would not be withing the 2 week wait period and the lady reassured me they would still get me in within the 2 week wait.
The following morning I had a call from the clinic asking me to come in the next day.
On the day of my appointment I got up and sorted an early morning urine sample as requested. Once at the hospital I was surprised at the number of ladies in the waiting area given the pandemic situation. After being there around 20 mins I was asked into a side room to answer some questions; name, address, date of birth, urine sample submitted. I then returned to the waiting area to find no chairs. I said I didn't mind standing but the receptionist obviously took umbrance to me making the clinic look untidy and ultimately found me a chair.
A good hour later (they were running late as the nurses are running two clinics at 2 hospitals and one of their cars broke down) I was invited in to the colposcopy room. The procedure was explained to me and diagrams drawn. I was asked whether I had children. They already knew I was under fertility treatment and the consultant explained he would do what he could to minimise the damage to my cervix, but also that in some countries like France, their advice would be to go to full hysterectomy for the cell changes I have. He said he would use a size 12 loop and remove tissue to around 1cm depth. I was surprised they were not using a needle lettz and he explained that he thought he wojld be able to remove enough glandular cells with the loop by going between 7mm and 1cm depth. He also mentioned that sometimes the histology comes back with clear margins and all is fine, sometimes he will need to invite people back for a further procedure and sometimes they will find cancerous cells.
To prepare for the procedure I removed my trousers and pants and donned a lovely hospital gown. I was allowed to take my phone into the procedure room. Sat down on the bed, legs up in the stirrups, digital examination and palpatation, presumably to check for any pain or obvious abnormalities. Speculum was then inserted and acetic acid wiped across my cervix followed by iodine. A cold patch was attached to my leg for my safety apparently (not really sure what this is for but it's not unpleasant) I then had anesthetic injected in two different places in my cervix which stung a little but the nurse kindly held my hand (something I wasn't expecting due to covid but was exceptionally grateful for) LLETZ procedure was then carried out following a brief pause for the anesthetic to work properly. I honestly didn't feel a lot. They then said they would scab the wound. I presume this means cauterise. I did feel a weird pulling pressure whilst this was carried out. It was an odd sensation but not painful, just uncomfortable.
I was then asked to remain lying for a few minutes. I took this opportunity to have a chat with the nurse and retrieve my phone and message the other half to let him know it was over and done with. I was then allowed to sit up for a couple of minutes before bekng allowed to stand and return to my clothes. The consultant was dictating his letter as I was dressing and I overheard him saying mild endocervical changes visible. He also told me that as I have CGIN that the hystology will be discussed at an MDT meeting. I should know the results in around 4 weeks.