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lletz confirmed cin 3 but incomplete removal of cells

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Melissafaye91
lletz confirmed cin 3 but incomplete removal of cells

Hi 

Today I received my results letter from my LLETZ and it said even though it says there has been incomplete removal, they should have been destroyed when my cervix was cortorised and it works as a double treatment. 

I have been discharged back to my GP for a follow up smear in 6 months  time. 

 

I can't help but still feel scared and not reassured. I rang up the desk to talk about it and I said but how on earth do you know they're not still there and she said because it normally removes them and I'm just still worried. 

I feel like this nightmare is never going to end. 

 

Sunflower19

Hi Melissa,

sorry to hear that you haven't had clear margins. I too can resonate, in October I was diagnosed with stage 1a1 cervical cancer, the cancer was teeny tiny in amongst some CIN 2 and 3. I had to have a second LLETZ as they told me that I didn't have clear margins. Even after the second LLETZ they said I didn't have clear margins and was told the same as you that the diathermy at the end will get rid of any residual cells however...I went for my 6 month colposcopy last week and when they checked the area where it was left over, no residual cells and were found. So I hope that reassures you. I was also told that when you get a wound in that area which you would have from the LLETZ your immune system will get to work to try and heal that wound and also try and get rid of any other pathogens and cell errors like CIN 2/3 and HPV. Now I can't say for definte that you won't have cells when you go back but be reassured you have two defences working for you at the moment, the cauterising and your immune system :)  Hayley 

Melissafaye91

Thank you hayley. It does help I just think 6 months is an awfully long time. It's all very scary to me. I find it scary how fast the progession is too. I hope its the end of it for you now and wish you all the best for the future x

Melissafaye91

Sorry hayley, my letter didn't state about clear or unclear margins, it stated that it was incomplete on ectocervical margin.. But didn't mention any others. Just that the cortorised area should get rid of any left over. 

Does this mean the other margins were clear? I'm confused as to what it means. I'm going to ring back again tomorrow. 

Sunflower19

Hi Melissa,

Ectocervical Margins are the cells on the outside of the cervix so the bit they cut away. Endocervical margins are the bit where the cells change and the way into the womb (for want of a better description) I'd check with your clinic but it sounds like the other margins were clear, you'd only get margins deeper into the tissue if it had become an invasive cancer as that's the way it travels and turns into a tumour or if you had abnormal cells in the endicervicsk canal which is much rarer I believe.

It is really scary so I can completly resonate and it's not something I've found easy to come to terms with but, you're under 6 monthly surveillance now which is good but I felt the same way and asked why I wasn't going to be seen sooner. My cell changes progressed quickly too, I went from normal to cancer in 3 years 10 months as I left my screening 10 months late. But that's not the norm and most cancers take a lot longer to progress. The best thing to do is do all you can to look after yourself to give your immune system the best chance on getting rid of the virus and any further cell changes. I tell myself whilst that's may or may not work it's the only thing I am able to control and if anything does come back then atleast I've done everything possible to look after myself. If you ever need to chat please feel free to message me, I found talking to people who get it helped me a lot. As those who don't say some very silly things which makes you feel worse. 

I hope that helps, I think the uncertainty won't go away as these procedures are traumatic and the system feels clunky, slow and like these appointments are such a long way away but know there's people on here who can support :) 

 

Hayley 

Melissafaye91

Thank you for replying hayley. 

Honestly I have a bad feeling in the pit of my stomach about it all. If there's some left over I don't get why they would discharge me back to my GP for test of cure when they have even told me themselves that smears aren't very effective as a diagnostic tool only for finding hpv. I know they will get me back if they find it is still there though. I honestly just feel like telling them to whip it all away. I dunno I just have a feeling this is not going to be the end of it. I suffer from health anxiety as it is and they guessed cin 1 when they found it cos I was pregnant so didn't biopsy and they got that totally wrong so I've completely lost trust in them. This ruined my pregnancy and now I'm scared it'll ruin my life.

I'll definitely look after myself. That's good advice thank you 

Sunflower19

Hi Melissa,

I had that exact same feeling and was really surprised when it wasn't there last week. I think they will probably say no if you request another treatment, they did with me. If it reassures you, I initially had a biopsy which said I had CIN 1 and it was actually my smear that picked up more severe changes, if it hadn't I wouldn't have had the treatment as CIN 1 tends to be watch and wait and they wouldn't have found my cancer if it wasn't for my smear. Did you get a chance to call them today? Talk through your anxieties with them they get it. Do know that I felt exactly the same as you and your concern is valid as it's a horrible thing to have to go through and all of the uncertainty is unnerving. 

Hayley 

More Information

Abnormal cervical cells and treatment

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