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ive been reading this forum ever since I got my pap results back. Ironically I'm in the medical field as well (orthopedics, no where near GYN), I was in medical school/residency for the last 10 years or so and neglected my routine PAP smears. My last pap was roughly 10 years ago, a traumatic experience to say the least, which was normal.
i was mostly celibate following the pap so figured I was low risk, had some serious boyfriends but I was careful. I got married last year, I've been with my husband for almost 4 years total. We were starting to have the discussion to start a family and I figured I should go get a check up at the OB/Gyn. They did a routine pap, I was told my cervix was friable during the exam and the NP said it was likely stress related.
a week later I got the ASCUS results with HPV 16 and other HR HPV positive. I was devastated, I had no idea, no symptoms whatsoever. I'm 31, so they recommended a colposcopy. Colposcopy was done with ECC (endocervical curettage) and the doctor took 3 cervical biopsies. She said everything looked good, some mild changes she thought may be CIN1. Also mentioned that I have an ectropian. Reassured me all was well and to await the results.
well, I got the results back, the cervical biopsy was positive for adenocarcinoma in situ. The ECC was inconclusive, stated there was scant endocervical tissue to assess but from what they could see, it all seemed normal. I was seeing my own patients when I saw the pathology report and the room started to spin. I quietly finished my day and researched until the cows came home.
i assume the next step is a cone biopsy as AIS can be elusive with a LEEP procedure. I've never had a surgery before, I'm worried that it will come back as invasive, I still want children with my husband, and I work at the hospital I'll likely have my procedure done at, which complicates things more, hoping for anonymity.
My hunch is that the ECC would've been positive for AIS too had there been enough of a sample to check as AIS is glandular. I'm wondering how the cervical biopsy itself was positive for AIS, since there was no mention of CIN. Maybe due to my ectropian, the glandular cells were on the surface of my cervix? Who knows. All I can say is 2020 is at it again. Hoping to get the cone biopsy ASAP and appreciate any insight!
this forum has been amazing, and thank all of you for sharing your stories.
31 years old, married, no kids, USA
9/30/20: first Pap smear in 10 years ASCUS; HPV 16+ and other HR HPV positive
10/22/20: colposcopy and ECC done; gyn Saw mild acetowhite changes, predicted CIN1; took 3 cervical biopsies, mentioned ectropion
10/26/20: cervical biopsy results: High grade endocervical glandular dysplasia (adenocarcinoma in Situ), ECC negative for changes but scant tissue was obtained
10/27/20: referral placed for gyn oncologist
11/4/20: consultation with gyn oncologist
11/19/20: cold knife cone biopsy and repeat ECC
11/23/30: adenocarcinoma in situ and LGSIL removed in cone biopsy, no invasive carcinoma, margins are clear, ECC clear, endocervical biopsy clear!!