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Who else has high-risk HPV-45?

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HpvBeGone
Who else has high-risk HPV-45?

I was diagnosed with HPV-45 in late April and am terrified, since it is a high-risk strain, the third worst genotype to have besides 16 and 18, and supposedly responsible for an aggressive form of adenocarcinoma, which is also harder to detect with regular smears.

I have strong reason to believe I contracted it late last year and am still positive for it now, which means it has been active for almost one full year. I am in my 40s and terrified it will be even more difficult to fight off, thus likely turning into cancer as a result. :'(

Is there anyone else on here who is currently battling HPV-45? For how long so far? Any "survivors" who successfully fought it into dormancy? How long did it take to clear?

Infected with hrHPV-45 since Sep 2015, normal smears so far despite increased risk factors, advised to follow up in 6 months, fingers crossed!

Blackrose23

I have high risk hpv 45 i have recentley had a colposcopy and no anbormality was found. 

july 2016: tested positive for high risk hpv 45 and 68                            25 august: colposcopy showed no cancer or CIN but a small amount of benign squamous metaplasia and a nathobian folicle. 22nd of october: smear came back normal. 

HpvBeGone

That is good news! You must be relieved about that, at least.

I have had a couple of regular smears since finding out, both normal, so was told to come back in 6 months. No need for a colposcopy just yet. However, I have other risk factors for persistence besides my age, so am worried it won't clear. Been taking all kinds of supplements and eating healthy foods to try and clear it quickly, but no luck so far.

If you don't mind me asking, how long have you had it do you think? Are you doing/taking anything special? Did your doctor have anything to say about HPV-45 in particular? Sorry for all of the questions!

Infected with hrHPV-45 since Sep 2015, normal smears so far despite increased risk factors, advised to follow up in 6 months, fingers crossed!

Blackrose23

I am relieved about it yeah, they found a small amount of squamous metaplasia which he said was benign. If you dont mind me asking what other risk factors do you have? Having high risk hpv doesnt mean you will get cancer people can be positve with hpv 16 18 and 45 and not get cancer.. i know it can be difficult to remember that at times. I dont know how long i have had it i would say about 4 years. I am taking folic acid as i have heard that can help boost your immune system. The consultant who did the colposcopy said 45 is not as worrying as 16 or 18. 

july 2016: tested positive for high risk hpv 45 and 68                            25 august: colposcopy showed no cancer or CIN but a small amount of benign squamous metaplasia and a nathobian folicle. 22nd of october: smear came back normal. 

HpvBeGone

Besides my age, I was a heavy smoker (bad, I know, but my only vice!) until just a few months ago. Quit cold turkey soon after learning of my HPV diagnosis, but I'm sure that my former smoking sets me back compared to someone who has never smoked, plus I was smoking during the first few months of HPV infection, since I didn't know. There's also another issue, so yeah, not ideal.

I started taking a multivitamin, fish oil, vitamin C, lutein, lycopene and astragalus, plus occasional folic acid. Considering DIM as well. I know that's loads, lol, but I feel like I need to make an extra effort because of the above, although I don't know how much it's helping. I really want to clear it within 2 years, but if you've had it for 4 years, then maybe that's an overly optimistic goal. :/

Infected with hrHPV-45 since Sep 2015, normal smears so far despite increased risk factors, advised to follow up in 6 months, fingers crossed!

nm_353
nm_353's picture

I am high risk hpv 16 positive. I have adenocarcinoma. Or glandular cancer whatever you wanna call it.

June 2016- pap, not up to date, results abnormal

Julyy 5th-  After followups diagnosed with Adenocarcinoma

July 12th 2016- Met with oncologist, clinically staged at 1b2, staging confirmed with MRI and PET. Tumor is endocervical and approx 7 cm.

August 2016- Started chemorads. Post followup after treatment, NED

Sept 2018- Still NED

HpvBeGone

I'm sorry to hear that. Looking at your signature, it is very lucky it hasn't spread, so it seems they are thankfully able to treat it. Are you undergoing radiation and chemo, no surgery? I hope you are holding up well. I gather the treatments can be quite draining. Did you only discover you have HPV-16 this June/July, out of interest?

Infected with hrHPV-45 since Sep 2015, normal smears so far despite increased risk factors, advised to follow up in 6 months, fingers crossed!

nm_353
nm_353's picture

No surgery because my tumor was too large. I was given a combination of external, internal radiations and chemo. I've just finished with my externals and have 5 internals to complete and 2 Chemos left, ugh. Im just ready to be done with it.

June 2016- pap, not up to date, results abnormal

Julyy 5th-  After followups diagnosed with Adenocarcinoma

July 12th 2016- Met with oncologist, clinically staged at 1b2, staging confirmed with MRI and PET. Tumor is endocervical and approx 7 cm.

August 2016- Started chemorads. Post followup after treatment, NED

Sept 2018- Still NED

Beeman

May I ask how people know what strain of hpv they have? Is this something done routinely where you live? Or have you paid for a specific test? 

Thanks

nm_353
nm_353's picture

Im in the US my doctor automatically screens paps for HPV if you're over 30. Idk if its standard or not tbh. 

June 2016- pap, not up to date, results abnormal

Julyy 5th-  After followups diagnosed with Adenocarcinoma

July 12th 2016- Met with oncologist, clinically staged at 1b2, staging confirmed with MRI and PET. Tumor is endocervical and approx 7 cm.

August 2016- Started chemorads. Post followup after treatment, NED

Sept 2018- Still NED

HpvBeGone

I also went private and it very much depends on the clinic and which test they use. Some tests only group generally by high and low risk, or by high risk only, while other tests can single out 16 and 18, or can identify whichever type you have.

Infected with hrHPV-45 since Sep 2015, normal smears so far despite increased risk factors, advised to follow up in 6 months, fingers crossed!

Blackrose23

I paid for a private hpv test 

july 2016: tested positive for high risk hpv 45 and 68                            25 august: colposcopy showed no cancer or CIN but a small amount of benign squamous metaplasia and a nathobian folicle. 22nd of october: smear came back normal. 

Blackrose23

I dont know how long i have had it i had a baby 14 weeks ago and i read that pregnancy can reactivate it. As some say hpv never reallu goes it just lays dormant and can rectivate when the body is under stress 

july 2016: tested positive for high risk hpv 45 and 68                            25 august: colposcopy showed no cancer or CIN but a small amount of benign squamous metaplasia and a nathobian folicle. 22nd of october: smear came back normal. 

HpvBeGone

Congratulations! :D  But stressful to be told you have HPV so soon after delivery. :/  Yeah, I have read much about HPV, so get the whole dormancy thing. I realise it's hard to pinpoint when it was acquired, although I'm pretty sure in my case, as I had tested negative for HPV just a month before my last partner...

By the way, that's good your copolscopy consultant doesn't think HPV-45 is as bad as some other genotypes, although it doesn't seem that way if you Google! My gyno oncology specialist didn't have much to say, other than that it's not good to have any hrHPV type. :/

Infected with hrHPV-45 since Sep 2015, normal smears so far despite increased risk factors, advised to follow up in 6 months, fingers crossed!

Blackrose23

I know i have googled it to.. i am still frightend even after having a clear colposcopy.. high risk hpv is common though and cervical cancer is not x 

july 2016: tested positive for high risk hpv 45 and 68                            25 august: colposcopy showed no cancer or CIN but a small amount of benign squamous metaplasia and a nathobian folicle. 22nd of october: smear came back normal. 

Yiskah
Yiskah's picture

Hi:) I am late 40s and have HPV 18. I have had it  active for  3-4 years. The docs have been doing colposcopies and punch biopsies since January 2014. I have had 2 colpos and quite a few biopsies and endocervical currettage (ecc) since 18 tends to cause adenocarcinoma and it tends to hide up high. I am getting nervous, I will admit. I go back in March for a pap and if my hpv is still active, another colpo. I am hoping the hpv has gone dormant and if not, i hope it is still low grade, but 3 full years plus and it has not gone away surprises me. I am healthy and just don't get why my body doesn't get rid of it. 90% rid it within 2 years... yeah, right. Not this lady. I am trying to stay positive and trying not to worry. It is so weird, because I am not a worrier by nature. I just cannot seem to shake the odd feelings. In all other areas, I am calm, cool and collected, but not when it comes to this! lol :-) 

 

  • Had pap in 2013, doc said cervix was inflamed
  • Pap and HPV test 2014- ASCUS & HRHPV+, just watched
  • Pap and HPV test 2/2015- ASCUS & HRHPV18+ 
  • Colpo 2/ 2015 punch biopsies for dysplasia-  biopsies CIN 
  • Pap and HPV test 2/2016- ASCUS, atypia and HPV18+
  • Colpo 3/2016 punch biopsies & ecc for CIN. Told again they got all the precancer & to wait 1 year 
  • Appointment Pap & HPV 3/2017- pap ok still hrhpv+ for 18 + at least one more hrhpv. 
  • Colposcopy scheduled for April 2017. 
  • Punch biopsies & ECC. LSIL 
  • Abnormal Pap and *Persistent HR18 March 2018
  • Colpscopy 4/2018 

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