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So there I was, bimbling along in my normal life and within a few days, I've been picked up the CC tornado and dropped into a completely new world and a totally uncertain future. As Dorothy says, "We're not in Kansas any more, Toto"....
This site has been a godsend. I didn't want survival statistics or probabilities, I just needed to get some insight into where my personal 'yellow brick road' might take me. Thanks to everyone who has posted their stories, you've given me that.
As a 48 year old with CGIN who is being seriously fast tracked by the system, I now have a pretty good idea of what might come next and that has given me some time to process my thoughts before my next appointment. It all happened so fast I was totally unprepared last time and that's not good for a rational control freak like me.
I obviously don't want to second guess my biopsy results, but the specialist made a point of telling me that even if I had clear margins, the CGIN could still be doing its stuff further up into my uterus so I'm expecting that we'll be talking about a hysterectomy before too long.
Feel sore and crampy from the LLETZ and anxious about what might come next, but overall I feel quite calm. After all, there's nothing I can do now except wait (and eat cake). Come to think of it, maybe I'm not in Oz yet and this is just the eye of the storm....
04/10/12 Routine smear, CGIN, 10/10/12 Colposcopy, LLETZ, 'top hat' 24/10/12 Adenocarcinoma 1B1 05/11/12 MRI, 16/11/12 - EUA, restaged 1B2 11/12/12 57 lymph nodes removed, nodes clear 10/01/13 Laparoscopic rad hysterectomy, 30/1/13 'de-staged' to 1B1, 3 monthly check ups ok. 5/7/13 lymphoedema in left leg.