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Advice needed on pregnancy after trachelectomy ref:pg

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SamD34
Advice needed on pregnancy after trachelectomy ref:pg

Hi

I've been lucky enough to become pregnant 1 year post trachelectomy. I was always told I'd have a close eye kept on me from day one but at 12 weeks I'm still not due an "extra" appointment until 17 weeks with my obstetrician. That's not a problem but I'm feeling a little lost in terms of specialist advice on precautions and dos/don'ts in my out of the ordinary situation. I had my 12 week scan yesterday and as great as everyone was, the midwife was not familiar with the extra care I'd need and even said that I don't need to be seen until 20 weeks, this is obviously overruled by the obstetrician. 

I have seen a couple of similar chats on here however most were from years ago and I hope that with the years that have passed there are even more cases and advice that could be shared. I'm hoping that people can share the advice they were given? :)

Thank you

EmJess

Hi :)
I’m currently 25 weeks... I had my usual appts up till 16 weeks, then I had an internal ultrasound scan at 16 weeks (they don’t do it before) to check my Cervical length.. that was with my obstetrician in the fetal medicine department.
They then got me back at 20 weeks, and last week to do the same... my Cervical length had shortened last week so I’m back again wed after being given some steroids.
They’ve basically told me to take it easy... no baths, swimming or sex due to risk of infection.

Please send me a message if you have questions - I had my surgery 7 years ago.. and I did a lot of searching before we tried for a baby!
There’s also a group on FB which is really helpful.. ‘Trachelectomy-TTL’

Em xx

First Smear, age 25 - abnormal 06/03/2013

Colposcopy & 4 biopsies 26/03/2013

Lletz Procedure 02/05/2013

Diagnosed CC 17/05/2013

MRI 04/06/2013

Trachelectomy & Lymph Node removal 10/07/2013

ALL CLEAR!! 19/07/2013

SamD34

Thank you for your reply and sorry for my delay in responding, I've not seen this was here! That's really helpful thank you. I have an obstetrician appointment at 17 (almost 18) weeks as there were no appointments available earlier, even booking this at my 12 week appointment. My midwife has said that sex is fine as long as have no other issues but I had seen on here and the FB page that others had been advised against. Swimming and baths aren't a factor, I prefer showers anyway :) While others on here hadn't been told to avoid any of the above too. It just feels like a long time to wait to speak to a specialist, the 16 week marker, for such a niche situation where advise is sparse. Whenever I asked pregnancy questions to my oncologist he just said to wait until we got there and to deal with the cancer first, understandably.

Thank you so much again for your reply x

EmJess

I felt exactly the same as you and was desperate to be seen but realistically until you get to 16 weeksish they won’t do anything anyway.. frustrating I know.
I’ve only refrained from baths/sex etc for my own piece of mind. There’s ladies even on the FB group that aren’t advised any different to a normal pregnancy. I just think every little helps ya know? :)

Em x

First Smear, age 25 - abnormal 06/03/2013

Colposcopy & 4 biopsies 26/03/2013

Lletz Procedure 02/05/2013

Diagnosed CC 17/05/2013

MRI 04/06/2013

Trachelectomy & Lymph Node removal 10/07/2013

ALL CLEAR!! 19/07/2013

SamD34

Yes you're totally right! My husband and I were talking the other day too and it just seems too much of a risk, if there's suggestions of things not to do then why not take it. Hope you're well!

Jess.m85

Hi ladies,

My consultant said his procedure is to 'admit' you to hospital at 20 weeks due to risk. Has anyone else been told this and if so do you know what that potential 17 week stay involves?

 

I have not yet tried for pregnany as so much to think about in terms of risk and wanted some advice on how you have been supported and cared for as we are classed as high risk?

 

Thanks and hope all is well with you

Radical trachelectomy 2014

 

Age 35

No children

EmJess

Hi Jess,
You’re right it’s high risk... I was scanned internally every couple of weeks to see how my stitch was holding up. At 26+2 my waters were almost at my stitch so they admitted me into hospital on bedrest - I only got up to use the toilet. (I was also tilted so the pressure was off my stitch).
I spent 2 weeks in hospital - scanned again at 28+2 and my cervical length had increased again so was discharged.
I was home until 31+6 when my waters broke (no contractions) so therefore they hit the stitch and burst. They did an emergency c-section then.
Because I’d been in hospital on bedrest and they’d thought it was going to happen id had steroids for babies lungs and magnesium for his brain.. which helped him.
It was abit stressful. But so worth it. I feel so lucky to have my little boy. The hospital were incredible and i felt really supported. It’s really good that your consultant is being proactive. But maybe the scans could do the trick rather than having to be in hospital?
I did take it easy at home.

Emma

First Smear, age 25 - abnormal 06/03/2013

Colposcopy & 4 biopsies 26/03/2013

Lletz Procedure 02/05/2013

Diagnosed CC 17/05/2013

MRI 04/06/2013

Trachelectomy & Lymph Node removal 10/07/2013

ALL CLEAR!! 19/07/2013

newuser87

Congratulations, Emma! Hope you are loving life with your little one. Thanks for sharing this, really helpful to hear about others' experiences with pregnancy post-trach. I had my trach 2 months ago and we are very ready for children (I got the cc diagnosis whilst undergoing infertility investigations (later discovered it's actually male factor, so will have to have IVF/ICSI anyway)) so hoping I can try at the 12 month post surgery mark. Did you have to find a specialist Obstetrician or did your oncology team / GP refer you?

03.11.20 - Smear: high grade dyskaryosis (severe), likely invasion, high risk HPV

25.11.20 - Colposcopy + LLETZ

02.12.20 - Diagnosis: mod. differentiated squamous cc min. stage 1b1, LVSI, deep margin, CIN 3

09.12.20 - Rad/chemo recommended, requested ovarian transposition

11.12.20 - 2nd op: recc. radical trachelectomy 

22.12.20 - Tumour upgraded to 1B2, trach no longer recc.

05.01.21 - Clear MRI and PET scans, 2nd team support request for trach

18.01.21 - Radical vaginal trachelectomy + 11 lymph nodes removed

28.01.21 - NED in extracted tissue, follow up plan = scans and examinations at 3, 6, 12 months 

newuser87

Congratulations, Emma! Hope you are loving life with your little one. Thanks for sharing this, really helpful to hear about others' experiences with pregnancy post-trach. I had my trach 2 months ago and we are very ready for children (I got the cc diagnosis whilst undergoing infertility investigations (later discovered it's actually male factor, so will have to have IVF/ICSI anyway)) so hoping I can try at the 12 month post surgery mark. Did you have to find a specialist Obstetrician or did your oncology team / GP refer you?

03.11.20 - Smear: high grade dyskaryosis (severe), likely invasion, high risk HPV

25.11.20 - Colposcopy + LLETZ

02.12.20 - Diagnosis: mod. differentiated squamous cc min. stage 1b1, LVSI, deep margin, CIN 3

09.12.20 - Rad/chemo recommended, requested ovarian transposition

11.12.20 - 2nd op: recc. radical trachelectomy 

22.12.20 - Tumour upgraded to 1B2, trach no longer recc.

05.01.21 - Clear MRI and PET scans, 2nd team support request for trach

18.01.21 - Radical vaginal trachelectomy + 11 lymph nodes removed

28.01.21 - NED in extracted tissue, follow up plan = scans and examinations at 3, 6, 12 months 

EmJess

Thankyou! We’re really well Thankyou :)
I hope it hasn’t worried you but also want to be open about how it was :)
I was seen by an obstetrician in the same hospital.. I was sent over to her automatically once everything was ok on my 12 week scan xx

First Smear, age 25 - abnormal 06/03/2013

Colposcopy & 4 biopsies 26/03/2013

Lletz Procedure 02/05/2013

Diagnosed CC 17/05/2013

MRI 04/06/2013

Trachelectomy & Lymph Node removal 10/07/2013

ALL CLEAR!! 19/07/2013

newuser87

Glad to hear, such a precious time :)

Thanks for getting back to me. Good to know re: referral, hopefully one less thing to worry about! xx

03.11.20 - Smear: high grade dyskaryosis (severe), likely invasion, high risk HPV

25.11.20 - Colposcopy + LLETZ

02.12.20 - Diagnosis: mod. differentiated squamous cc min. stage 1b1, LVSI, deep margin, CIN 3

09.12.20 - Rad/chemo recommended, requested ovarian transposition

11.12.20 - 2nd op: recc. radical trachelectomy 

22.12.20 - Tumour upgraded to 1B2, trach no longer recc.

05.01.21 - Clear MRI and PET scans, 2nd team support request for trach

18.01.21 - Radical vaginal trachelectomy + 11 lymph nodes removed

28.01.21 - NED in extracted tissue, follow up plan = scans and examinations at 3, 6, 12 months 

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