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Can't see my post

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blueskiesinside...
Can't see my post

Hi,

I posted today and also about a week ago with a query. Once I post, this doesn't get updated under 'new and updated topics' and I also can't see it when I click on the actual form it's posted in (cervical cancer post treatment). Am I doing something wrong when posting? I'm keen to hear from others in a similar boat and I'm worried that others won't be able to view my post, because I can't. Thanks for any help or suggestions with this

Aug 2019 - referred for colposcopy following routine smear

Sept 2019 - LLETZ biopsy showed CGIN high grade abnormal cell changes

Oct 2019 - Diagnosed with cervical cancer (adenocarcinoma) aged 31 ?1a1 but unclear margins

Nov 19 - MRI and 2x further LLETZ biopsies to guide treatment, re-staged as 1b1

Dec 2019 - Pelvic lymphadenectomy

Dec 2019 - Lymph nodes clear - no further treatment required at present; ongoing 3 monthly monitoring. Strongly recommended to have hysterectomy in coming years due to CC and BRCA1 mutation 

Jan 2020 - diagnosed with lymphoedema to left groin

Jazza
Jazza's picture

Hi

You could try e mailing Jo's about this.  One of their e mail addresses is [email protected] - if it's not the appropriate e mail address i'm sure it will get redirected to the right one.

x

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: PMB
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1 (1B2 on new FIGO) squamous cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A1 (2A1 on new FIGO)
  • Apr/May 17: 6 chemo, 25 external radio, 2 brachy
  • May 20:  NED.  Side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot
blueskiesinside...

Thanks Jazza, as always you have very sensible advice. Someone from Jo's trust emailed me to follow up so hopefully they can resolve it the issue. Hope things are going ok for you x

Aug 2019 - referred for colposcopy following routine smear

Sept 2019 - LLETZ biopsy showed CGIN high grade abnormal cell changes

Oct 2019 - Diagnosed with cervical cancer (adenocarcinoma) aged 31 ?1a1 but unclear margins

Nov 19 - MRI and 2x further LLETZ biopsies to guide treatment, re-staged as 1b1

Dec 2019 - Pelvic lymphadenectomy

Dec 2019 - Lymph nodes clear - no further treatment required at present; ongoing 3 monthly monitoring. Strongly recommended to have hysterectomy in coming years due to CC and BRCA1 mutation 

Jan 2020 - diagnosed with lymphoedema to left groin