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Covid, referrals, symptoms and all in between

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roseuk
Covid, referrals, symptoms and all in between

Hello everyone,

I just wanted to know if anyone has been referred to secondary care during covid-19? Basically, I've been bleeding constantly for months and have various other symptoms (pain, strange sensations, bowel problems, pain in leg and groin..) 

 

I have been in touch with my GP surgery 10 times since March and because I had bloods, ultrasound and swabs done before this all happened, which came back clear (but got told PCOS) they won't see me in person at all or refer me, despite constant bleeding, which started with watery discharge back then and is now relentless. 

I'm so frightened and confused, I know something isn't right but no doctors will see me, it's quite surreal. Any advice?

 

At2109

Hiya 

 

im sorry you're going through a difficult time right now. I have been referred, I went to my GP with initial bleeding on 28th April and am now waiting an MRI and chest X-ray after having a colposcopy, biopsy and additional swabs(checking for infection after an ultrasound ). If you are concerned please go back to GP and push for a referral x

At

rufus

Hi Roseuk,

It is a horrible time to have health issues right now. I feel for you.  I would echo at2109 and push for a referral.  You might need to get a bit vocal and push that this is having an effect on your mental health. Colposcopy clinics are still operating and, if referred, would take your concerns seriously. 

You have a right to be taken seriously and get to the bottom of your symptoms. Don't be polite or nice about it anymore.  Push for what you need. 
Big hugs. Xx

Lletz under GA on 19/3/20, mri on 21/3, Results cc: stage 1b no sign of lymph involvement. 18/4/20 Radical hysterectomy with lymph node removal 6/5/20 Histology shows microscopic Involvement 2 nodes. Moved to stage 3c. Chemo rads completed 10/7/20 Brachy 14/7 Done!

Jazza
Jazza's picture

Hi Roseuk

I agree with the previous 2 ladies about pushing for a referral. I know just how scarey it is to have the symptoms you are describing  so I am going to make what is possibly an improper suggestion;  it might help your case if you were to call 111.  If you are simply advised to go to your GP  explain how frightened and confused you are (maybe mention mental health) because you feel you are not getting anywhere with your GP.  Hopefully that might get things moving - you can call today.

I'm not an expert but I've checked the NHS website and watery discharge followed by constant bleeding are not listed as symptoms of PCOS:

https://www.nhs.uk/conditions/polycystic-ovary-syndrome-pcos/

x

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: PMB
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1 (1B2 on new FIGO) squamous cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A1 (2A1 on new FIGO)
  • Apr/May 17: 6x chemo, 25x external radio, 2x brachy
  • May 20:  NED.  Side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot
Harvitt

May I suggest if your gp's aren't taking notice get in contact with your local MP. Ask them to ask your GPS surgery WHY they aren't taking your worriers seriously and that your deeply concerned. 

06 Jan 20 massive bleed. 7 feb 20 smear came back highly differentiated severe dyskolious. 14 Feb biopsies taken. 21st Feb cc cells found. 22 Feb 20 told poorly differentiated squamous cell. 28 Feb staged at 2a. Tumour is 2.4mm/9mm 6 March restaged at 3c due to 3 lymph node involvement - x1 2cm. 12 Mar 20 met oncologist - told me coronavirus will probably kill me before cc does. 18 March 20 pre scan booked.
55

If the bleeding is really bad you could even try going to A & E. There are other ladies on this site who have used this route.  In other countries all women have their own gynaecologist and so don't have to go through a GP. I often wonder if that would be a better system in the UK. Any thoughts? I really hope this gets resolved for you soon; it sounds very stressful. Jo's helpline is a great support if you need a person to talk to. Try not to imagine the worst 

A

1st ever abnormal smear hpv & severe high grade dyskaryosis August 2019 lletz September 2019 polyp & nabothian cyst found Results hpv & mild cell changes polyp innocent Repeat colposcopy Dec 2019 test of cure January 2020 results of test of cure; no high risk HPV present , check up colposcopy appointment in June because of the discrepancy between initial smear & lletz result - June 2020 repeat colposcopy & pap - all clear - discharged from hospital - next smear in 3 yrs Back again August 2020 following post menopausal bleed; more tests! Turned out to be hormonal/menopause related but they also discovered a small ovarian cyst which they will check again in 4 months; cyst was not related to bleeding

Jazza
Jazza's picture

 I agree it would be better if women had direct access to a gynaecologist rather than have to go through a GP.  A few months ago I signed a petition for women to get routine annual gynaecological check ups with a view, amongst other things, to reducing the incidence of all (there are 5) the gynae cancers. This petition can be found on the following link:

 https://www.change.org/p/minister-for-women-and-equality-penny-mordaunt-yearly-gynaecological-check-ups-for-every-woman-in-the-uk-from-adolescence

Smear tests besides, an annual gynae checkup could ensure a range of gynae issues are diagnosed and treated early before they get out of hand. It's only since my cc diagnosis and seeing a lot of gynae health professionals that I now understand that I had significant vaginal atrophy/vaginismus which led to my smear tests becoming intolerable for me. Unfortunately it never occurred to me to seek help - I thought it was just an inevitable part of getting older and I decided to just stop going for smear tests. I think it's very possible that if I'd been getting routine annual gynae check ups I might not have ended up with cervical cancer.

x

  • Feb 04:  (age 47y) Smear test normal
  • Stopped going for smears!
  • Summer 16: persistent watery yellow vaginal discharge
  • Dec 16: PMB
  • Jan 17: Hysteroscopy under GA for ?fibroids - abnormal cervix observed -multiple biopsies taken, 1B1 (1B2 on new FIGO) squamous cell cc diagnosed - confirmed by MRI/PET scans
  • Feb 17: pelvic lymphadenectomy - nodes negative, Da Vinci radical hysterectomy- close anterior margin/LVSI/PNI, restaged to 2A1 (2A1 on new FIGO)
  • Apr/May 17: 6x chemo, 25x external radio, 2x brachy
  • May 20:  NED.  Side effects notably hypotonic bladder since hysterectomy - ongoing ISC, unilateral lymphoedema lower abdo/groin/leg/ankle/foot
55

It would probably also greatly reduce GP workload if this system was in place. At my GP practice all calls are now triaged by reception staff so you have to tell them why you are calling which I don't like & which might put some patients off. Before Covid you could book an appointment online to avoid this issue. You can self refer for physiotherapy or psychotherapy but not for other services.

A

1st ever abnormal smear hpv & severe high grade dyskaryosis August 2019 lletz September 2019 polyp & nabothian cyst found Results hpv & mild cell changes polyp innocent Repeat colposcopy Dec 2019 test of cure January 2020 results of test of cure; no high risk HPV present , check up colposcopy appointment in June because of the discrepancy between initial smear & lletz result - June 2020 repeat colposcopy & pap - all clear - discharged from hospital - next smear in 3 yrs Back again August 2020 following post menopausal bleed; more tests! Turned out to be hormonal/menopause related but they also discovered a small ovarian cyst which they will check again in 4 months; cyst was not related to bleeding

RISINGSTAR

I'm really sorry to hear about your experience.  In my view, Covid-19 is not an excuse to stop providing healthcare. I would suggest you ask to speak with an alternative GP if you are not happy with the support from the one you have spoken with. You can issue a complaint to the Practise Manager if you feel you are not getting the support you need. You can go to a GP and request to be referred to a particular service or for a certain treatment. Be direct and tell them what you want to happen.  Once referred, you have a legal right to request to be seen at a certain hospital or service. https://www.nhs.uk/NHSEngland/patient-choice/Documents/patient-choice-leaflet.pdf  Remember, you know your body better than anyone, if you feel there is something not right/normal in your body, don't let it go. You are the only one that can fight for and protect your body so trust in your instincts. You can also move to a new GP surgery if it covers your postcode area, or complain to NHS England about a GP surgery https://www.england.nhs.uk/contact-us/complaint/complaining-to-nhse/. I hope you receive the care you deserve.