VAIN/ VIN/ AIN

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kontikitoo
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VAIN/ VIN/ AIN

Hello,

As a previous CIN girl and regular user if the forum I was wondering if you would consider a section that fits between Colposcopy and Cancer for those of us having ongoing treatment for things like VAIN / VIN / AIN? 

It seems to be fairly rare and uncommon and I'm struggling to find out much about it and the treatments.

I'm potentially facing some pretty horrific surgery in the future and don't necessarily want to scare all the new colposcopy people who hopefully never need to head towards a hysterectomy and beyond.

I'm also lucky not to have to dip into the next forum down either.

I appreciate this may not be possible as there are so many variations out there but thought it was worth asking the question.

L

42, persistently CIN 3 now VAIN 3. No cervix and minus a womb. On a rolling loop of treatments and 6 monthly check ups and hoping I get the all clear soon!

2013 loop & Lletz 

May 2014 1st cone biopsy

March 2015 2nd cone biopsy 

Feb 2016 keyhole hysterectomy (kept ovaries)

March 2016 CIN3 found in cervix (now removed) awaiting a date for 6 month check up

Nov 2016 silver nitrate treatment for granulation

Dec 2016 confirmation of granulation all clear on biopsy

March 2017 laser, biopsy and a ovary scan

April 2017 Biopsy ok but now have VAIN

October 2017 2nd biopsy confirming VAIN 3

Dec 2017 lasered & biopsy

Jan 2018 start trial of Aldara cream

Nemo1

I can only echo what you hav said!! There aren't many VAIN girls out there and it'd be nice to have a section dedicated to it as it's so rare and lonely. 

Ive had a large section of VAIN3 removed, but still have persistently abnormal smear results- getting a hysterectomy to get rid of potential abnormalities further up in cervix but this won't solve the VAIN issue... Let me know how you get on with Aldara, I'll likely be getting it after the hysterectomy. 

Pocketpixie

Just had Vain3 removed last week...waiting on histology now. Thats pretty much all i was told .. really is hard to find anything info wise except from fellow ladies going through the same experience at various stages of it. 

 

Jan 2017- booked smear irregular bleeding discomfort back and stomach.

 

31rd Jan- Abnormal result 

10th feb- Colproscopy found cin3

28th feb- biopsy and lletz under gen A

30th march- Cancer found stage 1a1

August 11th check up cancelled due to bleeding

22nd sept- colproscopy 2 smear tests...polyps seen

14th Nov- Lletz and colproscopy under gen A

13th Dec- cervix clear but vain3 seen top of vagina

9th Jan 2018- colposcopy and Vain3 excised 

 

 

 

Purplebird

Thank you ladies, I've just joined and already feel at ease.  Last year (June) had abnormal smear went for biopsy and was told that there had been abnormalities found in cervix, went for procedure and told to go back in 6 months for follow up.  Had follow up where consulatant told me that the cells were actually in vagina. I went back for results last week (vain3 oneside 2 other) and I'm now having op under ga on 7th March ....  As you have mentioned there's not a lot of information regarding Vain out there and on a visit to my gp's surgery for blood test (Monday) the nurse there hadn't even heard of the term.... 

Pocketpixie

Hi Ladies, 

 

My results came back fine, no more signs of pre cancer and cancer cells.... just need to go back to have colposcopy in April...im guessing that ment the VAIN3 they found in November/Dec has also gone? I dunno its a little confusing but im going with lack of urgency so can't be anything to really worry about ...just gotta make sure i keep up with all my checks in futre....close shave! 

Sending you all healthy vibes and hope your all doing ok x

Jan 2017- booked smear irregular bleeding discomfort back and stomach.

 

31rd Jan- Abnormal result 

10th feb- Colproscopy found cin3

28th feb- biopsy and lletz under gen A

30th march- Cancer found stage 1a1

August 11th check up cancelled due to bleeding

22nd sept- colproscopy 2 smear tests...polyps seen

14th Nov- Lletz and colproscopy under gen A

13th Dec- cervix clear but vain3 seen top of vagina

9th Jan 2018- colposcopy and Vain3 excised 

 

 

 

Purplebird

Hiya,

Thats great news and I hope all is clear in April.  I've found it'll all a bit confusing, but you ladies settled me.  

Positive thoughts for you and very best wishes