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hello to the new people!

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Golightlycat
hello to the new people!

I just wanted to welcome all the new people to the site, I'm glad you've found us no matter what your circumstances as this is a great place for information and support. If you need good information have a look at the links at the top of the page.

Also read the Welcome and posting guidelines message http://www.jotrust.co.uk/forum/viewtopic.php?f=1&t=2344 There are people with many different reasons for being here from an abnormal smear to dealing with various treatments, and other issues like infertillity so a little tact is sometimes required. :)

There's a role call thread too which is very good as it tells of all the different reasons why some of us are here, so feel free to add your story.

Jo's is a place which is non judgemental and you can talk openly about things that you might feel embarrassed about in other circumstances - we all understand.

Also feel free to join us on the 18th at the demo - the more the merrier as it's important that we're heard.

Love and hugs

Zoë

1b3 Adenosquameous cell CC.Trachelectomy 18.11.05 (stage 4 Endo treated). Chemoradiation 03.06.[b][color=#BF0040]10.08.11 - discharged & cancer free[/color]![/b]

[b][color=#BF40BF][i]"Be kinder than necessary 'cause everyone you meet is fighting some kin

valencia

hi zoe

you beat me to it i was going to do the same.

hi to all you new guys hope you can get all the info and help you need

xxx

diagnosed 6/3/07 with stage 1b1, radical hysterectomy 14/3/07, lymph nodes clear and all cancer removed

lisa79

hi all,
sorry to hijack the thread i have searched under granulation tissue and noticed that corrine you had it,i am due to go one holiday tommorow and had some caurtaurised(SP) with silver nitrate on 25th feb just wondering if i will be able to go swimming etc as i got no dos or dont's.
i would also like to say welcome to all the new people,jos has kept me sane through my difficult times.
much love
lisa.xxx

1b1 CC october 08 after having clear smear tests for the last 10 years age 29,radical hysterectomy 19th november 08,lymph nodes clear 3 monthly check ups.

Mellissa Crowley

Nice one Zoe

welcome to all the new members of Jo's - I am a bit of a veteran here now :lol: (8 YEARS) on Jos :lol: but I still use it daily and I it really is a great non judgemental place for support, advice or a good ol rant or virtual hug or cry!

Hope to see you all on the 18th

GO TEAM JOS !

Mellissa :shock:

Radical Hysterectomy for adeno clear cell carcinoma cervical cancer stage 1b in 2001 at the age of 23 - CC caused by DES Exposure- Ovaries Conserved. 10 years all clear! Discharged from The Royal Marsden April 2011 [email protected]

Sam86

Hi I would just like to say thankyou for all the warm welcomes and advice I have received up to yet. I havent been a member long but Im addicted alredy lol, Im quite young and very scared with my results and was starting to get myself into a right tizz worrying so much but you have all made me much calmer and I feel much more confident.

Thankyou all u have my full support for the 18th ur all very inspirational! x

Age 21
Aug 07-abnormal smear
Sept 07-LLETZ
3 mnth smears & biopsies-CIN 1/2
Age 22
Nov 08 - referred to a different consultant
Feb 09 - smear and biopsy
March 09 - severe dyskaryosis CIN 3
20th Apr - LLETZ....all clear!! Review in 6 months!

lisab1979

hi all
i have just joined this site on mon 9th march after watching jades legacy, i wish i had found it before, i had so many worries about what i was goin through but i didnt want to upset my friends and family with my worries, i think this is an excellent site, with loads of info. i was given a little booklet at the hospital about cervical cancer but i didnt read it, id of much rather got my info from this site with real women going through the same thing cos sometimes you feel on your own and think its only you going through it, im due to go back to the hospital in april and i am going to tell everyone about this site.
thankyou
lisab xxxx

cath1602

Hi all

Good thread Zoe

I too would like to say welcome to all the newbies and hello to all the oldies. I do pop on everyday but not posted for long time due to problems with login but now sorted :)

Cath xx

[size=85]July 2006 Smear CIN3
August 2006 Loop Diathermy
March 2007 Colposcopy all ok clear
December 2007 Smear CIN3
Jan 2008 Loop Diathermy
July 2008 Colposcopy all ok clear
Jan 2009 Smear CIN3
10.03.09 3rd Loop Diathermy[/size]

Facebook Cath Watling

valencia

lisa i have sent you a pm
xx

diagnosed 6/3/07 with stage 1b1, radical hysterectomy 14/3/07, lymph nodes clear and all cancer removed

Emerald

Hello

Jo's is a wonderful site and I hope you all get some much needed support and advice on here.

:)

Apr '07 - Borderline changes
Nov '07 - CGIN detected
Dec '07 - Colposcopy & Biopsy
Jan '08 - Results - High Grade CGIN
Jan '08 - Knife Cone Biopsy
Aug '08/Feb '09 - Colposcopy results 'Reported as Normal'

jobailey1

Hi Ladies

Thanks Zoe!!

welcome to Jo's ladies and girlies!! :D :D :D

any questions night or day feel free to ask and somebody will try and help you out x x

Jo

Diag Adenocacinoma 1b1 after having a CLEAR smear test Feb 06 went to Docs again April 06 to ask for a colposcopy!!! listen to your own body ladies :+)
Rad Hyst and removal of 33 lymph nodes Sept 06
All clear 6th Oct 06

Always live your dream ****

smashin99uk

I have just joined this website forum after hearing about Jo's on Jade's Legacy. At 31 I was diagnosed with cervical cancer and received chemo then a radical hysterectomy that was 3 1/2 years ago, I only wish I had found this site then, I have read some posts and they are all very informative and inspirational. I am glad some good has came out of Jade's very open approach to her cancer and as the program said it seems to have had a greater effect on woman than any nhs advert could ever hope for.

carolnlucy

this is a good idea. Welcome to all new people, jo's has been a real life line to me for a few years. Im really not sure what i would have done without. X

diagnosed 15/01/07 stage 2 squamous cell cc. chemorad finished 12/4/07,
facebook carol dines

onlyme

Fab post Zoe :D

A big welcome to you all, you have found a very special site here with some very special people who will lend an ear, give great advice or, if needed, a virtual hug anytime night or day x

I landed here nearly four years ago now and I have never looked back, I don't know where I'd be today without the lovely women/men of Jo's.

Lots of love to all and welcome to our family xxx

Survivor of 1b1 cervical cancer, Radical Hysterectomy 13th April 2005

Ten years and counting :D

 

gailxx

Hi there i have just joined and omg i am soooo glad i have found this site have been made to feel like like what i am going through is soo common and happens to us all well it doesnt...

I am 26 with 3 children and last month went for my 1st smear test should have been years ago because i am in scotland and i have to say it was thanx to Jade (what a wonderful inspiration she is)
got a call from my doctor saying u will shortylrecieve a letter from local hospital because youre smear has come back as abnormal i am in on the 9th April for colpscopy and biopsy and depending on what they find LLETZ treatment too

I think that is what is worrying me the most because i cant prepare for what is going to happen there because i dont know it all depends on what they see i am very worried because i could have had this for over 10 yrs or more and i wouldnt have been any the wiser i have had symptoms for many years now and docs just say its down to heavy periods and hormone inbalances which is why i have MAJOR period pains and irregular bleeding every month i am slightly however glad that at least they have found something and now can be treated whichever way is best..going on a bit now sorry but everyone i talk to says yeah dont worry u will be fine but arrghhh i could scream at them sometimes :cry: :cry: never mind carry on with all the hard work you are doing for the rally thinks its brilliant and all of you in the same and worse position you truly are an inspiration to me xxx

Feb 09 Abnormal Smear
March 09 doctor says Cin3
April 9th Colposcopy Biopsy and LLETZ
Awaiting confirmation hopefully that all the abnormal cells have gone

Sam86

Hi Gail and welcome...dont ya just hate it wen people 'patronise' u saying we r worrying for nothin and stop being silly!!!! Fingers crossed for u at ur colposcopy Im sure they will take good care of u now that u r in the system, this site is brilliant for advice and information so anythin u need to ask or chat about just post a topic all the girl's at Jo's r fantastic x

Age 21
Aug 07-abnormal smear
Sept 07-LLETZ
3 mnth smears & biopsies-CIN 1/2
Age 22
Nov 08 - referred to a different consultant
Feb 09 - smear and biopsy
March 09 - severe dyskaryosis CIN 3
20th Apr - LLETZ....all clear!! Review in 6 months!

jenny_c

hi, i just joined the site today. I've been on before but didn't get round to joining because i was in the middle of my treatment and had so much going on. But I'm so glad i've joined now, i've been feeling really alone with it all lately, especially since finishing treatment and waiting for my scan to see if it has worked. Is so nice to find so many friendly people on here who understanding what i'm going through and what i've been through. makes me realise i'm not alone

jenny xxxx

Diagnosed 1st August 2008. Adenocarcinoma, stage 2b. IVF. Lymph nodes removed. 6 weeks chemo followed by 6 weeks chemoradiation and 2xbrachytherapy. Stomach abscess-surgical drainage.
07.04.09 - all clear, no sign of any tumor!!!

Sam86

Welcome Jenny!!

So glad uve got round to joining us!!!

We will have our fingers crossed for ur results hun and everyone here will support u while ur waiting (which is the worse part!!!) x

Age 21
Aug 07-abnormal smear
Sept 07-LLETZ
3 mnth smears & biopsies-CIN 1/2
Age 22
Nov 08 - referred to a different consultant
Feb 09 - smear and biopsy
March 09 - severe dyskaryosis CIN 3
20th Apr - LLETZ....all clear!! Review in 6 months!

jenny_c

thanks, that's really kind of you xx

Diagnosed 1st August 2008. Adenocarcinoma, stage 2b. IVF. Lymph nodes removed. 6 weeks chemo followed by 6 weeks chemoradiation and 2xbrachytherapy. Stomach abscess-surgical drainage.
07.04.09 - all clear, no sign of any tumor!!!

ElaineDavies

HI everyone.

Fantastic post Zoe,

I too would like to welcome each and every one of the new girls (and men). I hope that you all find something from Jos, and that we can help each other through whatever stage of our journeys we are at.

I found Jos 7 years ago, and Melissa was my guardian angel who became my inspiration to get through it.

There is a wealth of experience from the ladies on here, who are here to give each person as much support as we can.

The forum is a great place for communication and we all try and respect each others feelings and look after each other.

I have made the most amazing friends on here and these people will be my friends for ever.

Giving you all some big hugs n plenty of love.

Ex :) :) :) :)

[color=#FF0000]Diagnosed Jan `02 Stage 2b - Radical Hysterectomy & 5 weeks radiotherapy. Recurrence followed by Pelvic Exenteration Jul 03.
8 years clear Jul 11.[/color]

Mellissa Crowley

Elaine

bless u for your comments xxxxxx

love to you all

xxxx

Radical Hysterectomy for adeno clear cell carcinoma cervical cancer stage 1b in 2001 at the age of 23 - CC caused by DES Exposure- Ovaries Conserved. 10 years all clear! Discharged from The Royal Marsden April 2011 [email protected]

Muffin

Hi guys *waves*

I've been on Jo's for about a month now... have rarely posted but have trawled through the threads which has helped me feel slightly more prepared for what could be ahead.

I get my biopsy results later today and don't know how I feel.. scared, apprehensive, nervous, and I suppose, in a way, excited. The past few months have been taken up with worrying and waiting. It will be nice to know if i've been worrying with reason or if I can start 'living' again. ( if that makes sense? :? )

Thank you so so much. This site is truley fantastic and full of wonderful, inspirational, marvelous ladies. :D

M xxx

Nov 08: Smear test
Jan 09: Abnormal results
Feb 09: Colposcopy and Punch Biopsy - awaiting results
March09: Results - CIN 1 - follow up Colposcopy in 6 months.
Aug:09: Follow up Colp - awaiting results

Sam86

Good luck for today hun! x

Age 21
Aug 07-abnormal smear
Sept 07-LLETZ
3 mnth smears & biopsies-CIN 1/2
Age 22
Nov 08 - referred to a different consultant
Feb 09 - smear and biopsy
March 09 - severe dyskaryosis CIN 3
20th Apr - LLETZ....all clear!! Review in 6 months!

Muffin

Thanks Sam. I've just realised it's highly probable that my Boyfriend will be countless feet up in the air flying back from Rome when I get the call... :shock:

Nov 08: Smear test
Jan 09: Abnormal results
Feb 09: Colposcopy and Punch Biopsy - awaiting results
March09: Results - CIN 1 - follow up Colposcopy in 6 months.
Aug:09: Follow up Colp - awaiting results

garne

do let us know how you get on.

Thinking of you.

Z xx

[size=85]CIN3 2000 - LLETZ GA.
CIN2 09/08, colp 11/08
LLETZ 03/09. All clear
Colp/smear /biopsies 10/2009 - VAIN3
Surgery Nov 2009
Colp Mar 2010- VAIN3
Surgery Apr 2010
Colp Nov 2010
Womb biop & scan Oct 2010
Lap due Dec 2010 (for irreg bleeding/pain)[

jenny_c

good luck hun, i've got my fingers crossed for you that its 100% good news xxxx

Diagnosed 1st August 2008. Adenocarcinoma, stage 2b. IVF. Lymph nodes removed. 6 weeks chemo followed by 6 weeks chemoradiation and 2xbrachytherapy. Stomach abscess-surgical drainage.
07.04.09 - all clear, no sign of any tumor!!!

Muffin

Thanks guys.

I just phoned the Colp nurse, the consultant STILL hasn't been in and they close at 4:30!

I want to know before the weekend. I've not been able to do anything all day, i'm just sat at my desk flitting between this and facebook to try and keep myself sane :shock:

It's taking all i've got not to cry.

Nov 08: Smear test
Jan 09: Abnormal results
Feb 09: Colposcopy and Punch Biopsy - awaiting results
March09: Results - CIN 1 - follow up Colposcopy in 6 months.
Aug:09: Follow up Colp - awaiting results

Sam86

Oh hun, drives ya crazy when they do that dont they!! Id ring back about 4.15pm, if he aint there then he aint goin in today I no my consultant only works in colposcopy late on in the day so u never no...hope u get to find out before the weekend hun x

Age 21
Aug 07-abnormal smear
Sept 07-LLETZ
3 mnth smears & biopsies-CIN 1/2
Age 22
Nov 08 - referred to a different consultant
Feb 09 - smear and biopsy
March 09 - severe dyskaryosis CIN 3
20th Apr - LLETZ....all clear!! Review in 6 months!

mumov4

Hi i just wanted to say welcome to all the new people to . I have not been on for a few days and since then 50 more people have joined, so welcome everyone. x

sept08 smear test
Oct08 abnormal results
Nov08 colposcopy and ounch biopsy
Dec08 results show cin3.
Feb09 Lletz, awaiting results now.
feb25th cin3 confirmed,results show removed all of cin3.

HARIBO

Hi everyone im very new to this never been on anything like this in my life and cant beleive i now feel the need! I hope to be able to have a chat with you all at some point as i feel i want to talk to people i dont know who im not going to worry! Not really sure where i should begin so any advice would be great thanks to you all in advance xxx

Lg

Sam86

Hiya HARIBO!! Welcome to Jo's...if you click on new topic on the top of the main board u can write ur message about what u need advice on...all the girls here are fantastic and Im sure ull get sum great advice xxx

Age 21
Aug 07-abnormal smear
Sept 07-LLETZ
3 mnth smears & biopsies-CIN 1/2
Age 22
Nov 08 - referred to a different consultant
Feb 09 - smear and biopsy
March 09 - severe dyskaryosis CIN 3
20th Apr - LLETZ....all clear!! Review in 6 months!

Nicolakate

Hi everyone,

Im snix just heard about this sight on 'this morning' so thpught i would give it a look.

I was diagnosed with stage 3 back in Sept 2002 had they usualy colposcpys etc thought after the 1st time it would be over, went for the usual 6 month check and knew by the dr face somthing wanst right. I was wipped in that afternoon and had part of my cervix removed. All has seemed fine since now on year checks only had 1 funny smear since and it was border line.
That was until week befor last my gp called and said he had a letter from the hospital consultant requesting to see me asap for further tests so i go back tomorrow. To be honest im crapping it in a big way last time i had all this they advised me to have a hystorectomy which i refused because i want children, they told me if the results ever came back i would have no choice. Im totaly and utterly gutted we have just started the ivf journey i dont want it to be over so im going into panic mode.
They are worried because they gave me a fertility drug called chlomid which can increase the chance of cervical cancer but I wanted to take the risk. And taking the drug was my choice shame it didnt work. I also have pocs which can be high risk for ovarian cancer.
Gawd im going on i just dont know what i want to say or how to get it out my hubby is gr8 and i have a good mate on the net who helps me to try to stay possative but with all the media stuff atm i feel like im suffocating in it again.
I want to know now but they told me the results willtake longer because of the 'Jade Goody' affect im sorry but they should employ more staff to get the results out quicker, or am i being selfish. Every time i hear about Jade i burst into tears, im so stressed about it.

any way thanks for listening.
take care all xx

cin 2a @ Sept 2002, lexx & part cervix removed.
All clear since.
Pocs and fertility problems, pescribed chlomid.
March 2009 abnormal cells awaiting results.

Sam86

Hello, welcome to Jo's hun Im glad u have joined us. The girls here will give you fantastic support. I just wanted to say Ive got my fingers crossed for u, sounds like uve had a tough time and u dont deserve anymore xxx

Age 21
Aug 07-abnormal smear
Sept 07-LLETZ
3 mnth smears & biopsies-CIN 1/2
Age 22
Nov 08 - referred to a different consultant
Feb 09 - smear and biopsy
March 09 - severe dyskaryosis CIN 3
20th Apr - LLETZ....all clear!! Review in 6 months!

jenny_c

Hi, it's good to have you join us. i do know what you're going through with your worry about children, i had chemo/radiation so won't be able to carry a pregnancy but try to stay positive and wait and see what they say first. I also went through the IVF process so know what that's like too and i delayed my treatment to have it done. The only way i stayed positive through the treatment was to remember that although it will change your life it will also give you your life. maybe life will take a different turn and you'll be on another path to the one you would have liked but you are not alone and you will cope. I really hope it goes well when you have your appointment, in the mean time remember you can get lots of support here and there are people who understand what you're going through. take care hun, love jenny xxxxxxxxxxxx
(p.s. feel free to send me a PM - personal message - if you want to chat more)

Diagnosed 1st August 2008. Adenocarcinoma, stage 2b. IVF. Lymph nodes removed. 6 weeks chemo followed by 6 weeks chemoradiation and 2xbrachytherapy. Stomach abscess-surgical drainage.
07.04.09 - all clear, no sign of any tumor!!!

steph1967

welcome to jos its the best place to get advice and support,good luck with your treatment xxx

colopscopy and lletz march 09
cin 3 unclear margins
smear and colp 18.9.09 all clear. Smear test march 2010 all clear,now on yearly smears
Diagnosed with pelvic congestion syndrome may 2010= hysterectomy oct 26th

suzie

Good luck with everything, you've already been through a lot and I can imagine how devestating the thought of loosing your fertility must be.

I only found this site on Monday, I was about the lowest I've ever been so far and it really helped me having somewhere to express my feelings where I wasn't judged or made to feel like I was wasting their time (and I know what you mean about the Jade Goodie thing, I have to turn over, it frightens the cr** out of me, lol)

sam7978

Hi,

I went for a colposcopy and biopsy yesterday, the doctor thought it looked like grade 2 or 3 but didnt really explain what this means can anyone help?

 

13/02/09 Smear results mildy abnormal 18/03/09 Colposcopy & Biopsy (doctor's thought stage 2/3) 02/05/09 Results confirmed abnormal cells but no stage. 19/05/09 LLetz for Cin 3

02/02/19 results high grade dyskaryosis

05/02/19 colposcopy 

 

 

Facebook: Sam Hilton feel free to add me x

steph1967

hi and welcome to jo's
when they do the colcopscpy {or however u spell it}they will grade the cervix cell changes with a 1 being lowest and a 3 being deepest level if you have a look at the info on cervical cancer or rather pre cancerous cells which is what this is it will explain it better,did you have treatment or a biopsy,if it was a biopsy they will wait for the results and decide if you need monitoring or treatment,i have recently had a lletz done for what appeared to be cin 3,the actual proceedure is ok,its the waitng for results to check they got it all thats the problem .
dont go googling you will scare your self silly,take it from one that knows but read all the info on here,its easy to understand and use the girls for support they been my lifeline the past 3 weeks
steph xxx

colopscopy and lletz march 09
cin 3 unclear margins
smear and colp 18.9.09 all clear. Smear test march 2010 all clear,now on yearly smears
Diagnosed with pelvic congestion syndrome may 2010= hysterectomy oct 26th

sam7978

Thanks for that, I didn't have treatment as they said they prefer to wait for results. I will admit i have been googling but not recommended.

He did say i will probably need treatment but didn say what that would be however he said they do it there in outpatients. I found it very strange to see my cervix on screen have to say didnt expect that :)

For me its the shock of an abnormal result with something so routine, especially as i got my letter on Fri 13th lol

 

13/02/09 Smear results mildy abnormal 18/03/09 Colposcopy & Biopsy (doctor's thought stage 2/3) 02/05/09 Results confirmed abnormal cells but no stage. 19/05/09 LLetz for Cin 3

02/02/19 results high grade dyskaryosis

05/02/19 colposcopy 

 

 

Facebook: Sam Hilton feel free to add me x

anniew

hi im new didnt know anything about jo until yesterday after watching this morning i was diagnosed with 1b cc in june 08 had hysterectomy 6 weeks chemo and rad had clear scan in december went for follow up today and was discharged im so worried after they said they wont scan me again i feel so happy that iv been dishcharged but so scared is anyone in same situation

diagnosed1b cc may 2008 rad hyst 1 lymph node positive 6 wks chemo rad 20 hours internal rad all clear march 09

julieb21

hi all and welcome to the new girls, this is the best site i found when i was diagnosed in 2007 there is nothing out there, without the girls on here i would never have got through my diagnosis, thanks to all..an d really appreciate all your kindness and support

julie burgess
lletz biopsy. poorly differenciated invasive adennocarcinoma. figo stage 1b under microscope 2a.colposcopy, EUA ,mri, radical hysterectomy feb 08.ovaries taken,hrt impant. now to hve 6wks of daily radiotherapy,chemo then internal therapy

paulamarie

hello, I'm a newbie !
I joined today after receieving my smear results yesterday. Both my last two smears have shown changes so now I'm waiting for my first colposcopy appointment.
I rang my local hospital who tell me I may have to wait six weeks, but reading all the information I can find, it seems that the treatment regimes are very successfull so trying not to panic! My husband has already convinced himself that he wont need to buy me a christmas present this year so I seem to be spending more time calming him down than worrying about myself.

Its funny, but I knew they would be abnormal, lots of pain and bleeding and an odd sensation in my right groin....I'm almost relieved that someone can finally have a good scoot round up there and tell me all is well.
I guess the recent publicity has been great in getting women to get screened and followed up, so at least something hugely positive has come out of something so tragic.....I feel lucky to have been picked up in the system, and to be fair it was only the Jade situation that got me up off my backside and start taking my health more seriously.....so thankyou and good on her !.....

debsmuz

Hi, I'm debs..(newbie lol) 27 married mam to 3 girls! went for my first smear in jan... Should of went years ago :oops: found out smear was abonormal..had a bit of a shock but went to colposcopy and learned I had severe dyskariosis, CIN 3. had a loop biopsy, the results come back as that they were high grade pre-cancer and had to return for a repeat smear beginning of april. Its has been a very worrying and scary time of my life I wish I'd of went sooner, when I was meant to, and again its the Jade Goody effect isnt it? As it was highlighted so much and I was having painful irregular bleeding. I'm so lucky I went when I did and grateful that it has been highlighted so much in the press xxx

becca1234

Hi

i only heard about this site a few days ago on the news, was trying to find a site like this since i was diagnoised in dec 08 with cc, i have been treated and cured with a radical trachelectomy, so hopefully a happy out come!
just wanted to say since i joined few days ago have already had loads of support, so nice to know others feel the same, to be honest dont think i have got my head round it yet, still find it surreal when i tell people i had cancer.
thanks again to a lovely web site
love becca xx

cc 1b1 december 2008
radical trachelectomy and lymph node removal january 2009
3 month check ups
pregnant june 2010 due c-section feb 2011 :)

imnotshy

Hi to all,

Just joined but I have been reading on and off for a while now. I feel a bit of a fraud being on here as I haven't went through anything you ladies have. I started looking about a year ago when my best friend was diagnosed with cervical cancer.

I wanted to say how much I admire you all!

xx

tallie

Hi all,

I am new to this and dont really know where i am meant to be writing my posts. I went for my smear 4 weeks ago and yesterday receieved a letter in the post saying that i had moderate dyskaryosis and needed to see my nurse. I went today and she explained that i ahve abnormal cells grade 2 and i will need a colposcopy for cells to be removed by laser treatment. I am booked in on 6th April. I am confused and worried as i really dont understand what it all means.
Any advice would be very welcome.

sal77

Hello to everyone, I'm a new member as of today.
I joined as I had yet another abnormal smear and was referred for a colposcopy which I had on Monday. I was more than a little shocked to be told by the doc that I'd been referred as a level 3 CIN which I had not been told about in advance and I had the Lletz treatment straight away on Monday.
I suppose I joined because I want to see what others are experiencing post Lletz. So far so good (though it is only a couple of days since), went to work next day and today, though think in reflection a day off may have been a good idea! I just can't believe that I have to wait 6-8 weeks for my results! Is that normal or is that worst case scenario and they usually come through before?
My main worry in the short term is getting an infection, does anyone have any useful tips to help prevent one? Also a little confused as to if I can bath or not?
Warm wishes to all of you out there, great to find such a caring informative site. xxx

Numerous mixed results from smear tests over the years.
Abnormal smear Feb 09.
Colposcopy and Lletz 23rd March 09, referred as CIN3
Results 11th May 09 confirmed CIN3 but all removed! Colposcopy in 6 months.

Golightlycat

It's a mixed blessing to see so many people here - it's sad that this forum is needed but it's great that we can help women go through what we've been through.

There's a few of us who have been here a while and between us we have quite a lot of experience in our own treatments and also through other women that have come and gone (both in good ways and bad). So we're not medical experts and can't give medical advice BUT we do know a lot about how to deal with things on a personal level!

I also wanted to add that it helps if you give us a little information about your treatment and staging - if you don't know these things it's a good thing to find out. That way we can guide you with our experiences.

We don't need to know personal info about where you live and stuff - but different PCTs do do things slightly differently so that can help. HOWEVER there are certain treatment plans that are generally standard throughout the country - like the use of chemoradiation and so on. We have women who have also had non-standard treatment for various reasons - such as complications or have been involved in drug trials and so on. So as much information that you can gather helps us to help you.

I'll also add that in my experience knowledge is power - and that's good knowledge not the scary stuff you get from googling! The more you know about the treatments that you are being offered the more you can make informed decisions, and that really helps psycholgically.

Finally for those of you waiting for coloscopy results etc the old adage no news is good news is true - the longer you wait the more likely that you don't have anything sinister. The NHS usually works pretty quickly once a cancer cell is found. Try not to work yourself up and DON'T google! Use the links at the top of this page to direct you to good sound information. Distract yourself with normal life.

Hugs

Z

Z

1b3 Adenosquameous cell CC.Trachelectomy 18.11.05 (stage 4 Endo treated). Chemoradiation 03.06.[b][color=#BF0040]10.08.11 - discharged & cancer free[/color]![/b]

[b][color=#BF40BF][i]"Be kinder than necessary 'cause everyone you meet is fighting some kin

blacksabbath

hi all
just wanted to say fab site and keep up the great work you are doing on here and to give u a bit of info on me
well i am in worcestershire and have had several smear tests all abnormal but mild but this time it was so different the doctor ( at family planning)actually winched when she examied me ( i thought OMG) then she sat me down said not be alarmed but u have a very large excropia and need laser its nothing to worry about and also your cervix is very imflammed and bleed on contact, so u need to see the gyn and she wrote a letter to give my gp, off i went to my gp who sent me of to gyn (my appointment is 8th april) in the mean time i have had my smear results saying severe dyskaryosis and an appintment for colposcopy which i might add i had the letter for that before my smear result so as u can imagine i was concerned and it stated in my letter about having a biopsy on friday (3rd) when i go to the appointment???

now with all the other things i have wrong down there i am hoping for a hiscortomy but who knows?

sorry for my bad spelling :(

will let you know how i get on from friday and there after love and hugs to all xxxxxxxxxxxx

[color=#000099]blacksabbath [/color]x

feb 09 had smear doctor winched ref gyne
march 09 results severe Dyskariosis CIN3
Colposopy april 09
was CIN2 AND 3 THE ALL CLEAR :)
had smear all clear yippee
had LAVH/BSO on 30/01/10
no more smears for me but will contine to rasie awareness x

wanda99

hi everyone im new here only joint yesterday.
well i was diagnosed last march with stage 2b2 cervical and vaginal cancer was treated by radical chemo and radiotherapy. was told in october the tumour was virtually non existant. am now in full blown menapause. yuck.
but over the last month or so i have been really bloated with period like pains, been to see my oncologist had a double internal, he said all seems fine. got an mri scan on the 15th of april. but god im so scared.
im a single parent,as of the end of my treatment because after 20 years together he couldnt even be there for me during that time. and i really dont know how im going to tell my kids if it back.
well sorry to depress people just needed to get it off my chest cause i cant talk to anyone about it.
bye for now.
wanda

Sam86

Hi Wanda, welcome to Jo's. Sorry for all u have been thru and fingers crossed for ur scan on 15th, try to stay positive xxx

Age 21
Aug 07-abnormal smear
Sept 07-LLETZ
3 mnth smears & biopsies-CIN 1/2
Age 22
Nov 08 - referred to a different consultant
Feb 09 - smear and biopsy
March 09 - severe dyskaryosis CIN 3
20th Apr - LLETZ....all clear!! Review in 6 months!

blacksabbath

hi Wanda

love and hugs to you hun and u have been so very brave so far hun.

i am sure you will find the strenght to tell them if u need to i am hoping and praying that you havent and you get the all clear on the 15th.

please add me as a friend hun and email and msn me when ever u like

hugs and kisses

blacksabbath :D

feb 09 had smear doctor winched ref gyne
march 09 results severe Dyskariosis CIN3
Colposopy april 09
was CIN2 AND 3 THE ALL CLEAR :)
had smear all clear yippee
had LAVH/BSO on 30/01/10
no more smears for me but will contine to rasie awareness x