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need advice

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anne
need advice

Hi my name is anne and at the moment life is a !!!!!!! My daughter died 10 weeks ago from cervical cancer she was 34. She left two boys 14,12 yrs of age. I find i'm so angry and can't understand why in this day and age it had got too grade 4 before they diagnosed it can any one help?. I promised her that I would do all I could to make sure her death wouldn't be a waste.

:cry:

Kevin

Hi Anne

I just read your post and I am so sorry

My sister's cancer was in an advanced stage and she ended up losing her bladder and is ungoing treatment.

My thoughts are with you i'm sure some of the amazing ladies on here will be able to help you.

My thoughts are with you

Kevin

Kevin
Brother of a cervical cancer patient

kaz

Dear Anne i am so sorry to hear your devastating news i had a radical hysterectomy ten years ago for cervical cancer i was one of the lucky ones.i cannot imagine what your going through! it makes me so sad to think a life has been wasted. i have done an awarness event on the importance of cervical screening at the hospital where i work. its only a small step but hopefully it will help someone, if you need to talk about anything i will be here to listen take care love kaz xx

15 years cancer free,ive won my battle but not yet the war!!

anne

Thanks for your messages. It just seems such a waste, chaela never missed a smear test, she did have a positive smear 12yrs ago after the birth of her youngest son they did two repeats that came back abnormal over a period of twelve months, than the third came back clear. I do wonder if that was the start. I have asked her drs and they just clam up and say that it was a bit of bad luck that it had got to such an advanced stage before they diagnosed it. She was diagnosed December 7th 2004 and died 18th September 2005. How do I get hold of her medical records . My gut feeling tells me that they made a mistake with her smears, if i'm wrong then i am. So any advise would be gratefully appreciated

:cry:

Caro

Hi anne
I am very sorry to hear about your daughter's death. This must be a very difficult time for you. Such a lot to take in.

I was diagnosed with cervical cancer last year 1B1 following a routine smear. I have since found out that cervical smears are not 100% reliable as they do not find approx 30% of cancers and do not detect adenocarcinoma's (which is what I had) pre cancer. Although I believe a more reliable smear test has been introduced in the last two years.

I too went to my GP 4 years ago with symptoms(which I am pretty sure relate to the start of the cancer) had various checks including a smear but nothing was found. I am trying to find out the results of my smear at that time.

For me I think I have to find this out so that I can lay this to rest. I too consider myself to be lucky that it was still caught at an early stage.

You may wish to send an email to Pamela Morton as to how you would get hold of your daughters records. As a patient you have a right to request although apparently there is a clause where they can withhold information for some reason. I am not sure as a relative how you would be able to get this information. Pamela may be able to help you.

Good luck with all you are doing. It must be a terrible shock to have seen your daughter go through so much.

There is so much that needs to be done to raise awareness not just with the general public but it seems GP's too are missing possible early signs of the disease.

Best wishes

Caroline

Caroline

nostalgicsam

Anne,
so sorry, I can't sympathise compeltely with how sad you must be feeling but I can help re: medical records my consultants secretary gave me a form to complete and send off, I didn't have to pay as I was undergoing treatment for cancer, but you can still get access to your daughters records as the form asks if you are the patient, relative etc. I can dig the form out oif you like to gove you more details or you can IM me...I am currently sorting through all my results, as I am sure I was undiagnosed for years with a pre-cancer condition that has led me to have endometrial cancer, a total hysterectomy and no children...
Sam

admin

Dear Anne
I am so sorry for your loss, you must be feeling very angry. I think all of us on Jo's felt that the smear test would protect us and let down when it didn't. Though I also am one of the 'lucky' ones in that my cancer was diagnosed at Stage 1.
I was in touch with a lady called Sheila Van Neck recently whose daughter died of cervical cancer after 2 smears were wrongly read. She was 32. Sheila told me her daughter's husband consulted a solicitor to get hold of the smear results, though from reading other posts it seems this might not be necessary if there is a simple form you can fill out. Sheila's family got hold of the smear slides and had them re-read by an independent consultant, who confirmed their fears they had been wrongly read. I gather the solicitors bill was picked up by their house insurance. (or possibly it was the life insurance on the mortgage, I'm not sure) Sheila has been campaigning for better smear tests her website is http://www.apromise2sue.co.uk (or .com). There is lots of info on the site, but I think Sheila herself is very exhausted by the campaign and is having a bit of a rest at the moment
I wish you well. And the 2 boys.
Amanda

Sue M

Dear Anne

I am sorry to hear about the loss of your lovely daughter. Just wanted to let you know that I am thinking of you and your family.

Sue xxx