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reconstruction for vaginal stenosis

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kittykat
reconstruction for vaginal stenosis

Hi, 

Just deperately trying to find any info or anyone in the same postion as me ... vaginal stenois following readical hysterectomy, radiation + brachytherapy. 

I'm under gynae + plastic surgeons and they have literally exhausted all options to 'fix me', I have 3cm left in length of my vagina, and I'm completely devestated. Ive had several sexual relationships over the years, and now intercourse is becoming near impossible as the stenosis has worsened. I was good after my treatment as I kept up the vaginal dilators, even though I hated them. I have so many other after effects of my treatment, and it was over 10 years ago. My plastics consultant has suggested a reconstruction using part of my sigmoid colon, but has advised that this method is rarely done now. I am unable to have skin grafts or flaps due to my lmphodema. I am so depressed now, as I have tried to live my life beyond my cancer diagnosis and treatment, I just wondered if anyone can help? or offer advice?

Thanks kat xx

1b2/2a cc.diagnosed 29/10/07 aged 26 radical hysterectomy 11/12/07 kept ovaries+had egg retrieval 14 eggs in storage!13/02/08-chemo/radiation+a looong brachytherapy completed 19/03/08.MRI scan 21/05/08 PET scan+all clear!

lymphodema confirmed in both legs, vaginal stenosis, pelvic radiation disease and telangestasia in bladder- currently under 6monthly EUA +cystoscopy due to 'abnormal cells' on the blader wall, 'I've won the battle but not the war'

Petesdragon
Petesdragon's picture

Hi Kittykat,

I have very bad lympodoema in my legs, particularly the left. However, I still had  reconstruction done at the time of my exenteration. They used a flap from my left leg which is my worse leg. I have to admit that healing of the leg wasn't straight forward. The wound burst open and had to be packed for six weeks. It was never painful though. I had no issues in the lady department it all healed well and has normal function.

What is interesting is that nobody suggested to me at any point that my lymphodoema was an issue. I am much older than you and I had had the lymphodoema for twenty years but it didn't seem to put anyone off.

My advice to you would be to seek a second opinion. Your surgeons seem a little pessimistic. 

Whereabouts are you geographically?

Karen 

 

    • Stage 3 Glassy cell adenocarcinoma  1997 (negative smear tests).

Treated with Wertheim's hysterectomy, chemorads.

October 2017- new squamous cell vaginal tumour diagnosed,  probably radiation-induced. 

Total pelvic exenteration on 19th December 2017. 

March 18 Post-op CT scan shows healthy kidneys and successful urostomy and colostomy. No evidence of recurrence. Discharged by urology and colorectal surgeons. 2 down and 2 to go!

June 2018. CT scan shows 2 new pulmonary nodules.  

CT Scan Jan 2019. Nodules gone. No evidence of disease. 

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