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Just deperately trying to find any info or anyone in the same postion as me ... vaginal stenois following readical hysterectomy, radiation + brachytherapy.
I'm under gynae + plastic surgeons and they have literally exhausted all options to 'fix me', I have 3cm left in length of my vagina, and I'm completely devestated. Ive had several sexual relationships over the years, and now intercourse is becoming near impossible as the stenosis has worsened. I was good after my treatment as I kept up the vaginal dilators, even though I hated them. I have so many other after effects of my treatment, and it was over 10 years ago. My plastics consultant has suggested a reconstruction using part of my sigmoid colon, but has advised that this method is rarely done now. I am unable to have skin grafts or flaps due to my lmphodema. I am so depressed now, as I have tried to live my life beyond my cancer diagnosis and treatment, I just wondered if anyone can help? or offer advice?
Thanks kat xx
1b2/2a cc.diagnosed 29/10/07 aged 26 radical hysterectomy 11/12/07 kept ovaries+had egg retrieval 14 eggs in storage!13/02/08-chemo/radiation+a looong brachytherapy completed 19/03/08.MRI scan 21/05/08 PET scan+all clear!
lymphodema confirmed in both legs, vaginal stenosis, pelvic radiation disease and telangestasia in bladder- currently under 6monthly EUA +cystoscopy due to 'abnormal cells' on the blader wall, 'I've won the battle but not the war'