Welcome to the Small Cell Cervical Cancer forum

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Fran Berry
Welcome to the Small Cell Cervical Cancer forum

Hi all,

As small cell cervical cancer is such a rare cancer it can be difficult to find other women who have been affected. We have set up this new section of our forum in the hope that it will be a safe and supportive environment for ladies affected by Small Cell Cervical Cancer to find each other for information, support, and friendship.

If there is anything I can help with or you have any concerns please do just get in contact with us at [email protected]

Best wishes
Fran

Fran Berry

Support Services Officer

Jo's Cervical Cancer Trust

[email protected]

Wedgegirl

Many thanks for this forum.

I will introduce myself, I'm Georgina age 46 diagnosed in July 2017 following a regular smear which identified an adenocarcinoma, this led to a radical hysterectomy and confirmed the presence of small cell neuroendocrine carcinoma. Currently on my second cycle of Cardoplatin and Etoposide. I live in Kent and I am receiving my treatment at the Maidstone oncology centre.

1995 Abnormal smear Lletz procedure. No further treatment (Age 24)

2014 smears moved from annual to every 3 years.

04/17 Abnormal smear (Age 46)

05/17 Large loop excision

06/17 High grade invasive adenocarcinoma G2, deep margin with neuroendocrine component 

07/17 Laparoscopic Radical Hysterectomy, Sentinel Lymph nodes removed plus an additional two.

08/17 small cell neuroendocrine carcinoma confirmed.

4 rounds Carboplatin/ Etoposide chemo started 22/08

12/17 Clear MRI

Blog: Be more zebra

emmjaybee

Hi Fran, just to say that I  have used this website over the last two years. I lost my 32 year old daughter to small cell neuroendocrine cervical cancer in February. Not sure whether to post the most distressing 18 months of my daughters and my life on here, or whether  it would  help the very few who are diagnosed with  this rare and aggressive cancer. 

Regards emmjaybee

Wedgegirl

Dear Emmjaybee, I'm so sorry for your loss, I would like to hear your daughters story if it is not to distressing for,you x

1995 Abnormal smear Lletz procedure. No further treatment (Age 24)

2014 smears moved from annual to every 3 years.

04/17 Abnormal smear (Age 46)

05/17 Large loop excision

06/17 High grade invasive adenocarcinoma G2, deep margin with neuroendocrine component 

07/17 Laparoscopic Radical Hysterectomy, Sentinel Lymph nodes removed plus an additional two.

08/17 small cell neuroendocrine carcinoma confirmed.

4 rounds Carboplatin/ Etoposide chemo started 22/08

12/17 Clear MRI

Blog: Be more zebra

Lucie_Locket

Hello all, thought I would introduce myself too, I have just joined this site in hope to find others going through the same thing. I am 24 yrs of age recently been diagnosed with neuroendocrine carcinoma. I am currently waiting on lletz results to determine the grade and course of treatment. Anyone who does read this I wish you the best in whatever place your in, whether you have cancer yourself or you are a family member of a loved one who has it. 

Wedgegirl

Hi Lucie, do you know if it is small call or large cell yet? Which part of the U.K. are you from?

1995 Abnormal smear Lletz procedure. No further treatment (Age 24)

2014 smears moved from annual to every 3 years.

04/17 Abnormal smear (Age 46)

05/17 Large loop excision

06/17 High grade invasive adenocarcinoma G2, deep margin with neuroendocrine component 

07/17 Laparoscopic Radical Hysterectomy, Sentinel Lymph nodes removed plus an additional two.

08/17 small cell neuroendocrine carcinoma confirmed.

4 rounds Carboplatin/ Etoposide chemo started 22/08

12/17 Clear MRI

Blog: Be more zebra

Lucie_Locket

Hiya :), yeh they said it was small cell, I live near Cambridge so am being treated at Addenbrookes Hospital which I’m more than happy with. They worked wonders with my dad, he is hopefully getting the all clear today. What about you, where abouts are you from? 

Wedgegirl

I'm in Kent so currently under the Maidstone oncology centre, I'm going to ask my oncologist for a referral to the Royal Free as that is my nearest centre of excellence for neuroendocrine.

 

1995 Abnormal smear Lletz procedure. No further treatment (Age 24)

2014 smears moved from annual to every 3 years.

04/17 Abnormal smear (Age 46)

05/17 Large loop excision

06/17 High grade invasive adenocarcinoma G2, deep margin with neuroendocrine component 

07/17 Laparoscopic Radical Hysterectomy, Sentinel Lymph nodes removed plus an additional two.

08/17 small cell neuroendocrine carcinoma confirmed.

4 rounds Carboplatin/ Etoposide chemo started 22/08

12/17 Clear MRI

Blog: Be more zebra

Lucie_Locket

That would be good, if you don’t mind me asking how has your treatment been so far? I’m so worried about having chemotherapy :/ tbh i don’t really know how I feel about it as a whole yet. 

Wedgegirl

Hysterectomy went well, healed really quickly. Chemo it's tough going at times, I'm half way through cycle three, I've struggled with sickness, but not everyone does. It was my intention to stay at work throughout, but I've taken the time off which has helped.

1995 Abnormal smear Lletz procedure. No further treatment (Age 24)

2014 smears moved from annual to every 3 years.

04/17 Abnormal smear (Age 46)

05/17 Large loop excision

06/17 High grade invasive adenocarcinoma G2, deep margin with neuroendocrine component 

07/17 Laparoscopic Radical Hysterectomy, Sentinel Lymph nodes removed plus an additional two.

08/17 small cell neuroendocrine carcinoma confirmed.

4 rounds Carboplatin/ Etoposide chemo started 22/08

12/17 Clear MRI

Blog: Be more zebra

Lucie_Locket

Well it’s great to hear your surgery went well and that. Chemo sounds awful but suppose just going to have to take it as it comes :/ Trying and most of the time managing to stay positive I guess