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in the system awaiting results

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KAR47
in the system awaiting results

Hi Ladies
This is all a bit new to me and i am scared of my impending results but at the same time just want confirmation of treatment and get on with it (i am not a very patient person lol)
My smears have always been normal until sept 12 when severe changes were found. Colposcopy clinic lettz treatment proved difficult so i was sent for lettz under general.
All seemed well, staff were lovely and I thought all done and dusted until doctor advised she had not been able to remove all as it was too far up and was sending me for MRI to 'see whats going on'.
I have had the MRI today and for the first time I feel really weepy. Am i right in thinking MRI is used to stage cc?
I sat in the hospital today terrified this is where i am going to be more than home soon. Although the staff are lovely it really freaks me out and I want to run for the hills.
After conversations with doctor I am fully expecting having to have a hysterectomy as a minimum treatment and whilst thats not the end of the world for me as I am extremely fortunate to have 2 wonderful (now adult) children, the hospital, recovery and possible other treatments are terrifying me.
How do all you lovely brave ladies manage?
Sorry about long post but Thankyou for reading x

5.9.12 Routine smear 24.9.12 Colposcopy clinic - referred lletz under GA 3.10.12  Hysterectomy booked 20.11.12 Hysterectomy cancelled MDT meeting 26.11.12 for second opinion on cin 3 diagnosis.  restaged 1a1 referred to specialist centre. 2nd lletz booked 3.12.12 restaged again 1b1 20.12.12 radical hysterectomy. 10.1.13 final stage 1b2 lymph nodes clear but LVSI present. No further treatment. 3 monthly checks.

fireworkgirl

I'm really sorry to hear you are going through this and it seems as if they haven't given you enough information. I was in your position a few weeks ago, I had the lletz procedure done and once the biopsy results came back it was confirmed that I had cervical cancer. This is NOT necessarily the same case for you. I was sent for an MRI scan just to take a more detailed look at where the cells were found. Then they can discuss treatment options after they collate all the information.
It seems like they have acted extremely fast in your case which is brilliant news.

All I can say is that you have to just take a deep, deep breath and take it in small steps. Each appointment, each test, each procedure, one step at a time. I was fortunate that I knew I had cervical cancer so it wasn't a shock to be diagnosed. I had a radical trachelectomy on Sept 26th, which is a less severe operation than the hysterectomy and may be available to you too. One piece of advice I would give, if you have the right personality type, is to do your own research. If you are a worrier and have yourself dead and buried then it's probably best not to. Stay positive, surround yourself with positive, supportive people and talk to others who have been where you are.

You can't second guess this journey but I found the attitude, prepare for the worst and hope for the best. You'll get through this and be a far stronger person regardless of what happens. If you need to talk, we're here for you.
Best of luck and keep in touch please

Liane xx

Kaymiller

Hi
Poor you xxxx The waiting, and fear of the unknown suck.

Although I can't offer any accurate insight into what your MRI may find, it may well find nothing at all. My situation leading to diagnosis sounds similar to yours, and the MRI and CT I had confirmed the cancer hadn't moved from my womb.

Following my diagnosis, I had radical hysterectomy and pelvic clearance. I had already had one child.

The surgery was really not that bad. I took it really easy for 3 weeks, and was back working from home after that. 7 weeks after surgery I was back to commuting into work in London everyday.

We all cope differently, and you sound like a coper to me!

Good luck, and please let us know how you get on.

Kay xxxx

Abnormal smear August 2008
Colposcopy 2 September 2008
Diagnosed stage 1b 8 October 2008
Radical hysterectomy and pelvic clearance 7 November 2008
Check-ups every 3 months - all clear
Until 12 September 2012 when lump found in vaginal vault

KAR47

Thankyou kind new friends for your advice and help. :)
I feel the doctor told me a diagnosis without using the word cancer until she has the facts to back it up if that makes sense. I don't want to read between the lines and prefer a direct approach!
Although I am a coper generally this is gonna test my limits. :cry: Thank goodness i have wonderful family and friends all around me but at the moment their sympathy is making me worse! And now i have lovely forum friends so grateful to ask questions or post without panicking family :)
Best wishes to you all whatever your circumstances
Kathx

5.9.12 Routine smear 24.9.12 Colposcopy clinic - referred lletz under GA 3.10.12  Hysterectomy booked 20.11.12 Hysterectomy cancelled MDT meeting 26.11.12 for second opinion on cin 3 diagnosis.  restaged 1a1 referred to specialist centre. 2nd lletz booked 3.12.12 restaged again 1b1 20.12.12 radical hysterectomy. 10.1.13 final stage 1b2 lymph nodes clear but LVSI present. No further treatment. 3 monthly checks.

fireworkgirl

Kath,
Most of us understand how you are feeling right now. The unknown, the questions, the fear, the waiting...it's all hard to deal with and we are pushed to our limits. It's brilliant you have good family and friends around you but if you're anything like me I sometimes still felt alone. I was being strong for them and hoping that my optimistic, casual approach would wear off on them, it did. Inside my head was whirling with doubts, confusion and sometimes just outright fear.
Use the forum as much as you need, there's no such thing as ranting too much here and the ladies before us can really offer real life advice, support or empathy
Take care of yourself x

Toca

I always thought if I was ever diagnosed with cancer I would go to pieces. I thought I wouldn't be able to cope and the thought of how my family would cope was a worry. In reality it wasn't as bad as I thought it was going to be. I approached it with a positive attitude and my family done the same. I was quite accepting and tried to look into the positives if my situation. It was caught early, early stage and I was offered surgery for all I was very grateful. The dr is right to check out through an MRI so she can give you all the facts but it doesn't make the waiting any easier x

Smear - April '11 Biopsy - June '11 Diagnosed CC stage 1B age 28 LLETZ - July 11 MRI - Aug 11 Surgery - Lymph node removal and Second LLETZ - Sept '11 No spread found, no lymph node involvement Clear smear - Feb 2012