How a survivor of sexual violence may feel about cervical screening

Also in this section:

• Emotional support to help survivors of sexual violence through cervical screening >
• Practical ways to support survivors of sexual violence through cervical screening >
• Other support organisations for survivors of sexual violence >
• Read our report on survivors' experience of cervical screening >

Cervical screening is no exception to the discomfort and distress that a survivor of sexual violence may experience. It is likely that experiences of sexual violence contribute significantly to the already low attendance rates.

In a survey conducted by Jo's Cervical Cancer Trust in partnership with Rape Crisis, almost half of survivors said they had not attended cervical screening because of their experience of sexual violence. A quarter said they had put off the test for the same reason, while just 14.5% of respondents said they attend screening when invited.

Read the full results of the survey >

“It's not my job as a survivor to make medical staff comfortable – it's their job to make me comfortable.”

-         A survey respondent and survivor

For a survivor, attending a routine smear test can be a source of intense anxiety. They may feel forced or pressured to disclose their experiences, or the examination itself could trigger a whole host of distressing physical and emotional responses.

Why cervical screening can be triggering

Previous research has identified a number of common barriers to cervical screening amongst women with experience of sexual violence. A 2012 research analysis by the National Association for People Abused in Childhood (NAPAC) concluded that:

"Common feelings among survivors of sexual abuse include shame, guilt, self-blame and feeling unclean, contaminated or dirty. These feelings can be compounded during the experience of a smear test. The physical position in which smear tests are taken is generally with the woman lying on her back with legs bent and knees parted. NAPAC hears from many women that this position is too similar to the physical positions they were forced into during the abusive acts against them."[1]

Understanding these triggers, and the effect this may have on patients, is crucial to smear takers' ability to support survivors of sexual violence. 

“I imagine the things that can be triggering may be some of the last [that smear takers would] think of. They need to understand that even the very minor elements of it can be awful – the feel of cold lube on your genitals, or the sound the speculum can make as they screw it open.”

-         A survey respondent and survivor

Likewise, certain words or phrases – like telling the patient to "relax" – may be reminiscent of the coercive language used by their attacker.

Besides the actual physical experience of screening, the prospect of pain or tension, and the thought of being unwillingly 'penetrated' by a clinical object, many survivors' concerns are related to control and victimisation.

“Sexual assault or rape is about lack of control. The smear needs to be the opposite – the woman in full control."

-         A survey respondent and survivor

Indeed, previous research[2] found that:

"There is a clear power differential between the smear taker and the woman undergoing the rest. [Women] made remarks about feeling vulnerable, and someone having control over them being 'similar to the control that is suffered during abuse'... They commented on the intrusive and invasive nature of the test and how they did not like to be 'lying down exposed… having somebody touch me in that area' or 'having a stranger standing there'."

Further barriers and concerns

Embarrassment, shame or guilt

We know that embarrassment and self-consciousness are common barriers to cervical screening amongst women in general, and this can be particularly pronounced in survivors of sexual violence.

They may be concerned about visible scarring or signs of abuse; have feelings of guilt, shame, and low self-worth; or even feel that they are no longer entitled to good treatment.

Lack of specialist information and support

6 out of 10 respondents in our survey said there was nothing to help prepare them for cervical screening, and they did not know where to go for support.

“There aren't any resources! I'm too scared to ask family or friends – they wouldn't be able to cope with me if I have a flashback, intrusive memories, or dissociate.”

-         A survey respondent and survivor

86% of respondents said that cervical screening information written specifically for women who have experienced sexual violence would be helpful, while many felt that more signposting to support was necessary.

“The issue is not always with the unknown of the procedure – that can be explained. How do people get support during or after the smear?”

-         A survey respondent and survivor

Print or signpost to our information about cervical screening for survivors of sexual violence >

Fear of disclosure

Many survivors also worry about having to disclose experiences of sexual violence to their smear taker, and whether they will be adequately supported if they do so. Women with these experiences want to feel safe and able to trust their smear taker, including that they will respond compassionately, calmly, and with an understanding of the issues.

Re-traumatisation

Concerns around going for cervical screening are not simply about bringing up feelings or memories of a past event. If not done properly and with the right sensitivity, the test could traumatise a survivor again as an unwanted act of penetration (due to the use of the speculum). It is important to let any survivor know they are in control of the use and respect their wishes around language, positioning and time taken.

How a survivor might react

Avoidance

Avoidance is a key component of the post-traumatic stress response and, as our survey shows, around half of survivors react to these barriers by simply not attending cervical screening appointments when invited.

In a 2012 study[3], a small minority of women said they would "rather die of something that screening would pick up than be in that position again."

For those who do attend, it may take many months or years of putting it off before they feel able to book their smear test.

Stress responses

Once in the appointment, survivors may become emotional or distressed. They may want to disclose their past experiences, or talk through what the procedure will involve. They may need more time and patience than other patients to prepare for the screening itself.

Other common reactions by survivors to cervical screening include:

• panicking, or having a panic attack
• dissociating or disconnecting from reality
• freezing.

These may be similar to the stress responses that kicked in during their experiences of violence and, either way, can be incredibly distressing.

“They may become frozen and feel totally unable to move or speak. They may have a flashback, which is where their brain shuts down everything in the present and transports them back to the incident (or one of them) of sexual violence. This can be terrifying and leave the person feeling that they have been reviolated.” 

-         A survivor and professional

If the survivor regularly suffers from one of these symptoms, they may come into the appointment already feeling anxious about their mind or body responding in this way, and that anxiety can itself present a further barrier.

Read about offering emotional support to survivors >

Read about practical ways to support survivors >