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It was announced today that an error in Scotland has led to some women being wrongly removed from the Cervical Screening Programme.
If you’ve seen it in the news you might be feeling worried or confused, so we want to take you behind the headlines to find out what has really happened and what you can do if you have further questions.
If you have been affected by the incident, we know this might be an incredibly difficult time. Please do know that Jo’s are here for you.
A routine audit of cervical cancer data carried out by the NHS in Scotland found a small number (fewer than five) of cases where individuals with cervical cancer had been wrongly excluded from the cervical screening programme. A wider review has identified errors which means some women in Scotland who have had a sub-total (or partial) hysterectomy since 1997 have been wrongly excluded from the Cervical Screening Programme. In other cases, it is unclear whether they were rightly excluded.
Around 430 letters have been sent out to the individuals affected by this error providing more information and advising them of next steps. Further work is underway to review the records of those who have had sub-total hysterectomies before 1997 and those who have had other types of hysterectomies.
It may help to remember that the risk of developing cervical cancer remains low. However if you have been affected by the incident or are worried about your own health, this news might be upsetting or leave you with questions. We are here to support you – find out how below.
In most hysterectomies, often called total or radical hysterectomies, the cervix is removed. This means individuals no longer need routine cervical screening and are removed from the Cervical Screening Programme.
In a sub-total hysterectomy the cervix is not removed, which means cervical screening invitations should continue.
This incident has taken place in Scotland. England, Wales and Northern Ireland are aware of the issue and doing their own reviews to see if any action needs to be taken and any issues are identified at the earliest possible stage.
We understand this news may make you have questions about your own health. If you have any worries it is important to contact your GP.
The NHS is working quickly to contact all affected individuals and provide the information and support they need to understand what this means.
The Cervical Screening Programme are putting stronger safety checks in place and changes to the way records are processed.
At Jo’s, we are asking for assurances that action has been taken to reduce the risk of this happening again.
This incident was caused by incorrect information being passed to the Cervical Screening Programme or being entered into it.
Cervical screening (a smear test) remains a really important test and research has shown it is the best protection against cervical cancer. If you have an invitation and have questions about the test or your results then we have lots of information which might help
We know that this situation may bring up a lot of emotions and questions for you. We are working with NHS Scotland to provide support to anyone with concerns – nothing is too big or too small. You can call our free Helpline on 0808 802 8000 or email [email protected], where our trained staff and volunteers will listen, signpost you to the right people, and offer the emotional support you may need.
Please be aware we do not have access to your NHS records, so will not be able to provide clinical information about your cervical screening history or hysterectomy.
If you have questions specifically about your medical history – for example, a hysterectomy – it is best to contact your local health board in Scotland, and GP surgery or hospital team in England, Wales and Northern Ireland.