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For lots of women and people with a cervix, smear tests (cervical screening) are something that might feel a bit uncomfortable or embarrassing, but is over and done with quickly. But, for some with conditions such as endometriosis, a smear test can be more painful and can be a really daunting prospect.
We spoke to Dr Larisa Corda, an Obstetrician and Gynaecologist and Endometriosis UK ambassador to learn more. Endometriosis UK is the UK’s leading charity supporting people with the condition.
“Endometriosis is the name given to the condition where cells similar to the ones in the lining of the womb (uterus) are found elsewhere in the body. It affects about 1.5 million women in the UK.
Each month these cells react in the same way to those in the womb, building up and then breaking down and bleeding. Unlike the cells in the womb that leave the body as a period, this blood has no way to escape. It is a chronic, often debilitating condition that can cause painful or heavy periods, among other symptoms.
Some women and people with a cervix find cervical screening painful with a speculum but if you have endometriosis, this may be more painful than normal. This is because endometriosis in the pelvis may cause scarring and inflammation, meaning that inserting a speculum can cause profound pain by pulling or stretching the affected area that could be in front of the cervix, to the side or behind it. In addition, some women may (rarely) also have endometriosis affecting their cervix directly.
If you find the speculum painful initially, this is not necessarily a reason to worry or think you have endometriosis. But if you have other signs and symptoms of endometriosis, in particular or pain during penetrative sex (dyspareunia), then speculum examinations could be more painful.
Before anything else, it’s a good idea to let the doctor or nurse know about your condition, so that they can adjust what they’re doing. If you experience pain during the speculum exam, there are lots of tips which can help >
Remember that you ultimately call the shots and if at any point it becomes too painful or difficult, never feel afraid to say so and ask for the procedure to stop and be rescheduled.”
Our Fundraising Officer, Nikita Gandhi, shared her experience of having endometriosis and a colposcopy, plus her fantastic tips on making the test better.
"I heard a lot of horror stories about having a smear test when you have endometriosis (endo) and thought that having it would make my smear test far more painful for me than it was for others, so I was pretty nervous about my first one. This, however, was completely not true. Although it wasn’t the most comfortable experience of my life, compared to the flare-ups, procedures and tests I have had done to diagnose and treat my endo, this was a walk in the park!
One of the benefits, if you can call it that, of having endo is that you’ve probably already been tested a lot, or poked and prodded down there by countless healthcare professionals. So, while it’s not exactly the same, you’re likely to already be used to the idea of smear tests or colposcopy as a process.
There could be more pain for you if you have endo, but there are things that helped me.
The idea of a smear test might be a bit daunting, but believe me – you will most likely have gone through much, much worse! If you are living with endometriosis, you will already have had to be so strong and resilient throughout your life, so try not to be too nervous and remember that your health care team and Jo’s are here to support you through this."